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What am I?

DBolding

Active Member
Messages
35
Location
High Wycombe
Type of diabetes
Type 1
Treatment type
Insulin
Hi I'm looking for your opinion as the Doctors and nurses I see seem to be erm well actually I won't even go there!!

I was diagnosed with diabetes about 9 years ago and placed on insulin virtually straight away. I also take Metrormin with it.

No one seems to be able to give me a diagnosis of my type of diabetes. Well that's not true, depending which doctor or dsn I see it goes from T1 to T1.5 to T2 to just weird.

I was given a GAD and a C Peptide test to try to work it out. The GAD came back positive (only just apparently) and the cpep came back stating I produce 3 times the amount of insulin of a normal person.

I am not insulin resistant. My Levemir is 8 units AM 10PM. Novorapid AM 1u to 10g and PM 1u to 8g which works fine.

So if i produce so much insulin why am I needing extra? Oh I can also and have a couple of times gone into DKA which was fun! Not lol

Any suggestions?

Thanks.
 
@DBolding Can you just confirm your insulin doses as your profile and signature have different amounts to what you've said?
 
Omg what I wrote here is correct!! Wow I have no idea how to change my profile wow that is so wrong lol
 
Hi @DBolding ..
If you hover over your Username at the top right of each page, then click on Personal Details to fill in your profile and/or Signature to edit / update your meds info
Hope this helps
 
If you're gad positive, you're type 1. If you went on insulin straight away, you're not type 1.5

You're insulin doses seem pretty standard for a type 1. 1:10 is the starting point they use to try and work out your insulin to carb ratio. They don't seem particularly low doses to suggest any special insulin sensitivity. Your standard-ish doses could be being facilitated by the metformin, which is usually prescribed for insulin resistance and stops the liver giving out so much glucose, so if you stopped metformin your ratios might need to increase.

If you're cpeptide test was done just after diagnosis it's normal for a type 1 to honeymoon and still be producing insulin. The honeymoon can result in rather erratic pancreatic functioning, if you had eaten something particularly carby that might cause production of more insulin than normal. The cpeptide test is just a snap shot of what's being produced when they test - if you're taking a fairly standard type 1 total daily dose, you're not having lots of hypos, you've been in dka more than once it's unlikely you are currently producing "so much insulin" or indeed, any.
 
Apparently being gad doesn't mean t1 anymore lol. I have had 2 cpep tests done. One near diagnosis and one a couple of months ago. Even the one a couple of months ago was showing massive amounts of insulin being produced more than the endo has ever seen before apparently. Which makes me wonder is there anything which can give false cpeptide results? I have some hypos nothing major tho. Maybe one a week if that. They are becoming more rare which is something I'm happy with.
 
I'm in a similar situation, I was diagnosed a year ago and ever since there has been, to quote my specialist "a debate about whether I have type 1 or 2" my initial HBac1 was almost 60 but ha now stabilised at 43, my average BM is 7.5. they carried out a cpeptide test and now think I'm T2. but they said I can stick with my 2 X 500mg metformin twice a day and 8 units of humulin. so confusing.
 
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