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Was this a hypo?

LoveableLass

Newbie
Messages
1
Type of diabetes
Treatment type
Tablets (oral)
Hey usually I lurk on the facebook site but decided to take the plunge and come say hi here.

I've been diagnosed with PCOS since I was 16 and until last Sept I was taking 1500mg Metformin for that. I used to get very dodgy tummys but as I lost 4 stone in 6 -12 months I was chuffed to bits so kept saying 'no pain no gain'

That is until I took I'll and was diagnosed with M.E. I piled on all the weight again and as a result of chemical sensitivities (I'm guessing) my dodgy tummys became a daily occurrence so did becoming engulfed with sweat, dizziness and eventually passing out thru sheer force of said bowel movements. I tried anti dioreah pills yet nothing helped. So the Dr took me off metformin in Sept saying they probably weren't helping anyway. He also needed to put me on bp meds which he said couldn't be on with the metformin.

Anyway since sept my bowel motions continued with force and we put it down to m.e. So did my extreme sweats, dizzyness etc

Fast forward to March this year and I won a chocolate hamper in a raffle, it arrived one Saturday along with some other items I'd ordered. After opening the box and gleefully admiring the contents, my attention then turned to the last remaining package which I'd had no idea about.

On opening I found a brand new blood glucose monitor, my kids thought this hysterical given I'd just received a truck load of chocolate, to this day I don't know who sent it but they effectively saved my life!!

As I hadn't had any breakfast I decided to test the new kit out and see what my levels were ( I'd always been told I was pre diabetic but never to the point of needing treatment) low and behold this time my levels were quite high in the region of 11.0 etc. I had a slice of toast and my bg shot up to the 16.0 range.
Obviously this kind of freaked me out a bit so I decided to not touch the chocolate but instead do some readings over the course of the week and see what was what.

All my readings were between 9.7-21.5 so with this info I went back to the dr. His response 'oops shouldn't have taken you off metformin, it was clearly masking your diabetes' after a couple weeks of trying to get blood out of me and getting the readings back I was then started back on 500mg Metformin but told I didn't need to check my levels as there was no point I'd ever get a hypo on metformin, and the reading that mattered was the hb1ac thing. He also signed me up to Desmond. (Remember this is in March time)

Since then I've been swapped to the slow release 500mg metformin as I honestly couldn't cope with the tummy issues, tbh I still can't!! I got my letter in for Desmond - September :( I honestly am stumped and not sure if I'm doing things right etc

In June I had to go up to A&E as I started weeing blood to the point my urine resembled red wine the lovely Dr there while checking my stats took a bg and freaked as the reading was 17.3 and said I should be on insulin.

He asked me why I didn't have a monitor at home, I said I did but the Dr won't give me strips and I can't afford £35 a time for strips atm, it was then that I was told I am entitled to them moreso as there was glucose in my urine as well as a high reading :/ since this hosp visit I've had two more for the same issue, they've said I had a ureter/bladder/kidney infection and put me on a 3 day course of antibiotics, when that didn't work they doubled the strength and increased to 7 days.

That's still not worked and I'm still feeling pretty mush moreso as I have m.e. I get tired n feel rubbish easily so it's hard to distinguish what's what illness (I wish they'd rename m.e. Medical encyclopaedia because that fits better)

I was at the Dr again last week who reluctantly allowed me test strips and said I should only test a couple times a week though I have been doing it a tad more as all the Google advice say to keep a food diary and test to find out the foods that affect you (so far white bread and haribo, oh and don't forget chocolate which makes me super sleepy) he also said he's now chasing up an urgent cystoscope apt to see why I'm still weeing blood etc but given my bg he's doubled the SR. Metformin now meaning I get more bowel motions again as well and said no more antibiotics as that's not good for diabetes patients

Why is that?

