I have been treated as a Type 2 since diagnosis as they said I was overweight and over 40 despite only having a bmi of 24I'm not completely sure as to what type I am. I've had some testing (C-pept. and anti-GAD) and they were inconclusive. My internist and I chose to not do further testing and go with the assumption I'm T1. Before I had those tests, I had been treated like a T1 for almost 2 years, just like you, so nothing really changed.
I see both my internist and my DN once a year, as I requested.
Losing weight on insulin apparently is very hard. I eat a lot less than before, and healthier choices too, but have gained a couple of kilo's since starting insulin. Looks pretty stable now, and although not happy about my bmi of 36 or so, I prefer healthy blood sugars over healthy weight.
Mine too.
Can you ask to be seen by an endo? I'm not sure what the problem with your HCP's is and why you can't see someone else.
Hope things'll get better for you in the near future!
Ah, different interpretation of the word treatmentI have been treated as a Type 2 since diagnosis
ok Thats interesting-I had never heard that before!Helen already explained the honeymoon period, and better than I possibly could, so I'll leave that at that. But from the sound of it you're being treated with insulin as if you are a T1. Far as I know that means you should have a diabetic team and regular tests and check ups. If you're not getting those, I do believe it is time to, as Rachox suggested, file a complaint, and get a second opinion elsewhere. While a T2 diagnosis gets a lot of stuff taken care of, the care for a confirmed T1 is of, in my opinion, more vital importance, because things can go awry very fast. And while for a T1 white and brown carbs matter (splitting doses for instance due to lower GI and such), for a T2 a carb is a carb, white or brown doesn't matter, they're "equally evil". Just thought I'd mention it.
The main reason I'm worrying about getting a correct diagnosis is family.Ah, different interpretation of the word treatment
Both our medical treatments (a basal/bolus insulin regime) is typical treatment for T1, and not T2, which is what I meant. My GP nurse, who handled my diabetes, was of the belief I was T2 for the first 2 years after diagnosis. It didn't matter very much to me what she believed, as long as my treatment worked to get my blood sugar down.
I think something's wrong if your HCP's have a different attidude to T1's than to T2's...so it appears I am being treated with Type 1 medication and dosing even though my treatment ( physical and attitude!)
Unfortunately the hospital is the same in our area for clinics and everything elseHave you tried contacting the hospital where you were first diagnosed and where they prescribed your first insulin about this?
I think something's wrong if your HCP's have a different attidude to T1's than to T2's...
That's wrong anyway.It's the attitude that I am diabetic because I caused it (Type 2)
I got diagnosed as type 1 simply by giving a brief account of medical issues over the previous 3 months and undertaking a simple urine test.I don't want a diagnosis!
I want help in getting help!!!!!!!!!
It shouldn't make any difference what my numbers are to the basic question which was HOW DID OTHER PEOPLE GET THEIR TYPE AT DIAGNOSIS?????
I'm glad it was that easy for youI got diagnosed as type 1 simply by giving a brief account of medical issues over the previous 3 months and undertaking a simple urine test.
Well I'm sorry but I don't consider over £200 and a round trip of nearly 5 hrs plus the appointment time to be "competitive" on ESA when it only costs the NHS £36 or so I have been told- which I offered to pay!@Kerri5981 - I've often commented that many are type categorised by best guess. The best guess is sometimes driven by one or more of the following: age, stature, symptoms near diagnosis and the progression (positively or negatively) after the initial diagnosis.
I'm not saying you shouldn't be asking for a definitive diagnosis. How could I? However, I'm wondering what it is you feel you will achieve by a new classification. And finally, what you would feel if you were confirmed as T2?
It is my diagnosis so surely I should have the right to know?
In terms of the NHS testing you; that seems a lottery, but there are a number of private labs now doing bloods at often competitive costs.
Yeah that was the easy part. Became a bit more challenging after that.I'm glad it was that easy for you
Well I'm sorry but I don't consider over £200 and a round trip of nearly 5 hrs plus the appointment time to be "competitive" on ESA when it only costs the NHS £36 or so I have been told- which I offered to pay!
Really, I am not trying to be rude, but I have my reasons for wanting to know and what should it matter what they are?
I just wanted some advice from people with the same disease, not to have my life history dragged through or my motives questioned!!
I joined this "community" in the first couple of days after my diagnosis and this is the first time I have been back in over 2 years and I am beginning to remember why!
|All I asked was two simple questions but either people don't read or are being deliberately obtuse!@Kerri5981 you may not be trying to appear rude but you do come across that way. People are here trying to help you and you keep snapping back at them. You initially didn’t give a lot of info only adding it in various posts along the thread. We can’t say much on little info.
We get that diabetes care can be patchy and leave plenty to be desired in some places. it can leave you very frustrated. You’ve been given some good advice about how to seek to remedy that. We don’t need to know all your personal history but some of the questions you are uncomfortable with answering have relevance to the answers and advice given. If you don’t want to say something that of course don’t but please don’t snap at those trying to help. We’re not being nosy. We want to help. A lot of the questions are things to consider to help you, not us. We would like to be your support that you say you lack in real life. Let us.
As far as tests go a lot of private hospitals will do some testing, there is usually at least one in most major cities if not more frequently. Unless you really are in a very remote area perhaps there may be others you haven’t found yet. Online clinics are the other options, though you may still have to find somewhere to get the blood drawn and then send it off.
Or you if after reading other peoples experiences you still feel the need to a definite answer (if it’s possible) then I totally understand this and in your shoes would be asking for. A second opinion and an explanation of their rationale in their decision of type. You don’t seem to have been given much information but your caregivers, eg test results and explanation. At the very least you should get these and that alone might reassure you of the choices that have been made so far.
I hope you find your answers
All I want to know is how other people received their Type when diagnosed- what is so particular about that?All I'm tying to do is understand your motivators, or fears, in case there should be another angle to your approaching your medical team.
Type 1 is an auto-immune condition, although not all T1 test positive for antibodies. Do you have any other autoimmune conditions, like autoimmune thyroiditis, rheumatoid (as opposed to osteo) arthritis, coeliac diseaase or lupus, as examples?
That's the sort of thing that can strengthen a case for testing, or a strong family history. Have you ever been referred to an Endochrinologist?
It's not my place to judge you, or anyone else for that matter, but you are looking for some fairly focused help, and folks are actually trying to deliver that.
finally someone who seems to get where I'm coming from instead of going off down a million different routesYeah that was the easy part. Became a bit more challenging after that.
As a side issue I will add something I've raised before that viruses can also result in beta cell death with exactly the same outcome and treatment. Whether it's called T1 or yet another type is up to the 'experts' but it's not T2 and I think it makes sense to include that cause for T1.All I'm tying to do is understand your motivators, or fears, in case there should be another angle to your approaching your medical team.
Type 1 is an auto-immune condition, although not all T1 test positive for antibodies. Do you have any other autoimmune conditions, like autoimmune thyroiditis, rheumatoid (as opposed to osteo) arthritis, coeliac diseaase or lupus, as examples?
That's the sort of thing that can strengthen a case for testing, or a strong family history. Have you ever been referred to an Endochrinologist?
It's not my place to judge you, or anyone else for that matter, but you are looking for some fairly focused help, and folks are actually trying to deliver that.
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