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Message: <blockquote data-quote="boxy_robot" data-source="post: 2630826" data-attributes="member: 569479">Wow thank you so much for this answer!Adhd makes everything a bit harder, especially because other people think you’re just lazy and have control over your behaviour!When I was in ICU in January they did mention doing other tests but they were take blood constantly every hour anyway so I’m not sure. I wasn’t told a lot and actually it’s taken quite a lot to even be sure I was referred to the endocrinologist. I think the diabetes nurses had to do the referral again because whenever I asked it wasn’t in the system… It’s been ever so confusing! There wasn’t anything in my discharge notes, blood results wise. When I asked the endo about extra tests he certainly didn’t mention any results on my file and said they wouldn’t do extra tests without first having more information about what my blood sugar was doing (hence the Libre 2, although he didn’t seem all that keen to do that either really…). He said the blood sugar results I’d written down didn’t tally with my Hba1c and I don’t know- he just didn’t seem to believe what I told him.. it was a real struggle.I do often get this sort of ‘look’ from health professionals sometimes and I’m quite sure it’s because of my appearance. I’m androgynous, don’t wear makeup and tend to wear men’s shorts and a T-shirt because I have sensory issues with clothing (I am diagnosed with autism too, yay!) and I just wear what is comfortable. I also have tattoos and generally my hair is a bit scruffy regardless of what I do to it.Anyway so it’s been a real uphill struggle to even get to the endocrinologist and when I was there I was almost crying because I’ve been waiting and worrying and feeling dreadful and was hoping for a bit more… I dont know… support? It’s just been such a confusing and disheartening time waiting for this appointment. I don’t mean to criticise, especially because the diabetes nurses are, without doubt, AMAZING!! But when you need the endo’s input and you really have to beg for it, it’s hard. And difficult not to take personally. Whoops sorry… off on a tangent I go!I will answer your other questions a bit later but once again thank you for your help and expertise!</blockquote>

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