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Newly Diagnosed
Type 1 diagnosis...Well, this sucks
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<blockquote data-quote="KK123" data-source="post: 2408883" data-attributes="member: 451727"><p>Hi there. Well that sounds like it all happened very quickly. I am quite surprised that they have told you definitively it's 'type 1' after only 2 days as most of us diagnosed as adults have had to go through a fair few tests and weeks of uncertainty based on a mixture of medical ignorance (ie, we are not children) and presentation (ie, are we overweight, if so they go for type 2 and if we're slim, they um and ah for a bit and if we're lucky we get some more specific tests).</p><p></p><p>I say this not to alarm you or to gainsay what you have been told, but do you know whether they did any other tests, such as a C Peptide to measure your own insulin production, if any, or any antibody tests? Although they have given you insulin straight off, that could be because your levels were very high and it was a fast way to bring them down. I was in your position on diagnosis, other than age I did not fit the so called type 2 profile so they actually did those extra tests. Yes, I turned out to be type 1 but Consultants at the time (prior to the tests) said although they were putting me on insulin immediately to bring my levels down, they were going to wait for the results of the test as I could still be a type 2. If that was the case I could then come off the insulin and be treated as a type 2. You are unusual in that they have said immediately 'type 1', normally they say 'type 2' and then change their diagnosis further along the line (sometimes!), if you are thinking it's type 1 JUST because they have put you on insulin then that may not be the actual case which is why I would make sure exactly WHAT conclusion they have come to and why.</p><p></p><p>It is imperative that you (and they) are satisfied you have been diagnosed correctly, apologies if all the above has been done already but if not and it depends on how they've initially come to their conclusion, then I would insist on those other tests.</p><p></p><p>Welcome by the way! x</p></blockquote><p></p>
[QUOTE="KK123, post: 2408883, member: 451727"] Hi there. Well that sounds like it all happened very quickly. I am quite surprised that they have told you definitively it's 'type 1' after only 2 days as most of us diagnosed as adults have had to go through a fair few tests and weeks of uncertainty based on a mixture of medical ignorance (ie, we are not children) and presentation (ie, are we overweight, if so they go for type 2 and if we're slim, they um and ah for a bit and if we're lucky we get some more specific tests). I say this not to alarm you or to gainsay what you have been told, but do you know whether they did any other tests, such as a C Peptide to measure your own insulin production, if any, or any antibody tests? Although they have given you insulin straight off, that could be because your levels were very high and it was a fast way to bring them down. I was in your position on diagnosis, other than age I did not fit the so called type 2 profile so they actually did those extra tests. Yes, I turned out to be type 1 but Consultants at the time (prior to the tests) said although they were putting me on insulin immediately to bring my levels down, they were going to wait for the results of the test as I could still be a type 2. If that was the case I could then come off the insulin and be treated as a type 2. You are unusual in that they have said immediately 'type 1', normally they say 'type 2' and then change their diagnosis further along the line (sometimes!), if you are thinking it's type 1 JUST because they have put you on insulin then that may not be the actual case which is why I would make sure exactly WHAT conclusion they have come to and why. It is imperative that you (and they) are satisfied you have been diagnosed correctly, apologies if all the above has been done already but if not and it depends on how they've initially come to their conclusion, then I would insist on those other tests. Welcome by the way! x [/QUOTE]
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