As the libre isn't acceptable to the DVLA for blood testing results, how often would that leave people needing to test so that they comply with the DVLA rule?
It seems to be £14.50 for 50 ( http://mm.wirral.nhs.uk/document_uploads/newsletters/DRUGOFTHEMONTHBloodglucosemetersvo.pdf ) which puts you on around £92 a month.
Did you base that on my prescription being every 28 days?
I'm going to think on this letter...some CCG's have a research and development department where they actively want to hear from Patients what they want researched to aid the wellbeing of Patients....its not research into medicines.. Our CCG is also looking at setting up its own diabetic voluntary group which will have paid members too... So could be a few lines of progressing with our CCG that hasn't funded CGM's.
Need to email my consultant too I think to hear her opinion.
If people want funding and their CCG's are backward, then Patients have to stand up and make themselves heard.
I wonder if local news would be interested in a story like this too.. "Diabetic Patients having to self fund for revolutionary new equipment that could improve their lives so dramatically."
Loads of things that could be done... Writing to the health secretary... Loads!!
Something else to think about.. Need to know it really is excellent as my past xperience that you will all know with Abbott Navigator was dire...
Letters going direct to the CCG Managers with good reasoning for funding are more likely to improve our chances of this being available as a funded product.
Is anybody a good letter writer to set us up a template to use?
I did ask Abbott when they will start selling the meter's. They said soon. They are in the process of training people on how the system works.
@donnellysdogs, is there any way a CCG could say to its diabetics "ok your budget for glucose monitoring is X per year, spend it how you like, if you are going to go over though we will limit you" ?
Is it trade secret? Do you have a contact there or just via their advertised methods?
P.s. Are Dr Feher and Munro still at C&W?
That sounds ****, frankly. :-(I've been reading on a blog that you get no access to the raw data from the libre, so you can't feed it into your spreadsheet and analyse it. You only get the graphs and reports that come with it and these have been developed based on what HCPs want to see. Anyone got any more information on this? What are the reports like? I was quite disappointed to read that as it might make it less useful.
Smidge