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Underactive thyroid - how difficult is this to diagnose?
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<blockquote data-quote="DCUKMod" data-source="post: 2254019" data-attributes="member: 345386"><p>Peppergirl - Having had a good review of my own thyroid bloods this morning (coincidentally, I have a review on Friday, so it needed to be done anyway), I notice, in this area, our assay range for Thyroid Peroxidase is <60, so really very different to yours? I wonder if it could be worthwhile having a look to check, just before reaching too many conclusions.</p><p></p><p>Of course, even at <60, your 66 is still out of range, but modestly so.</p><p></p><p>In terms of time frames, here is an image of my thyroid bloods for the period of proper scrutiny. I use proper scrutiny becuase it took a long time to even get to testing for me. My major symptom was (and is) temperature regulation. I could be in mid 30s centrigrade and need a cardi or fleece, which is quite a stretch from "normal", but for a long time, the medics' arguments were that was due to me spending a lot of time in the Tropics, and losing weight. I went to the extent of pausing travelling for a year (which was a real, reall challenge for me) to disprove that particular hypothesis.</p><p></p><p>I've routinely filled the cells on all my blood tests for where I am on ranges, for quick reviews. The blue cells indicate firstly where my GP granted me a trial of Levothyroxine, but under NHS guidelines could not diagnose me as hypothyroid. The second blue cell is when the Endo granted me a trial of T3, and eventually based on all factors, formally diagnosed me as hypothyroid. </p><p></p><p>It's bee n quite a trip, to be honest. Very frustrating at times, and just miserable at others.</p><p></p><p>So, do keep on at your GP for regular testing. Looking back, I'd now have wanted testing every 2 months, to track the direction of travel. Once on Levo, I had bloods roughly every 6 weeks for titration purposed. On T4, doses can realistically shouldn't be changed any more frequently than 6-8 weeks. </p><p></p><p>I do hope, with your history of auto-immune conditions, you will manage to trigger better help more quickly than I did, but whatever you do, don't give up..</p><p></p><p>[ATTACH=full]40754[/ATTACH]</p><p></p><p>(Oh, the light blue shaded column are tests done overseas.)</p><p></p><p>(oh, oh,.......... and finally, before I bore you rigid; there is a survey used in certain quarters - the SF-36 Questionnaire, which is used to track health, symptoms, mental position etc. I wish I had found this prior to having to fill it in. I have one to complete prior to my next appointment.</p><p></p><p>If you can't find it online, I could probably post a blank copy of it on here.)</p></blockquote><p></p>
[QUOTE="DCUKMod, post: 2254019, member: 345386"] Peppergirl - Having had a good review of my own thyroid bloods this morning (coincidentally, I have a review on Friday, so it needed to be done anyway), I notice, in this area, our assay range for Thyroid Peroxidase is <60, so really very different to yours? I wonder if it could be worthwhile having a look to check, just before reaching too many conclusions. Of course, even at <60, your 66 is still out of range, but modestly so. In terms of time frames, here is an image of my thyroid bloods for the period of proper scrutiny. I use proper scrutiny becuase it took a long time to even get to testing for me. My major symptom was (and is) temperature regulation. I could be in mid 30s centrigrade and need a cardi or fleece, which is quite a stretch from "normal", but for a long time, the medics' arguments were that was due to me spending a lot of time in the Tropics, and losing weight. I went to the extent of pausing travelling for a year (which was a real, reall challenge for me) to disprove that particular hypothesis. I've routinely filled the cells on all my blood tests for where I am on ranges, for quick reviews. The blue cells indicate firstly where my GP granted me a trial of Levothyroxine, but under NHS guidelines could not diagnose me as hypothyroid. The second blue cell is when the Endo granted me a trial of T3, and eventually based on all factors, formally diagnosed me as hypothyroid. It's bee n quite a trip, to be honest. Very frustrating at times, and just miserable at others. So, do keep on at your GP for regular testing. Looking back, I'd now have wanted testing every 2 months, to track the direction of travel. Once on Levo, I had bloods roughly every 6 weeks for titration purposed. On T4, doses can realistically shouldn't be changed any more frequently than 6-8 weeks. I do hope, with your history of auto-immune conditions, you will manage to trigger better help more quickly than I did, but whatever you do, don't give up.. [ATTACH=full]40754[/ATTACH] (Oh, the light blue shaded column are tests done overseas.) (oh, oh,.......... and finally, before I bore you rigid; there is a survey used in certain quarters - the SF-36 Questionnaire, which is used to track health, symptoms, mental position etc. I wish I had found this prior to having to fill it in. I have one to complete prior to my next appointment. If you can't find it online, I could probably post a blank copy of it on here.) [/QUOTE]
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