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Type 1'stars R Us

I only have the 100% cocoa stuff, and where I live, I need to either travel to Cardiff or get it mail order. We High Rulers of the Universe have standards, ya know I do have the ingredients to make a re-run of my chocklit ganache birthday cake though!
 
Knikki said:
and being at work I do not have anything to stick it back down with.
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Oh, go on, try some sellotape wrapped round your arm to hold it, and we can then spend the rest of a slow midweek afternoon placing bets on how long it'll take you to develop a rash...
 
Saved by the cake ingredients !! Of course standards will be stretched but when only the best is distant, the next best will have to do!!
 
Not yet had the vaccine so after your story, I'm not looking forward to it. Have you had it before?
 
kitedoc said:
Saved by the cake ingredients !! Of course standards will be stretched but when only the best is distant, the next best will have to do!!
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Gah! Except I haven’t, the last of the butter went this morning. Still, I’ve made a nice cup of chocolate and ginger tea.
 
SueJB said:
Not yet had the vaccine so after your story, I'm not looking forward to it. Have you had it before?
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Yes, and this is the first time I've had a reaction like this and I can't think it was anything else - nothing notable happened that day. A friend had his yesterday and nothing , so maybe it's just me? And @helensaramay said she had no side effect I think. I'm not someone who expects side effects either, if you see what I mean. I've since looked up the side effects and they are mild fever, so I guess that's what it was though it didn't feel mild at the time but it was only overnight.
 
kitedoc said:
Maybe @Knikki has some chocklit cake, special helicopter delivery by Prince William.
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Have a Flake , couple of Lindor chocolates and some Wedding Cake (chocolate sponge cake) left if that's any help?

Scott-C said:
Oh, go on, try some sellotape wrapped round your arm to hold it, and we can then spend the rest of a slow midweek afternoon placing bets on how long it'll take you to develop a rash...
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If I wanted my arm waxed then I might try the Sellotape but think I'll decline the "helpful" offer
 
Well my day just gets better. Got the results of my retinopathy screening only to find I have pre-proliferative retinopathy in one eye and maculopathy in both. Was just background last year... hard not to panic. I’m now aware that rapid improvement of HbA1c such as mine can cause this - but I was never told about it when I was given three months to drop it by 27 in order to “win” a Libre prescription. I had no idea this could be an issue until after I’d dropped it from 89 to 50 and read about it here. A friend of mine has just had treatment for this, got an infection, and lost an eye as a result: as I say, hard not to panic.

Can anyone allay my fears and give me something positive?
 
Mel dCP said:
Can anyone allay my fears and give me something positive?
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Tagging @Dark Horse for you, Mel, from previous posts, he has a lot of detailed technical knowledge about eye related matters.

Dark Horse, can you assist Mel with this, see her post #6008?
 
Scott-C said:
Tagging @Dark Horse for you, Mel, from previous posts, he has a lot of detailed technical knowledge about eye related matters.

Dark Horse, can you assist Mel with this, see her post #6008?
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Thanks mate. I’ve made a similar post in the Complications section too.
 
Mel dCP said:
Can anyone allay my fears and give me something positive?
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Probably not what you want but an acquaintance of mine (T1D) has had 3 lots of work done on his eyes without ill effects, if that's any help at all!
 
Knikki said:
No, not yet as it is still stuck on my arm, and being at work I do not have anything to stick it back down with.
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I tried the stickies, then about a week in knocked the miaomiao + sensor off my arm - it's just that little bit bigger. Back to micropore at nights now holding it on, not sticking to the sensor at all - I don't really need it during the day.
 

You probably know all the info on this website already http://www.diabeticretinopathy.org.uk/diabetic_maculopathy.html ; I found it helpful as it's very positive about the efficacy of current treatments for maculopathy and, to a slightly lesser extent, retinopathy, though both are far better than when I was first diagnosed T1. Hope it helps and sending hugs
 
Flu vaccine, I'm going to have to remember to do that. I forgot last year, because I had a problem with my asthma, and couldn't do it while that was going on, and then by the time it was over I just never got round to it.

So I must get it organised this year.
 

Sending positive vibes!
 
Greetings my pancreatically challenged chums; I hope that you are all doing well.

Sorry not been on much recently but was away in Outer Hebrides helping my cousin move home and had no interweb connection. Well my break was one that I will not forget in a hurry. For the first time in about 12 years had a hypo, a proper one.

I had a busy day moving furniture etc had my dinner late around 8pm and about 11pm before going to bed checked bloods. OOOps it was 18.1. I need to take a correction dose and took 10 units which would normally bring my down by 10 points or so. Of course I had perhaps not taken into consideration that my insulin taken around 8 pm would still be on board.

