Type 1: Frustrated

nessa1970 · Oct 30, 2016

Hi guys. Me again. Today I have had 3 Hi on my bg mo Italian I corrected and nothing. I've just corrected again 10 units as it was Hi again. I dunno what else to do really cept go to sleep an revisit it tomorrow. Healthline said see dr in six next six hours an I'm not wasting my time or the hospital time on a bit if high blood sugar.im not sick just can't get it down. Those corrections ain't bringing anything down an I'm not sick or anything so I'm running out of ideas. Maybe it just needs a few more days to settle. Gees it's not even this high when I drink a coke and if I correct it drops. Any ideas why corrections ain't working.

asparagusp · Oct 30, 2016

Nessa try not to worry. It only raises your blood sugars further. You don't say what medication you are on and whether your readings are usually "normal". Assuming you are in the UK ring 111. A doctor will ring you back and advise you what to do.

PS Whereabouts in Italy are you from? Today again I am so saddened by the news of yet another earthquake there. I so much love the country.

Oldvatr · Oct 30, 2016

A T1 friend of mine has had this problem He is on a pump, and he found that in his case he had a kinked cannula that blocked. His controller did not give any warning of a blockage, and he ended up in A&E with DKA. Meter readings off the scale are not to be trifled with. Normally a correction should work, so either the insulin itself is duff or there is a problem with delivery. As you say above, a coke is normally adjusted successfully , so these 3 successive readings are worrying indeed. Keep an eye out for symptoms of DKA just in case it happens, This site has a guide on DKA on the Home Page, I believe (or its DUK that has it).

azure · Oct 30, 2016

nessa1970 said:
Hi guys. Me again. Today I have had 3 Hi on my bg mo Italian I corrected and nothing. I've just corrected again 10 units as it was Hi again. I dunno what else to do really cept go to sleep an revisit it tomorrow. Healthline said see dr in six next six hours an I'm not wasting my time or the hospital time on a bit if high blood sugar.im not sick just can't get it down. Those corrections ain't bringing anything down an I'm not sick or anything so I'm running out of ideas. Maybe it just needs a few more days to settle. Gees it's not even this high when I drink a coke and if I correct it drops. Any ideas why corrections ain't working.

A few things @nessa1970 First change both your insulins and check your fridge temperature; rule out any other cause of highs eg illness, hormones, etc; then double check you did everything right - ie did you use the right correction ratio and inject in the right place, etc.

If your correction doses still aren't working, you need to speak to your DSN. The first thing to check with her/him is if you're on the right amount of basal because if that's not enough, it'll mess everything else up. Then ask your DSN to look at your correction ratios - both your normal ratio for corrections below 13 (or whatever number you've been told) and your special correction ratio for highs (because you'll need more - sometimes quite a lot more - if you're above 13 or so).

Those are all the normal reasons for highs that just won't shift.

Let us know how your sugars are, and what the DSN says when you have a chance to speak to them. You can get back control

Edited to add - could this be hormones? Did the DSN or other healthcare person give you any idea how long it would take to get your blood sugar back down? I also wonder whether your recent time without insulin has possibly reduced and insulin production you have of your own (insulin injections can help prolong the life of any remaining islet cells).

nessa1970 · Oct 31, 2016

asparagusp said:
Nessa try not to worry. It only raises your blood sugars further. You don't say what medication you are on and whether your readings are usually "normal". Assuming you are in the UK ring 111. A doctor will ring you back and advise you what to do.

PS Whereabouts in Italy are you from? Today again I am so saddened by the news of yet another earthquake there. I so much love the country.

Hi.im from new Zealand I'm on lantus 11 morning 11 night novorapid too. Today was a bit better fasting 11. At 2pm 6 .5 but that's only because I haven't eaten only had water.it seems that's the only way to keep it low

nessa1970 · Oct 31, 2016

Oldvatr said:
A T1 friend of mine has had this problem He is on a pump, and he found that in his case he had a kinked cannula that blocked. His controller did not give any warning of a blockage, and he ended up in A&E with DKA. Meter readings off the scale are not to be trifled with. Normally a correction should work, so either the insulin itself is duff or there is a problem with delivery. As you say above, a coke is normally adjusted successfully , so these 3 successive readings are worrying indeed. Keep an eye out for symptoms of DKA just in case it happens, This site has a guide on DKA on the Home Page, I believe (or its DUK that has it).

Thanks I'll try find it.

nessa1970 · Oct 31, 2016

azure said:
A few things @nessa1970 First change both your insulins and check your fridge temperature; rule out any other cause of highs eg illness, hormones, etc; then double check you did everything right - ie did you use the right correction ratio and inject in the right place, etc.

If your correction doses still aren't working, you need to speak to your DSN. The first thing to check with her/him is if you're on the right amount of basal because if that's not enough, it'll mess everything else up. Then ask your DSN to look at your correction ratios - both your normal ratio for corrections below 13 (or whatever number you've been told) and your special correction ratio for highs (because you'll need more - sometimes quite a lot more - if you're above 13 or so).

