@Lamont D thanks for your reply.
Yes, I did think the 1.5 was quite low. That was after 2 hours however after 5 hours my blood sugar began to naturally correct itself.
I have no complaints with my endocrinologist. She has treated me like a pun cushion and done loads of different tests, most of which I won't pretend to understand.
My GP served it's purpose by quickly referring me to endo and I've since had zero interaction with them regards my RH. I keep well otherwise and to be fair it's quite an acute and rear thing from what I've heard and read so don't really expect loads of knowledge from them.
The 72hr fast was a bit meh...if you know what I mean. Obviously hungry bot no crazy lows as far as I remember. It did however as far as my endo is concerned, rule out an Insulinoma which I suppose was the purpose.
In terms of dietary advice I've been advised less than 30g carbs per meal. Nothing further really though also suggested I try pectin. That's why I've considered the injections. As I understand it, Pectin slows the release of sugar into the blood stream and prevents large spikes which in theory stops big drops/ hypos. I thought Mounjaro/ Wegovy could possibly mimic this with the added bonus of weight loss/ ginger receptors being toned down a little!
I am content with my RH. It's manageable and there are people worse off than I. Just need to keep working on myself (manage weight and diet etc). Small inconveniences like medical three year driving license/ loss of blue light driving but I can deal with these.
Thanks for your reply. Any further insights would be appreciated.
Cheers
I respect your attitude and the exceptance of the condition.
I find your posts quite reasonable.
You have mentioned symptoms. And with uncontrolled hyperglycaemia and hypoglycaemia, in my experience the symptoms were dreadful. I called the period before diagnosis, my hypo hell.
The fasting test for me completely changed my attitude towards my health, I didn't have any points of reference, only one person on the forum really helped me. Even my endocrinologist though supportive, didn't know how serious the condition was for me. And didn't realise the effect that the text books, couldn't understand.
My intolerance to certain foods, namely carbs and sugars. Is near absolute.
I I understand that yours is not.
At 30g I wou!d spike very quickly, from normal levels to somewhere between 8-10 mmols. Within 45minutes.
This is because my first phase hormonal/insulin response is very weak. My response to this, is called an overshoot of insulin from my pancreas, this it was drives the BG levels down towards hypoglycaemia.
In someone with similar issues, the liver counteracts the excess insulin by glucogenisis (liver dump), this should prevent hypoglycaemia but doesn't because there is too much Insulin.
You are correct that lowering the spike, so that, 'the reactive' part isn't as bad, so that the hypoglycaemia will be less likely. Does not really work. As a treatment.
The reason is, unless you keep your BG levels relative to normal levels, the reaction will still happen. Over a certain level of mmols. For me it is around 7mmols for my BG levels. And I still go hypo.
I have been initially for around three years on sitagliptin which is a diabetic drug that helps with first phase.
But I found that even though the spike was lowered, I still had a hypo.
The only treatment was lowering my carb intake enough not to trigger the reaction. And the drug became superfluous.
I am not on any diabetic drugs now.
Just dietary control, as low carb as possible.
Stopped the hypos, stopped the reaction.
This is what the fasting test showed me.
I don't know really why, but my body is intolerant from young, lactose intolerant, then into my fiftys, everything followed.
I use fasting and intermittent fasting to assist with my tailored dietary requirements. For me, getting that balance right, is more important than anything any dietician etc will recommend.
I say this because, before diagnosis, I was told to eat the eat well plate by every doctor, dsn and an endocrinologist I saw back then, who didn't have a clue. And I kept putting weight on.
I was before diagnosis, close to 19 stone. And according to the endocrinologist that worked it out, that if I had continued with that diet, I would be seriously ill with organ failure, because my organs couldn't maintain the overload of my liver and pancreas, and with the constant hypos, I certainly would not be here now.
RH is a food related condition. It is a metabolic condition. There is no magic pill, no cure.
Just control.
Just beware about your driving licence. I was told to not drive, if there was any chance of going hypo. And if I now travel, I don't drive, I fast, then I know I'm not going to go hypo.
There is different rules concerning T1s and metabolic conditions such as 2 on insulin, because you should test before driving, and should not be lower than 5mmols(?) I'm not sure but it should not be in hypo levels.
I also stop eating around 7pm, so I know I won't go to bed hypo.
Keep asking.