Since the apt I've rested only getting out of bed today as I had some much needed visitors. I've not felt hungry and I am forcing meals into myself however the past few nights it's literally been 50/50 toast or rolls as that tends to stay put longer. (Hoping to wean myself into wholemeal but it actually makes me boke) Yet my bg was between 8.5 - 14.7 last week then last night and the night before it went between 7.4-12.4

So I can see a marked difference in readings and I am trying to watch what I'm eating. Today I had my usual slice of toast, then I had home made veg soup with a slice of bread around 2pm, plenty fluids in between, yet all day the sweats have been shocking, I've had my fan on an off more times than Ever even though kids and stepmum said it wasn't hot! 6pm came and I really wasn't hungry, my stepmum left, I got up to go to the loo and a wash of dizzyness, shakiness and sweats came over me, my daughter said I went white and started talking funny. I knew I felt odd so thought I'd check my bg to my shock my lowest EVER reading 5.6 I'd read about hypos and hypers but as I'd never had a hypo I don't know if this was my body taking one given I've had very high readings for so long then boom all of a sudden a normalish one or whether it was sheer coincidence. Moreso as I asked my son to go get me some wine gums, I ate 4, guzzled some juice and within 10 minutes I felt totally fine albeit still sweating like you wouldn't believe. Tested my bg and it was 7.4

Realising that I really needed to eat I made myself some fish and a few chips though the chips got left.

As the Diabetes course is still a few months away I am struggling to come to terms with everything, I honestly don't have the energy to trawl the Internet to get a grips on what I should and shouldn't do and when I do have energy reading info makes my head hurt and confused :/ moreso as I've that many blooming conditions it's hard to work out which ones causing which symptoms etc

So could my recent reading be my body's signs of a hypo given years of high readings?
How often should I be testing?
Is there a menu plan for picky eaters that I might be able to follow? Given everything I like is now bad for me
Oh and can diabetes cause Urinary problems?

Sorry I know it's a long post but figured u needed the background info before the random question. Please don't give me a roasting for skipping meals, my stepmum does that enough atm and I am trying to eat regularly (plus awaiting for a carer who will help regulate meals and meds etc) but my m.e often means I am in bed most days and unable to make meals for myself.

Hope this makes sense and you understand it.
Lee xx
 
Hi and welcome to the forum.

You certainly seem to have a lot of health issues going on. I'm tagging @daisy1 who will be along later to give you introductory information.

It seems you have very little knowledge of diabetes, so my first suggestion is that you start reading at the site Blood Sugar 101:
http://www.phlaunt.com/diabetes/14045524.php

The information is also available in book form/kindle form and well worth reading to come to grips with diabetes.

The 5.6 reading is nowhere near hypo territory, but it is common for people who have been running high levels to feel bad if their BG drops into normal levels. It's known as a "false hypo" - you really don't need to make any adjustments unless your BG gets to under 4.0. Even a normal fasting levels is anywhere between 3.5 and 5.5.

The kind of foods you're eating - bread in particular - are notorious for spiking blood glucose very high, so my first suggestion is to cut your carbohydrate intake to 100g per day or less.

Your doctor sounds less than helpful, so it might be worth while looking into finding a new one ;)
 
Just thought of something to add - I've never head of antibiotics being bad for diabetics, so I have real doubts about your doctor, to be honest. I'd try and see the doctor who gave you the antibiotics originally.
 
As stated above try a nd reduce your carbs to under 100gr a day at least. Search for low carb recipes on Google and Pinterest, there is literally a low carb alternative for almost everything. It does take a while to adjust but it is well worth it .
 
@LoveableLass

Hello and welcome to the forum :)

Here is the information we give to new members and I hope you will find it useful, in addition to the good advice above. Ask more questions and someone will be able to help.

BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you’ll find over 150,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.
There are two approaches to controlling your carbs:

  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates

Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

Another option is to replace ‘white carbohydrates’ (such as white bread, white rice, white flour etc) with whole grain varieties. The idea behind having whole grain varieties is that the carbohydrates get broken down slower than the white varieties –and these are said to have a lower glycaemic index.
http://www.diabetes.co.uk/food/diabetes-and-whole-grains.html

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to bloodglucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic

Note: This post has been edited from Sue/Ken's post to include up to date information.
 
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