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Type 1 Diabetes
Type 1 and Statins.
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<blockquote data-quote="KK123" data-source="post: 2018249" data-attributes="member: 451727"><p>Hi [USER=502531]@Craig1978[/USER], for what it's worth, my cholesterol was 7.2 (HDL 2.45, trigs 0.5 and the rest LDL). My Diabetes Consultant said my LDL was too high and as far as he could tell was not being caused by what I was eating or a 'lifestyle' approach. (Slim, very active, blah blah). He referred me to a Lipid Consultant who then booked a genetic test for me to see if it was FH (Familial hypercholesterolomia or something like that!). </p><p></p><p>That test has just come back, I did NOT have FH but they also ran 12 other gene tests to establish whether this was a genetic thing. Simply put, they run those 12 tests each of which indicate whether you have certain genes that affect your LDL production. This was highly positive in that they can now say I have higher than normal polygenic LDL because of genetics. That does not mean that I am abnormal but that my body has a propensity to create more than the so called 3.4 of LDL that they would like.</p><p></p><p>There is nothing I can do about this, I could be Usain Bolt mixed with an Australian nutritionist (!) and it would make no difference. So, the ONLY way that could be reduced is for me to take statins. Now, in my opinion, why would I do that?, so I can get it down to a 'normal' level that clearly is not normal for my body?. From the HDL and trigs, my body is coping very well with the LDL. My point is that every single individual is different and I agree it is very hard to decide what to do when a Specialist is telling you 'take this'. However, that Specialist goes by the book, type 1?, here is a statin just in case. Got side effects because of it?, here is another pill to combat that, and on and on. I compensate as much as I can for my higher than average LDL, I stay slim, I run, I eat well, I don't drink or smoke. </p><p></p><p>I will not take statins as I do not believe I am 'ill' with this 'high' LDL, just different. Don't get me wrong, I know it's about future risk too but until they tell me my absolute risk as opposed to my relative risk, I will stay as I am.</p><p></p><p>Hope this helps.</p></blockquote><p></p>
[QUOTE="KK123, post: 2018249, member: 451727"] Hi [USER=502531]@Craig1978[/USER], for what it's worth, my cholesterol was 7.2 (HDL 2.45, trigs 0.5 and the rest LDL). My Diabetes Consultant said my LDL was too high and as far as he could tell was not being caused by what I was eating or a 'lifestyle' approach. (Slim, very active, blah blah). He referred me to a Lipid Consultant who then booked a genetic test for me to see if it was FH (Familial hypercholesterolomia or something like that!). That test has just come back, I did NOT have FH but they also ran 12 other gene tests to establish whether this was a genetic thing. Simply put, they run those 12 tests each of which indicate whether you have certain genes that affect your LDL production. This was highly positive in that they can now say I have higher than normal polygenic LDL because of genetics. That does not mean that I am abnormal but that my body has a propensity to create more than the so called 3.4 of LDL that they would like. There is nothing I can do about this, I could be Usain Bolt mixed with an Australian nutritionist (!) and it would make no difference. So, the ONLY way that could be reduced is for me to take statins. Now, in my opinion, why would I do that?, so I can get it down to a 'normal' level that clearly is not normal for my body?. From the HDL and trigs, my body is coping very well with the LDL. My point is that every single individual is different and I agree it is very hard to decide what to do when a Specialist is telling you 'take this'. However, that Specialist goes by the book, type 1?, here is a statin just in case. Got side effects because of it?, here is another pill to combat that, and on and on. I compensate as much as I can for my higher than average LDL, I stay slim, I run, I eat well, I don't drink or smoke. I will not take statins as I do not believe I am 'ill' with this 'high' LDL, just different. Don't get me wrong, I know it's about future risk too but until they tell me my absolute risk as opposed to my relative risk, I will stay as I am. Hope this helps. [/QUOTE]
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