Those are all the normal reasons for highs that just won't shift.

Let us know how your sugars are, and what the DSN says when you have a chance to speak to them. You can get back control

Edited to add - could this be hormones? Did the DSN or other healthcare person give you any idea how long it would take to get your blood sugar back down? I also wonder whether your recent time without insulin has possibly reduced and insulin production you have of your own (insulin injections can help prolong the life of any remaining islet cells).

Hi. Well I had 3 Hi in a row an I corrected with 12 and a 10 and an 8. I'm not sure what hi equals. So I take it from 33 an correct from there. This morning was 11.7 and at 2pm 6.5 I hadn't eaten tho. I now just had a tomato and a few pieces of bacon low carb so I'm hoping very much it's a low reading. I actually had a meltdown this morning ranting on and being rough with the dishes from dishwasher I was so wired it was scary.yet I was 11. I don't understand what's going good on or if it's my fault. I had juice an ice block yesterday but I carb counted them yet still hi. I feel like I can't eat really. I'm tired I slept for 13 hours still tired. I see dn Friday. X

azure · Oct 31, 2016

With the BS resukts you've given above, I wonder if your meal ratios are wrong. It certainly seems like you need more insulin somewhere.

Yes, high sugars can make people really irritable. That and the frustration.

Could you phone your DSN today rather than wait if you're still high?

nessa1970 · Oct 31, 2016

azure said:
With the BS resukts you've given above, I wonder if your meal ratios are wrong. It certainly seems like you need more insulin somewhere.

Yes, high sugars can make people really irritable. That and the frustration.

Could you phone your DSN today rather than wait if you're still high?

Hi azure. I did ring but she didn't get back to me so she must be really busy taking care of two dn work.i look forward to getting adevice an hopefully a better way forward that I can manage... I think I'll discuss the pump again as I need fulltime work and there is no way I could manage that now as I'm just too tired weak and cranky I can't concentrate an my memory's awful..

nessa1970 · Oct 31, 2016

Also I'm not understanding why my basal has to keep going up when I still produce insulin. It's not making sense. Shouldn't I need less insulin if my c.peptide is in normal range?

AndBreathe · Oct 31, 2016

nessa1970 said:
Also I'm not understanding why my basal has to keep going up when I still produce insulin. It's not making sense. Shouldn't I need less insulin if my c.peptide is in normal range?

Now, I'm not T1, but my take on it would be that your bloods run dangerously high, and have been for some time. To be honest, although naming your diabetes is important to you, I would urge you to focus on getting those numbers down into range, rather than resisting, based on a single test, which is only part of the puzzle.

Bottom line is your body is not coping with the amount of insulin you are actually producing. Your absolute priority needs to be getting those numbers down, then worry about what to call your diabetes.

Unfortunately diabetes is a very complex condition with many factors and many nuances, but one of the commonalities is that very high levels, running Hi and beyond, for any period of time just can't go on.

I would urge you to go to A&E and allow then to bring your numbers down, safely. I'm sure if you went to A&E and were having your numbers brought back into line you would have access to professionals who might even be able to give you some insight into your personal puzzle.

Not getting those numbers down is verging on Russian Roulette.

nessa1970 · Oct 31, 2016

AndBreathe said:
Now, I'm not T1, but my take on it would be that your bloods run dangerously high, and have been for some time. To be honest, although naming your diabetes is important to you, I would urge you to focus on getting those numbers down into range, rather than resisting, based on a single test, which is only part of the puzzle.

Bottom line is your body is not coping with the amount of insulin you are actually producing. Your absolute priority needs to be getting those numbers down, then worry about what to call your diabetes.

Unfortunately diabetes is a very complex condition with many factors and many nuances, but one of the commonalities is that very high levels, running Hi and beyond, for any period of time just can't go on.

I would urge you to go to A&E and allow then to bring your numbers down, safely. I'm sure if you went to A&E and were having your numbers brought back into line you would have access to professionals who might even be able to give you some insight into your personal puzzle.

Not getting those numbers down is verging on Russian Roulette.

