- Messages
- 4
- Type of diabetes
- Type 1
- Treatment type
- Insulin
Hey all. First post and not too sure what I expect to come of it... I guess I just want to scream about this and hope someone can learn something from it haha
The doctors diagnosed me with type 1 a while back, but because I'm 25, they are surprised it did not manifest sooner. But since I already have a type of auto-immune condition, they're simply saying that's the likely cause.
I'm autistic. With a 130+ IQ, apparently, it's hard to tell for the most part until you realise I need people to remind me how old I am. (25. It's on a sticky-note)
This makes it pretty difficult when it comes to diabetes monitoring.
I can't really tell when i'm hungry, thirsty or in pain as accurately as others and this has led to a fair few unpleasant moments.
I live with arthritis and chronic regional pain syndrome, which means that day-to-day, i can be in constant agony, or background soreness. Both change how my insulin works.
Top that off with an uncertainty of time durations, remembering to test, inject and even remembering how to calculate the appropriate dosages, it's a bit of a nightmare.
I've never thought about my own mortality until i lost four stone in four weeks and got this diagnosis... now, I know without any doubt that it's only a matter of time before I make one stupid mistake and... well, you know...
I've had lots of fun with stress (again, something I can't detect or explain until i realise my insulin isn't working) and am so far making an excellent habit of making loads of notes... only to lose them after a day or so.
Advice to other autistics struggling with this:
Make notes on something you won't lose (phone for example)
set alarms for anything you need to do on-time
make reminders of times and dates you need to do things
make sure friends and family are aware of your limitations and what they need to be cautious of
know your limits
try to get into a routine.
Hope this helps
any questions, feel free to ask
The doctors diagnosed me with type 1 a while back, but because I'm 25, they are surprised it did not manifest sooner. But since I already have a type of auto-immune condition, they're simply saying that's the likely cause.
I'm autistic. With a 130+ IQ, apparently, it's hard to tell for the most part until you realise I need people to remind me how old I am. (25. It's on a sticky-note)
This makes it pretty difficult when it comes to diabetes monitoring.
I can't really tell when i'm hungry, thirsty or in pain as accurately as others and this has led to a fair few unpleasant moments.
I live with arthritis and chronic regional pain syndrome, which means that day-to-day, i can be in constant agony, or background soreness. Both change how my insulin works.
Top that off with an uncertainty of time durations, remembering to test, inject and even remembering how to calculate the appropriate dosages, it's a bit of a nightmare.
I've never thought about my own mortality until i lost four stone in four weeks and got this diagnosis... now, I know without any doubt that it's only a matter of time before I make one stupid mistake and... well, you know...
I've had lots of fun with stress (again, something I can't detect or explain until i realise my insulin isn't working) and am so far making an excellent habit of making loads of notes... only to lose them after a day or so.
Advice to other autistics struggling with this:
Make notes on something you won't lose (phone for example)
set alarms for anything you need to do on-time
make reminders of times and dates you need to do things
make sure friends and family are aware of your limitations and what they need to be cautious of
know your limits
try to get into a routine.
Hope this helps
any questions, feel free to ask
