• Guest - w'd love to know what you think about the forum! Take the 2025 Survey »

Unsure what type am I

Indie1

Member
Messages
14
Type of diabetes
Type 1
I've been diagnosed about 2 months ago and doctors are still unsure what type I am.
I'm 28, not overweight, doctor did all types of antibodies testing (GAD, ICA and others) and all negative, C-peptide 0.18, after meal 0.54.

Right now glucose levels are 5.0-6.0, rarely go above 6.0 (I'm on LCHF diet of course) and I only take 4 units of Toujeo.

So they send me to MODY testing, but this takes about 4 months, and I think unlikely I'm MODY since they usually have normal C-peptide levels.

What type can it be?
 
Sounds like you have a good set of doctors investigating what type you are (you have had all the tests used to investigate) and, more importantly, helping you manage your blood sugar levels in excellent range.

All any one can do here is guess what type you are & it won't be a terribly worthwhile guess because we aren't medical professionals and we don't have the benefit of all the information your doctors have. I suspect that the most valuable thing you will get in response will be accounts from people who might have had similar experiences with investigations about what type you are.

However, from the stories I have read on here it sounds like you might be unusual in that your doctors are actively investigating what type you are while helping you to manage your diabetes really well.

Sometimes, it is just not possible despite all appropriate tests and taking into account a proper clinical history and presentation to determine for sure what type of diabetes you have. I appreciate it must be frustrating not being able to put a proper name to it, but, if your diabetes is well managed, all the type will be is giving it the right name. It doesn't sound like not knowing what type you are is having any adverse impact on your treatment or management so I hope it isn't causing you too much frustration.
 
Back
Top