Type 1 Tresiba

Hi @alphabeta I have no complaints took a few weeks to get the dose right but was stable and carried me through 24 hours easily, now on a pump but if I had to go back to daily injections then would go straight back to this.

Not very flexible. It takes 36 hours for increases / decreased in dosages to take effect. I was feeling ill on lantus though and don't have any of those problems with tresiba

I’m having a love/hate relationship with it tbh.

I love the three weeks of the month where it keeps me flat and level through the night and provides a great base to work on in the daytime. I do have to split my dose though, as it only seems to be lasting 20 hours for me, rather than the 36-42 they claim. It doesn’t sting to inject like Lantus and I’ve not got the leg pains I had while using it.

I hate, hate, hate it’s inflexibility. If you have hormones sloshing about like ladies of reproductive age do, you may find that you can get a bit insulin resistant for a week. By the time your increased basal takes effect, it’s too late, and then you’re waiting days hypoing while waiting for it to wear off - less of an issue for blokes, but there might be some ladies reading this. Could also be an issue if you’re active in the week and less so on the weekend (or vice versa).

I’d like to go on a pump now!

Mel dCP said:

I’m having a love/hate relationship with it tbh.

I love the three weeks of the month where it keeps me flat and level through the night and provides a great base to work on in the daytime. I do have to split my dose though, as it only seems to be lasting 20 hours for me, rather than the 36-42 they claim. It doesn’t sting to inject like Lantus and I’ve not got the leg pains I had while using it.

I hate, hate, hate it’s inflexibility. If you have hormones sloshing about like ladies of reproductive age do, you may find that you can get a bit insulin resistant for a week. By the time your increased basal takes effect, it’s too late, and then you’re waiting days hypoing while waiting for it to wear off - less of an issue for blokes, but there might be some ladies reading this. Could also be an issue if you’re active in the week and less so on the weekend (or vice versa).

I’d like to go on a pump now!

Click to expand...

YES, a pump sounds ideal. I wonder whether on those occasions levemir 2 to 3 x daily would be better and wear off quicker so fewer hypos. Or what if there was a regular subsidised pump hire scheme for that time.
As a guy the closest I get to those cycles is usually on one occasion per year, when I have my influenza shot - 6 plus days of at least 30% plus basal and bolus on the pump. I know it is not comparable. I hope there are lots of affirming and useful posts.

kitedoc said:

YES, a pump sounds ideal. I wonder whether on those occasions levemir 2 to 3 x daily would be better and wear off quicker so fewer hypos. Or what if there was a regular subsidised pump hire scheme for that time.
As a guy the closest I get to those cycles is usually on one occasion per year, when I have my influenza shot - 6 plus days of at least 30% plus basal and bolus on the pump. I know it is not comparable. I hope there are lots of affirming and useful posts.

Click to expand...

Your flu jab experience sounds very similar!

I initially went on Tresiba because of the peaky nature of Lantus (and presumably Levemir, looking at the profiles of them both), which was giving me night time hypos, no matter how I split the doses and fiddled with the timings. I did ask if I could have a top-up of Levemir to go with my regular dose of Tresiba for that week, but they weren’t having it. Said there’s no research about how the two might interact. I did try a Lantus top up with some I have in my fridge, but felt quite unwell, could have been a coincidence but am reluctant to try it again. So I’m basically sticking to the same Tresiba dose all the time, and dribbling in Novorapid every 45-60 minutes half or a whole unit at a time. Bolusing for food at 150% of my usual ratios - it’s the only way I can even vaguely keep on top of it. Basically mimicking the action of a pump, I guess. Consultant apppintment in September, so there’ll be lots of data to show them. I’ve already spoken to the DSN team at my hospital clinic, and they’ve said that this issue (combined with the dawn phenomenon) would make me eligible for a pump. So it’s already on my records as a possible solution. I’m logging all my doses on my Libre scanner so they'll see all that when they upload it. I’ve taken eight Novorapid injections already today.

Tresiba is amazing for many people. Just not for me.