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Why should we subjected to a postcode lottery to receive the right pump?!?!
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<blockquote data-quote="JCW2011" data-source="post: 1580441" data-attributes="member: 425460"><p>I was on the Omnipod for four years and it was faultless. Unfortunately my borough doesn't support it so I was forced to choose another patch pump being the Cellnovo (the only other patch pump currently available in the UK). I had issues with it from the start and on a daily basis!.....and lets not talk about all the additional paraphernalia required for this ineffective pump! The final straw was day two of my holiday in Sept....the pump stopped and I went into DKA!!!!! It's unforgiveable that the NHS is supplying dangerous pumps. The feedback for the Cellnovo on diabetic the social media sites, is appalling! So why is the NHS funding it and failing us? The cost to fund an Omnipod is marginally more but the long term prevention of Diabetic complications will save the NHS significant amounts of money. The NHS is not fulfilling its responsibilities but more importantly, following the guidelines of the NHS Constitution:</p><p></p><p>The NHS belongs to the people.</p><p>It is there to improve our health and wellbeing, supporting us to keep</p><p>mentally and physically well, to get better when we are ill and, when</p><p>we cannot fully recover, to stay as well as we can to the end of our</p><p>lives....Part of the NHS's commitment to us as patients:</p><p>You have the right to receive care</p><p>and treatment that is appropriate to</p><p>you, meets your needs and reflects</p><p>your preferences.</p><p>You have the right to make choices</p><p>about the services commissioned by</p><p>NHS bodies and to information to</p><p>support these choices. The options</p><p>available to you will develop over</p><p>time and depend on your individual</p><p>needs.</p><p></p><p>I find it unacceptable that my/our longevity of health is being dictated to by local CCG's that cannot/will not look at an individual's circumstances and provide suitable pumps that are not dangerous!</p><p></p><p>I am looking to establish if there are other diabetics out there who are frustrated with how the funding is disproportionately managed for these (Omnipod) life-saving pumps. It appears that only select boroughs provide a pump that should be available to all Type 1 Diabetics!</p><p></p><p>The point is, everyone is different but <u><strong>we should have a right to choose</strong></u>!!!</p><p></p><p>If anyone is willing to join the campaign please let me know</p></blockquote><p></p>
[QUOTE="JCW2011, post: 1580441, member: 425460"] I was on the Omnipod for four years and it was faultless. Unfortunately my borough doesn't support it so I was forced to choose another patch pump being the Cellnovo (the only other patch pump currently available in the UK). I had issues with it from the start and on a daily basis!.....and lets not talk about all the additional paraphernalia required for this ineffective pump! The final straw was day two of my holiday in Sept....the pump stopped and I went into DKA!!!!! It's unforgiveable that the NHS is supplying dangerous pumps. The feedback for the Cellnovo on diabetic the social media sites, is appalling! So why is the NHS funding it and failing us? The cost to fund an Omnipod is marginally more but the long term prevention of Diabetic complications will save the NHS significant amounts of money. The NHS is not fulfilling its responsibilities but more importantly, following the guidelines of the NHS Constitution: The NHS belongs to the people. It is there to improve our health and wellbeing, supporting us to keep mentally and physically well, to get better when we are ill and, when we cannot fully recover, to stay as well as we can to the end of our lives....Part of the NHS's commitment to us as patients: You have the right to receive care and treatment that is appropriate to you, meets your needs and reflects your preferences. You have the right to make choices about the services commissioned by NHS bodies and to information to support these choices. The options available to you will develop over time and depend on your individual needs. I find it unacceptable that my/our longevity of health is being dictated to by local CCG's that cannot/will not look at an individual's circumstances and provide suitable pumps that are not dangerous! I am looking to establish if there are other diabetics out there who are frustrated with how the funding is disproportionately managed for these (Omnipod) life-saving pumps. It appears that only select boroughs provide a pump that should be available to all Type 1 Diabetics! The point is, everyone is different but [U][B]we should have a right to choose[/B][/U]!!! If anyone is willing to join the campaign please let me know [/QUOTE]
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Why should we subjected to a postcode lottery to receive the right pump?!?!
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