• Guest - w'd love to know what you think about the forum! Take the 2025 Survey »

too much pain

ham79

Well-Known Member
Messages
252
Location
aberdeen
Dislikes
diabetes and cbeebies
I am having a bit of a really down day.
I've gotten my bloods down from an average of over 26 to 10 and my feet, legs, stomach, arms and chest are in so much pain I am really struggling seen the docs dsn with no positive response "might be viral " . I understand that theres a period of your body going through withdrawl but I can't sleep can hardly walk and even vomit if I try and do average stuff.
 
if it is so bad then i would see a different dr if thats possible?
sorry you are feeling bad :?
 
Hi,
Lantus is associated with the sort of pain you describe. 3 years ago I was mis-diagnosed with fibromyalgia after suffering constant pain in my shoulders, arms, chest and cramps and pains in my legs. I could barely carry a light shopping bag or hold my arms up. I had first been referred to physio and when she could find nothing wrong, a rheumatologist. He too was at a loss. Because I had been feeling exhausted and ill also, he suggested it could be fibromyalgia, which has similar symptoms to ME. I was so desperate for a diagnosis at that point, that I was relieved.
However it was not Fibromyalgia but a side-effect of Lantus, and a commonly reported one too.
Since coming off it in May 2008 an switching to pork, I no longer suffer from the afore-mentioned ailments. I have also been in contact with many other people who have experienced similar side-effects and worse on synthetic insulins,but particularly Lantus.
I also had erratic inconsistent BG control, daily it would go from 2-15(or higher :evil: ). My consultant said that was ok,so long as it came down again!
Funny thing is that having been type-1 for nearly 20 years at that point, I had not got a clue that synthetic insulins could cause any side-effects. I was only ever concerned about the preservatives-you live and you learn
Please give the IDDT(insulin dependent diabetes trust) a call. The number is on their website, that's worth a look too.
Jus
 
thanks for that. asked the dsn about allergic reaction and she denied all knowledge but just have to keep going back til I win or they just get sick of me and give in
 
Hi,
Can't say I'm surprised by your DNS response. Myself and another forum member have also had strange reactions from DSNs with regard to this. They are not being honest; these side-effects have been know since before Lantus was licensed in this country. Here is a link to prove this. http://emc.medicines.org.uk/medicine/89 ... lled+pen./
Although it states that Myalgia is a "very rare" side-effect, this information would be based on the results of the original clinical trials which were only carried out over a period of 28 weeks. However, many people do not suffer side-effects until they have been on Lantus for over a year.
Here's another link, this guy has his own theory on why some people have probs with it. diabetesforums.com/forum/diabetes/4790-urgent-lantus-problems.html
Best of luck with your DSN.
Jus
 
Cookies are required to use this site. You must accept them to continue using the site. Learn More.…