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<blockquote data-quote="kitedoc" data-source="post: 1967654" data-attributes="member: 468714"><p>[USER=110790]@ally1[/USER], I know each set of specialists and investigations sets us up for hope and then disappointment.</p><p>But it is a bit like detective work. There will be promising 'leads' that fizzle and other ones to be found.</p><p>Tell the 'good' GP about any family history of ataxia, what mediations <em>past and present </em>you have been prescribed in case something rings a bell regarding ataxia as a side -effect , and please mention any sleep troubles and ask whether you could have Obstructive Sleep Apnoea (OSA) looked at with a sleep study.</p><p>Whilst the set-up for the sleep study is a little finicky, (you have wires attached to your head, arms and legs, chest I seem to remember) but you get to sleep through the test - not something done with most other tests !!</p><p>And if OSA is found there are things that can be done for it!!!</p><p>Having OSA myself I would not be suggesting it if I did not think it important to raise with an understanding GP.</p><p>Whether a sleep breathing problem could explain the ataxia I do not know. </p><p>But one never knows when something unexpected will happen.</p><p>Best Wishes on this arduous journey of discovery and please seek support from your psychologist as you need it.</p></blockquote><p></p>
[QUOTE="kitedoc, post: 1967654, member: 468714"] [USER=110790]@ally1[/USER], I know each set of specialists and investigations sets us up for hope and then disappointment. But it is a bit like detective work. There will be promising 'leads' that fizzle and other ones to be found. Tell the 'good' GP about any family history of ataxia, what mediations [I]past and present [/I]you have been prescribed in case something rings a bell regarding ataxia as a side -effect , and please mention any sleep troubles and ask whether you could have Obstructive Sleep Apnoea (OSA) looked at with a sleep study. Whilst the set-up for the sleep study is a little finicky, (you have wires attached to your head, arms and legs, chest I seem to remember) but you get to sleep through the test - not something done with most other tests !! And if OSA is found there are things that can be done for it!!! Having OSA myself I would not be suggesting it if I did not think it important to raise with an understanding GP. Whether a sleep breathing problem could explain the ataxia I do not know. But one never knows when something unexpected will happen. Best Wishes on this arduous journey of discovery and please seek support from your psychologist as you need it. [/QUOTE]
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