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Type 1 Diabetes
Undiagnosed T1 - advice needed!
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<blockquote data-quote="EllieM" data-source="post: 2514536" data-attributes="member: 372717"><p>HI [USER=193504]@ClaireH88[/USER] </p><p></p><p>I am a little shocked that they didn't do the T1 diagnostic tests if you were diagnosed aged 24, as relative young age is a red flag for it. However, you know have the diagnosis, and you can be sure you are not alone. Apparently half of T1s who receive a diagnosis as an adult are initially misdiagnosed as T2 (in UK). You may find the LADA/T1.5 forum useful as well as the T1 one.</p><p><a href="https://www.diabetes.co.uk/forum/category/type-1-5-lada-diabetes.41/" target="_blank">Type 1.5/LADA Diabetes | Diabetes Forum • The Global Diabetes Community</a></p><p></p><p>From personal experience (left UK in 1999 so had 30 years of T1 there) most GPs don't know much about T1. Mine were always happy to leave my T1 treatment to the diabetic specialists at the hospital. I second [USER=527103]@In Response[/USER] and [USER=88961]@AndBreathe[/USER] in asking for a specialist referral. </p><p></p><p>Good luck, and don't forget to ask for a cgm or flash reader as well, as apparently all T1s now qualify in the UK.</p><p></p><p>ps I have some T2 tendencies (T2 father) and find that lowish carb keeps my weight from increasing, though I haven't had a lot of success in reducing more than a couple of kg.</p></blockquote><p></p>
[QUOTE="EllieM, post: 2514536, member: 372717"] HI [USER=193504]@ClaireH88[/USER] I am a little shocked that they didn't do the T1 diagnostic tests if you were diagnosed aged 24, as relative young age is a red flag for it. However, you know have the diagnosis, and you can be sure you are not alone. Apparently half of T1s who receive a diagnosis as an adult are initially misdiagnosed as T2 (in UK). You may find the LADA/T1.5 forum useful as well as the T1 one. [URL='https://www.diabetes.co.uk/forum/category/type-1-5-lada-diabetes.41/']Type 1.5/LADA Diabetes | Diabetes Forum • The Global Diabetes Community[/URL] From personal experience (left UK in 1999 so had 30 years of T1 there) most GPs don't know much about T1. Mine were always happy to leave my T1 treatment to the diabetic specialists at the hospital. I second [USER=527103]@In Response[/USER] and [USER=88961]@AndBreathe[/USER] in asking for a specialist referral. Good luck, and don't forget to ask for a cgm or flash reader as well, as apparently all T1s now qualify in the UK. ps I have some T2 tendencies (T2 father) and find that lowish carb keeps my weight from increasing, though I haven't had a lot of success in reducing more than a couple of kg. [/QUOTE]
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