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Newly Diagnosed
what should i do?
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<blockquote data-quote="type2_2020" data-source="post: 2287758" data-attributes="member: 526318"><p>Spoke to her last night about it and the overwhelming support from all of you to confirm what i was thinking was where the majority would agree with and that I will write a letter to the CCG and GP. She said fine, and left it as that.</p><p></p><p>I was under a different unit last year when I started taking drugs for my mental illness and that hospital did every test and told me everything is fine not bother about anything. They should have been honest with me but they weren't. My GP was sent all the results and never said anything, even though he saw me straight after the tests for cysts that kept coming up. These cysts were clots and full of inflammation and puss, with the pain of a boil. Would happen all over my body. So I knew something was wrong I just didn't know what it was.</p><p><a href="https://www.aad.org/public/diseases/a-z/diabetes-warning-signs" target="_blank">https://www.aad.org/public/diseases/a-z/diabetes-warning-signs</a></p><p></p><p>So for an entire year I have been symptom free from my mental issues and doing well, fully recovered, dealt with it by working hard and putting in the hours and skill I have. Then the DKA.</p><p></p><p>Later I found out that those cysts were actually because my sugar levels were too high. I've not had any since coming out of hospital. So yeah, when I get low sometimes my wife says to me to call the mental health unit, but I don't trust them at all. So I deal with my problems head on because my diabetes is all that matters to me now. GP and mental health teams knew diabetes runs in my family and I would have thought when I was on the borderline and some of the signs would have been dealt with swiftly but I guess all they were focusing on was my mental health. Which is understandable but at the same time, has lead me to have trust issues.</p><p></p><p>I'm working on the weight and sticking strictly to a low carb diet which is yielding results.</p><p></p><p>Now my GP has finally realised the error that was made, they are now doing everything under the sun to facilitate my care. Blood tests twice so far for the week. They're checking everything, cholesterol came back a bit high at 7.6 but I eat 1/2 a block of full fat cheese a day, so I've had to stop that for the next test. They've checked thyroid function, liver, kidney, the list goes on.</p><p></p><p>I use to never be able to get appointments at my GP and if I did it would be a 5 min telephone call, now I get appointments as and when. It's like they have realised the mistake that was made.</p><p></p><p>So I think a letter to reaffirm things would be suffice. So i can think positively about the future and know that something like this wouldn't happen again.</p><p></p><p>I now do always ask for test results even if I have no clue what they mean, i just type in the name of the test and look for charts or ranges to see where I am.</p><p></p><p>I do agree with my wife that this could have all been avoided. What does get to her a lot is that I almost died and she wasn't allowed to be there due to covid, so she was so stressed with it and when I finally came out of the comma, my speech was slurred and I was dizzy and confused and wasn't making any sense on the phone calls to her.</p></blockquote><p></p>
[QUOTE="type2_2020, post: 2287758, member: 526318"] Spoke to her last night about it and the overwhelming support from all of you to confirm what i was thinking was where the majority would agree with and that I will write a letter to the CCG and GP. She said fine, and left it as that. I was under a different unit last year when I started taking drugs for my mental illness and that hospital did every test and told me everything is fine not bother about anything. They should have been honest with me but they weren't. My GP was sent all the results and never said anything, even though he saw me straight after the tests for cysts that kept coming up. These cysts were clots and full of inflammation and puss, with the pain of a boil. Would happen all over my body. So I knew something was wrong I just didn't know what it was. [URL]https://www.aad.org/public/diseases/a-z/diabetes-warning-signs[/URL] So for an entire year I have been symptom free from my mental issues and doing well, fully recovered, dealt with it by working hard and putting in the hours and skill I have. Then the DKA. Later I found out that those cysts were actually because my sugar levels were too high. I've not had any since coming out of hospital. So yeah, when I get low sometimes my wife says to me to call the mental health unit, but I don't trust them at all. So I deal with my problems head on because my diabetes is all that matters to me now. GP and mental health teams knew diabetes runs in my family and I would have thought when I was on the borderline and some of the signs would have been dealt with swiftly but I guess all they were focusing on was my mental health. Which is understandable but at the same time, has lead me to have trust issues. I'm working on the weight and sticking strictly to a low carb diet which is yielding results. Now my GP has finally realised the error that was made, they are now doing everything under the sun to facilitate my care. Blood tests twice so far for the week. They're checking everything, cholesterol came back a bit high at 7.6 but I eat 1/2 a block of full fat cheese a day, so I've had to stop that for the next test. They've checked thyroid function, liver, kidney, the list goes on. I use to never be able to get appointments at my GP and if I did it would be a 5 min telephone call, now I get appointments as and when. It's like they have realised the mistake that was made. So I think a letter to reaffirm things would be suffice. So i can think positively about the future and know that something like this wouldn't happen again. I now do always ask for test results even if I have no clue what they mean, i just type in the name of the test and look for charts or ranges to see where I am. I do agree with my wife that this could have all been avoided. What does get to her a lot is that I almost died and she wasn't allowed to be there due to covid, so she was so stressed with it and when I finally came out of the comma, my speech was slurred and I was dizzy and confused and wasn't making any sense on the phone calls to her. [/QUOTE]
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