Hi and welcome!
I am very sorry that you are having to go through this, and I sincerely hope that things get stabilised enough to get home asap.
I will have to phrase the following very carefully
because firstly, I am not in a position to ‘diagnose’ (none of us here are), and secondly, it sounds like you have a lot going on healthwise, and only you and your medical team can see the whole picture.
So how about I explain what happens to me, and what would happen to me in your situation, and then you make up your own mind whether it is ringing any bells...
Ever heard of something called Reactive Hypoglycaemia?
It is a condition where, if someone eats a lot of carbs (for example a glucose filled liquid meal via a PEG) their body thinks ‘oooh, lots of carbs! Don’t want blood glucose to get too high. Will pump out lots of insulin’ which removes the glucose from the blood and tucks it away into storage in the body’s cells.
Obviously this is a good thing, a
normal thing, and it keeps blood glucose nicely regulated.
However, for people with RH, the body (for whatever reason) misjudges how much insulin to produce, and ends up pumping out extra. The result (predictably) is that too much blood glucose is removed from the blood and the person goes hypo.
Now, for me, and most RHers, the solution is fairly simple: don’t eat the carbs in the first place, so you don’t trigger a big insulin release, and then you don’t go hypo...
There are a few other tips and tricks that come in useful, such as eating fat and fibre alongside a small portion of carbs. The fat and fibre slow the digestion and reduce the speed of the glucose and insulin arriving, and therefore slows the rate of that the glucose level plummets - which slows, or reduces, or prevents, the resulting hypo.
For me, with RH, being put on a glucose drip would be a bad thing. I would get glucose constantly being added to my bloodstream, my body would therefore constantly react by releasing (excess) insulin, which would push my blood glucose down, and voila! Hypo. Either constant hypo, or a series of endlessly recurring hypos.
I actually have a Medicalert bracelet with
reactive hypoglycaemic, do not treat hypos with glucose on it, because I have a real concern that one day I could find myself unconscious in a hospital with some helpful doc hooking me up to a drip, and me unable to stop them.
Right, this is where I get to speculate (carefully
):
What if you, with your stressed out ill body is just having to deal with too much? The PEG, hospital carby food, the stress of being stuck there, the sepsis, the antibiotics...
And
what if the endless glucose drip and the PEG liquid meals are simply overloading your poor body’s capacity to regulate its insulin and you are hypoing due to excess insulin driving your blood glucose down.
I am probably not explaining this very well, so will provide a few links about RH.
https://www.diabetes.co.uk/reactive-hypoglycemia.html
https://en.wikipedia.org/wiki/Reactive_hypoglycemia
https://www.ncbi.nlm.nih.gov/pubmed/2645126
Obviously, it is entirely up to you whether anything I have written rings any bells.
if it does, then I suggest spending some quality Google time researching
Reactive Hypoglycaemia
Idiopathic Reactive Hypoglycaemia
And also
Dumping Syndrome
The usual medical advice for RHers is to eat wholegrain carbs every 3 hours to drip feed glucose and keep the hypos at bay.
Unfortunately, drip feeding carbs just causes me hypos (or one long endless hypo) for the reasons given above, whether the carbs are wholegrain shredded wheat or glucose tabs. So instead I remove carbs from my diet and feel great. No carbs => no excess insulin => no hypos.
A basic ketogenic diet, v low in carbs, with plenty of meat, fish, eggs, cheese, cream, green veg, works well.
Not sure how you would manage to do that, in hospital, on a drip.