- Messages
- 10,213
- Location
- New Zealand
- Type of diabetes
- Type 1
- Treatment type
- Pump
- Dislikes
- hypos and forum bugs
Any female with bgs like that is pretty well guaranteed to have thrush, even if no uti. And infections can do awful things to your sugar levels. I can't understand why the doctor isn't treating that first. (Or maybe they've cultured up some urine and there is no uti?)
That was a fasting C peptide level that i placed here earlier! They said i didn't need to fast but i was mistaken. i just saw something on the form too, it has eGFR ( CKD-EPI) 90 m/min >60 and underneath it says if afro caribbean multiply result by 1.159.. Actually, I am not outwardly afro, my grandaddy was a GI here in the war, the actual colour has diluted out of me and i'm Ivory though do have locks and all the other usual afro inheritance, I'm saying this because i feel it must be taken account of and hadn't actually realised.
Please insist on a referral to your nearest diabetes clinic @miffli
As soon as possible.
@Brunneria , I daren't, I went to Kettering and Corby Diabetic clinics with me ending up walking out, the one at Kettering, she said she wanted to aim to get me eating porridge and bread as they're healthy carbs, then more insulin and meds which clearly were not working. At Corby it was the nutritionist and i, we fell out because she said pretty much the same, a mid 20's fresh out of college who learned everything about diebetes out of a book and even argued that I was misinformed... please excuse but whomever you are, if you are going to try and force me to eat bread or porridge get lost as you are disillusioned and are giving people misinformation, i even felt with my anxiety they were trying to kill me off.
I suppose I could try the Peterborough one.. i would not hold out for that one as am completely losing faith in the entire system, if it were not for the Northampton Oncology department, I really would have given up by now.. at least they have some idea what they're doing.
@HSSS Even though I have lived here for four years i only changed my gp about 2 and this is completely different to my old one where i had been with them for over 10 years, at least i got to see a female gp and things were much better then but they're 20 miles away and too far to keep travelling to and hence why i changed, I am also out their catchment area, this is all i can have here.. if i had the money i would move tomorrow.
Unfortunately I do not have the spare to go to see a private endo right now.
Morning sugar levels today are 19.2 it seems a pattern, yesterday= 19.0 - and days before 19.2 -19.1- 18.6- 19.1
I am not talking about getting a referral to a nutritionist.
I am suggesting that you get a referral to a diabetes clinic to see a consultant. Then you make them look at your readings and your health history and your reactions to medication.
Your doctor is failing you, and unless you take action on this you will continue to see high blood glucose readings, continue to feel dreadful, and eventually those readings will cause further ill health and diabetic complications.
I realise that your anxiety makes this all very hard for you, but the only way for you to move out of your current distress is by you taking action and insisting that your symptoms and concerns are addressed.
In your situation I would write a letter to my surgery, asking for an URGENT referral to a diabetes clinic.
I would enclose evidence of the continued high readings and list the different medications that have been tried, and what effects they did (or didn't) have.
I would also strongly emphasis the ongoing distress this causing you. The illness, weakness, etc. Say how long this ridiculous state of affairs has carried on, and that you feel your are being fobbed off with platitudes and ineffective dietary advice.
I would send copies of the letter to the doctor and the practice manager (you can get their names from the surgery website), and ask for someone to contact you urgently to discuss how long the referral will take to come through, and what the next stage should be, if you don't get a referral. Formal complaint? Self referral to whom? Should you send a copy of the enclosed evidence to the local Diabetes clinic yourself? Should you write directly to someone in the local CCG? If so, please would they provide you with the contact details with which to do so.
The surgery and CCG websites will have information on how to lodge a formal complaint, if you want to go that route.
You are not powerless in this situation.
Nor do you have to sit quietly and accept the ******* that your doc and nurse seem quite happy to give you.
Unfortunately though, all we forum members can do is to encourage you to take matters into your own hands and encourage you to ensure that you take the appropriate steps to get the treatment you need. We can only make suggestions, whereas you are the only one who can actually do anything.
And this is where a list to tick off - literally a piece of paper in hand, a friend with you or best of all a letter that you can compose carefully with time to think it through and check come into their own.when you're face to face with a busy doctor they treat you in a rushing manner and then you don't get to say all you wanted to, the amount of times i leave and then in the car feel like crying because i didn't get the opportunity to say everything due to time..
Considering he has no idea who those friends are ...i did take a list in when i asked for the c peptide and what have you, he asked me who told you to ask for it, i did say, friends online, he said i should not be listening to them... simple. I seem to get the same attitude from all of these all over Northants, i shall write a letter this weekend and see if it has any effect, i do need to get the Uti's sorted as is costing a fortune in creams, one doctor has said it is a side effect from when i was taking the Jardiance so is to be expected, sadly, i was only offerered 'Canesten once' and that did not even appear to touch it, there are something like 10 doctors at the surgery and countless nurses, they operate two surgeries locally, you'd think by now one would have been a little more helpful.
apologies if i am going on too much on here, i know you're all only trying to help.
We use cookies and similar technologies for the following purposes:
Do you accept cookies and these technologies?
We use cookies and similar technologies for the following purposes:
Do you accept cookies and these technologies?