Around 2.30 I woke up not feeling right, a quick Libre scan and all it said was LO, which I believe is actually off the scale, probably 2 or below. Grabbed a can of full sugar coke downed that and had a couple of biscuits. My sister in law who was with me in another bedroom heard me banging about and thought I was coming through the wall. She went to get my cousin who luckily enough is a paramedic on the island. I was conscious but had the glazed over look. They gave me toast and honey, some more coke, a few more biscuits and I was then talking with them. They checked my Libre which was now at 2.3 some 20 minutes later.

With all that sugar I am not feeling too good and say I am going to be sick and boy was I sick everywhere. No matter what they gave me by bloods would not go above 2.4, so they decided to call the ambulance. My blood pressure had dropped from a usual 140/95 to around 120/55, but ECG was OK and after a further 30 minutes I was back to normal laughing a joking about it all.

Except i am not back to normal, for next few days they were on eggshells around me and I can fully understand why. I was terrified of letting my BG drop low so for next few days it was constantly high. I was taking less insulin to ensure it stayed high usually around 12 or so. Checking my Libre every 30 minutes or so

All the confidence I had built up over the years has now gone. With my Libre I would be happy with my BG at 4 and below, not to panic, just take a few jelly beans etc and watch BG come up gradually. Now i just want to grab a cuppa with 10 sugars and 4 biscuits and worry about the high BG later

Back home now and luckily enough I am now back in my own routine and BG overnight was **** near perfect with little movement.

How have you guys coped after a bad hypo (is there such a thing as good hypo!!!) and how do you regain confidence
 
Libre LO isn't as low as my fingerprick reader reads LO. I think I've seen 1.something small on the fingerprick reader.

For me, hypos come in various flavours :

Below 4, but basically fine. Eat something, not necessarily super-fast (depending what I'm doing), it'll come back, can take a while if walking (had to stop once earlier this year), but not really a problem.
Low 2s, starting to crash. Eat fast stuff. In previous times this would be the sitting by the fridge gorging, and sugars would shoot up afterwards - now I've got my little packets of jelly babies, that's less likely to happen.
There's the quite hypo but still walking stage - eg once I managed to get lost in my own garden, I couldn't remember which way back to the house. Fortunately worked it out, ate and recovered.
Then there's tongue biting - fitting, brain has stopped working (not recording any memories). At that point my wife normally injects me with glucagon, because it typically happens while I'm asleep. This has happened too many times, hence the alarm being quite so welcome for me.

Of these, for the first two the worst I get is overcorrection, and having to take care of the subsequent high, without see-sawing.
It can take a bit of time (10-20 minutes) to recover from the third, but again nothing horrible long term.
The fourth hurts for a couple of days - woozy brain for a bit, painful tongue for longer. I don't like that.

I did nearly die a couple of years ago though :-( My only proper "while awake" hypo - and I was by a stream. 5yo ran off, got his parents, who pulled me out of the water - I was face down in it. Fortunately no water problems resulted, just hypo. (and massively sick in the ambulance as we made our way down lots of twisty roads, which probably wasn't necessary but I'm not really in a position to argue if I've just woken up.)

Regarding confidence - I wonder if it's because I've had quite a few fits that I don't really let them shake my confidence too much. I'm also a fairly low-emotion person - things don't worry me. And if I've not fitted, I've always come back fine. Though last summer it was getting a bit silly, and I was running higher overnight as a result. The alarm has changed that - I'm being quite a lot more confident about doing corrections before going to bed.

My wife is the one who suffers the confidence thing more. She's the one who gets to inject me with glucagon and see the mess I'm in. She'll be pushing me to eat more. The only thing I can do long term to make this better though is work on keeping in range - and again, knowing the alarm is there is helping her a lot.
 
Thanks Clive for your thoughts, really appreciated. OMG I do the biting tongue as well and in the past it has literally been in shreds. Having the Libre had given me the confidence to take lows of between 3 and 4 much calmer, not stuff my face with **** sugars and I had been doing really well for past 3/4 months .

Now I am thinking back constantly to what I put others through last week and completley over compensating by taking less insulin and therefore running high. I do not wish to put anyone, myself included through a bad hypo experience.

I just need to get over the fear
 

I'm not sure if pharmacies offer it here.

I had a look in the doctors the other day, as they usually have leaflets everywhere about it, I didn't see a thing, so looks like it's off to a slow start.

Oh dear oh dear oh dear, I hope it all starts soon, or I'll try and brazen it out again, which is a bad idea, as my luck is going to run out soon.
 
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