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Type 1 Diabetes
Unsure how to calculate insulin dosage? Results seem random.
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<blockquote data-quote="UK T1" data-source="post: 2362489" data-attributes="member: 503751"><p>To add to this, I was told a sudden change in blood glucose could damage them too. This is why I was told to gradually lower my glucose levels when I was initially diagnosed (DKA and so as you can imagine very high levels for a while pre diagnosis!) They gave me fortnightly targets for lowering blood glucose rather than going straight down.</p><p></p><p>Sorry to hear things haven't been smooth. If there is still insulin being produced that would explain a lot. It certainly doesn't have to be like this for ever! </p><p></p><p>A few things I've experienced which might add to the things to discuss with your DSN... I used to be fine on one basal insulin injection a day, but gradually found I needed to split it. I've then found the split ratio has drastically changed. Used to need more over night than in the morning, now I need only 5U in the evening but 15U in the morning. The Libre helped clarify these needs for me. If I change doses I usually tweak by 0.5 units or 1 unit at a time. Having the larger morning dose means I can adjust based on the activity I know I'm doing that day more flexibly without worrying about night hypos.</p><p></p><p>I also find a huge difference in when I need to prebolus based on the exercise already done that day. So because I'm more sedentary over night I need to prebolus for breakfast earlier than I do for lunch/dinner. But if I have just been at the desk in lockdown then I also need a longer prebolus time for lunch. Of course this doesn't explain 'incorrect' dose just timing of dose.</p><p></p><p>Not answers, but hopefully helpful things to think about/discuss with your DSN. Good luck, it won't always be this hard to stay stable but we all have more difficult periods.</p></blockquote><p></p>
[QUOTE="UK T1, post: 2362489, member: 503751"] To add to this, I was told a sudden change in blood glucose could damage them too. This is why I was told to gradually lower my glucose levels when I was initially diagnosed (DKA and so as you can imagine very high levels for a while pre diagnosis!) They gave me fortnightly targets for lowering blood glucose rather than going straight down. Sorry to hear things haven't been smooth. If there is still insulin being produced that would explain a lot. It certainly doesn't have to be like this for ever! A few things I've experienced which might add to the things to discuss with your DSN... I used to be fine on one basal insulin injection a day, but gradually found I needed to split it. I've then found the split ratio has drastically changed. Used to need more over night than in the morning, now I need only 5U in the evening but 15U in the morning. The Libre helped clarify these needs for me. If I change doses I usually tweak by 0.5 units or 1 unit at a time. Having the larger morning dose means I can adjust based on the activity I know I'm doing that day more flexibly without worrying about night hypos. I also find a huge difference in when I need to prebolus based on the exercise already done that day. So because I'm more sedentary over night I need to prebolus for breakfast earlier than I do for lunch/dinner. But if I have just been at the desk in lockdown then I also need a longer prebolus time for lunch. Of course this doesn't explain 'incorrect' dose just timing of dose. Not answers, but hopefully helpful things to think about/discuss with your DSN. Good luck, it won't always be this hard to stay stable but we all have more difficult periods. [/QUOTE]
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