I am type 1 had gad test ... I'm just curious as to why I am running so hi when the c.peptide says normal. It says type 2 runs normal to high. So I'm just trying to work it out as information is important an gives you power to do better. But no one seems to know as yet

asparagusp · Oct 31, 2016

nessa1970 said:
Hi.im from new Zealand I'm on lantus 11 morning 11 night novorapid too. Today was a bit better fasting 11. At 2pm 6 .5 but that's only because I haven't eaten only had water.it seems that's the only way to keep it low

Sorry you mentioned an Italian mobile? So I immediately thought you were from Italy ..... zzz/

nessa1970 · Oct 31, 2016

asparagusp said:
Sorry you mentioned an Italian mobile? So I immediately thought you were from Italy ..... zzz/

That'll be terrible predictive texting lol.

azure · Oct 31, 2016

nessa1970 said:
I am type 1 had gad test ... I'm just curious as to why I am running so hi when the c.peptide says normal. It says type 2 runs normal to high. So I'm just trying to work it out as information is important an gives you power to do better. But no one seems to know as yet

I can see why that's confusing you. I wonder if you also have an element of insulin resistance aswell as the Type 1? Type 1s continue to make some of their own insulin for a while, especially very soon after diagnosis. Now, presuming your C peptide test was correct, it could be that yes, you're making a fair amount of insulin at the moment, but because of insulin resistance possibly even before your Type 1 diagnosis, that insulin isn't sufficient to control your BS. That theory would also fit with what you've reported about your correction doses not working well.

If that were the case - Type 1 plus insulin resistance - you may want to ask about adding Metformin to your insulin regime.

Just a suggestion based on my non-medical knowledge and experience of Type 1.

nessa1970 · Oct 31, 2016

azure said:
I can see why that's confusing you. I wonder if you also have an element of insulin resistance aswell as the Type 1? Type 1s continue to make some of their own insulin for a while, especially very soon after diagnosis. Now, presuming your C peptide test was correct, it could be that yes, you're making a fair amount of insulin at the moment, but because of insulin resistance possibly even before your Type 1 diagnosis, that insulin isn't sufficient to control your BS. That theory would also fit with what you've reported about your correction doses not working well.

If that were the case - Type 1 plus insulin resistance - you may want to ask about adding Metformin to your insulin regime.

Just a suggestion based on my non-medical knowledge and experience of Type 1.

Yes I did read something about double diabetes. So taking the metforman would help take away the resistance? I've had 2 c peptide tests over 4 months both say the same results 340 380 in normal range. I'm thinking is that why I'm having to put up basal an corrections. Gees what a pain if that's the case

Oldvatr · Oct 31, 2016

azure said:
I can see why that's confusing you. I wonder if you also have an element of insulin resistance aswell as the Type 1? Type 1s continue to make some of their own insulin for a while, especially very soon after diagnosis. Now, presuming your C peptide test was correct, it could be that yes, you're making a fair amount of insulin at the moment, but because of insulin resistance possibly even before your Type 1 diagnosis, that insulin isn't sufficient to control your BS. That theory would also fit with what you've reported about your correction doses not working well.

If that were the case - Type 1 plus insulin resistance - you may want to ask about adding Metformin to your insulin regime.

Just a suggestion based on my non-medical knowledge and experience of Type 1.

I am a T2D and not on insulin, so I think I have reached the limit of my experience. It does seem that your bgl is running too high for comfort, and needs some stonger juju juice. I wish you better fare soon, but I cannot help you. I think your worries about being a pest at A&E are unfounded, and that a visit to them would be justified under the circumstances. As said above, you need some intervention just to stabilise your levels so you can then self medicate.

If you were on alcohol instead of insulin, I would suggest a detox session is called for.

azure · Oct 31, 2016

nessa1970 said:
Yes I did read something about double diabetes. So taking the metforman would help take away the resistance? I've had 2 c peptide tests over 4 months both say the same results 340 380 in normal range. I'm thinking is that why I'm having to put up basal an corrections. Gees what a pain if that's the case

I've never taken Metformin and I don't have insulin resistance, but some Type 1s here do take it to help with insulin resistance. There may also be other things you can do if you do have that.

Don't assume you have it - I'm no doctor - but I would definitely ask about the possibility.

nessa1970 · Oct 31, 2016

azure said:
I've never taken Metformin and I don't have insulin resistance, but some Type 1s here do take it to help with insulin resistance. There may also be other things you can do if you do have that.

Don't assume you have it - I'm no doctor - but I would definitely ask about the possibility.

Yes I will ask about it. It seems quite plausible. Tho it says a lchf diet isn't good if you have it. So I'm thinking Gees what can you eat. How can one have antibodies that destroy your insulun production yet have insulin production yet resistance.
I'm lost... I'll keep reading tho so I have questions for DN. I wonder what other tests there are for this. I was on metforman for over a year half I only stopped it 6 weeks ago actually. Mmm

azure · Oct 31, 2016

Oldvatr said:
I am a T2D and not on insulin, so I think I have reached the limit of my experience. It does seem that your bgl is running too high for comfort, and needs some stonger juju juice. I wish you better fare soon, but I cannot help you. I think your worries about being a pest at A&E are unfounded, and that a visit to them would be justified under the circumstances. As said above, you need some intervention just to stabilise your levels so you can then self medicate.

If you were on alcohol instead of insulin, I would suggest a detox session is called for.

I guess that was addressed to the OP (although you quoted me). No one on insulin should 'detox'. It's a life-preserving medication and should never be stopped unless told to do so by a medical professional. The comparison with alcohol is not accurate.

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