• Guest - w'd love to know what you think about the forum! Take the 2025 Survey »

Type 1 & Chronic Fatigue (Glandular Fever)

teddeblade

Newbie
Messages
1
My daughter who is 14 years old and type 1 insulin dependent. Has been diagnosed with Chronic Fatigue following Glandular Fever. The professionals just do not seem to understand our frustration or what to do next. Unexplained high sugars during the night results in us having to test and give correction doses throughout the night. (Every 2 hours) You can imagine our frustration and resultant lack of sleep. Just wondered if anyone has experienced similar that can help us through this very testing time from their experience.
 
Hi,
I can imagine your frustration. My wee sister had Glandular Fever in her teens and was ill for quite a time after, although she didn't have diabetes to cope with.. What insulins is your daughter on, amounts etc; and how is her control during the day during the day?
Jus
 
hi,
i totally understand,
i was diagnosed with cfs last yr after many tests, i too got it after glandular fever, what are your daughters bloods like in the day and also what is she having for supper, does she have other symptoms of cfs too? i did go to a specialised cfs clinic which did help, if i can help at all plz pm me :D
 
Please get better advice about insulin doses - you shouldn't have to be checking every 2 hours through the night. Improving situation depends on adjusting doses of both long acting / basal and short acting bolus doses (assuming you are using MDI regime?), perhaps adjusting time and content of meals etc. All of which can change in situations such as infection, stress, growth spurts / puberty eg in 14 year old teenager - I'm sure you know that, but just spelling it out to show that it's difficult, so worth getting help. Having a problem that includes 2 medical specialties (diabetes and chronic fatigue) does make getting proper help more difficult - they might not have much more idea of how to proceed than you, which might account for their apparent lack of understanding.
 
I've got both too, I got it from having undiagnosed type 1 diabetes plus severe flu whilst my mother was undergoing chemo and radiotherapy after a double mastectomy and my sister was making a false court claim against me saying I owed her £30,000 (all extremely stressful, both mentally and physically). I never found the CFS changed my levels though, but then maybe I don't know because it hit me within a week of going on insulin. But with absolutely no discernable short term memory it made it extremely difficult to work out my injections (and whether or not I'd already had them) and it made it very hard indeed to cope during hypos because my brain was already nowhere to be found before the low levels came into play too. So writing it all down was the key. I'm 2.5yrs in and had recovered quite well since Easter, but having now been ill with viral and bacterial bronchitis for two entire months I'm back to sleeping through alarms and forgetting things again. The thing that helped the most was cognitive behavioural therapy, which not only taught me what I could probably expect with CFS but also how to manage the little energy I had better - it's called 'pacing'. Very helpful. Try to get on the waiting list. You could also contact the ME Association. Your daughter is going to have to learn untold levels of patience now - because there's no magic cure, it will just take time, so she'll have to learn how to make the best of things for the moment. One good thing about having no short term memory was the fact that I rarely remembered how awful it all was for more than a split second at a time.....
 
Back
Top