Diabetes linked to lactose intolerance

saz_pul

Newbie
Messages
3
Hiya my name is Sarah, I'm 19 and have been diabetic for the last 13 years.
I have recently had very poor control over my diabetes, and have developed lactose intolerance.
Now this is where it gets complicated so please stay with me.

Around 8 months ago I had a crazy time of craving nachos (with the cheese and all the trimmings on), now this in its self was weird as id never really craved foods or anything like this before, so i did all the usual things of checking if i was pregnant, which i was not, the thing that made me also query this was the fact that i was throwing up on a regular basis, and thus for losing weight rapidly. Now with my insulin regime i am on (basil bolus) i only inject my fast acting when i eat, and have my long acting of a morning. So as when i was throwing up i wasn’t eating thus for not injecting my fast acting, as my level usually drops when I’m ill. This particular time i was high as a kite, so ended up in hospital with a DKA.

After spending a long weekend in hospital, i was not only very thin, weighing less than 7 stone (i am only 5'3) i also was very careful on what i ate, and reined my control in on my diabetes. Things improved and i continued to eat normally. then after a large amount of stress and change in my life i started to lose my grip on my control and it began to slip, and when i say slip it was like a meteor crashing to earth, as a young teen i had bad control any how, my hba1c would have been around 9, and now i would love it to be 9, because it is currently around 13.

And this fact also got me thinking, as i am currently in the process of sorting my diabetes out so as not to cause anymore risk of long term effect, i noticed that over the last 6 months i have started to gain weight, not that this is a very bad thing but once i explain my theorem then I’m sure you will understand.

As i have previously mentioned my bad control, lactose intolerance and weight gain. i was looking at a weight loss program just out of curiosity to see what i can improve in my diet. They then got on about the body storing fats when the blood sugar is not stable, then the penny dropped, as over the past few months my diabetes has got more and more out of control i have been gaining more weight. (see the link) and now i have developed lactose intolerance, now my diabetes is at its very worst. When i never had this problem before, even when my control was bad not atrocious.

Now i am wondering about the connection between lactose intolerance and poor diabetes control. and was wondering if anyone else out there had had the same problem, or some similar scenario that may help me with my theorem. i have looked on the internet and haven’t come across anything like what i think, as most of it relates to type 2 diabetics as opposed to type 1.

oh just to add, when i initially when to the doctors about my throwing up etc, they had no explanation, and could only say that i had ibs, which it does run in my family but i don’t get any symptoms apart from a pain in my abdomen, which i also get once eating cheese, but both of these have developed since my control has worsened.
 

Elc1112

Well-Known Member
Messages
709
Hi saz_pul.

I've been diabetic for over 20 years now. My control has always been good, with the exception of a couple of years when I was a teenager. Anyway, I have a lactose intolerance. It seems to have gotten worse over time and now I really can't handle even a small amount of lactose without feeling very sick. I also have coeliacs disease, which is an allergy to gluten. Coeliacs is an autoimmune condition, similar to diabetes. You're much more likely to develop an autoimmune condition like coeliacs if you already suffer from diabetes. Yours then more likely, so I have heard, to develop more allergies if you already suffer from another food allergy.

Anyway, this is how I have always rationalised my lactose intolerance. But it is interesting to hear your story.
 

jbriscoe26

Member
Messages
22
Type of diabetes
Type 1
Treatment type
Insulin
I was diagnosed with type 1 diabetes in January, 2015. A couple of months later, I self-diagnosed lactose intolerance after a rare morning of eating bacon and egg instead of cereal and regular milk led to my stomach feeling better than it had for ages.
As soon as I was diagnosed with diabetes I put symptoms I'd been having, such as terrible IBS-like issues, down to my diabetes. I thought: it's amazing! This is why I was so ill and now I'll be okay. As a side point, my GP put my bad stomachs down to IBS - do they even care if they help us or not?
But then I realised my digestive problems were probably nothing to do (or little to do) with diabetes. I was simply allergic to lactose.
I'd had lactose intolerance-related problems for a lengthy time (I think); up to three years, so I'm sure it was around before my type 1. I'm interested to know if the damage the lactose intolerance did to my body possibly brought on my type 1 or whatever it is I actually have. Maybe the two are linked anyway? Either way, I'm just so glad I realised I had lactose intolerance because it was having a much bigger impact on my health than I think type 1 will ever have (I look after myself).
Thanks,
James
 
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Hiya my name is Sarah, I'm 19 and have been diabetic for the last 13 years.
I have recently had very poor control over my diabetes, and have developed lactose intolerance.
Now this is where it gets complicated so please stay with me.

Around 8 months ago I had a crazy time of craving nachos (with the cheese and all the trimmings on), now this in its self was weird as id never really craved foods or anything like this before, so i did all the usual things of checking if i was pregnant, which i was not, the thing that made me also query this was the fact that i was throwing up on a regular basis, and thus for losing weight rapidly. Now with my insulin regime i am on (basil bolus) i only inject my fast acting when i eat, and have my long acting of a morning. So as when i was throwing up i wasn’t eating thus for not injecting my fast acting, as my level usually drops when I’m ill. This particular time i was high as a kite, so ended up in hospital with a DKA.

After spending a long weekend in hospital, i was not only very thin, weighing less than 7 stone (i am only 5'3) i also was very careful on what i ate, and reined my control in on my diabetes. Things improved and i continued to eat normally. then after a large amount of stress and change in my life i started to lose my grip on my control and it began to slip, and when i say slip it was like a meteor crashing to earth, as a young teen i had bad control any how, my hba1c would have been around 9, and now i would love it to be 9, because it is currently around 13.

And this fact also got me thinking, as i am currently in the process of sorting my diabetes out so as not to cause anymore risk of long term effect, i noticed that over the last 6 months i have started to gain weight, not that this is a very bad thing but once i explain my theorem then I’m sure you will understand.

As i have previously mentioned my bad control, lactose intolerance and weight gain. i was looking at a weight loss program just out of curiosity to see what i can improve in my diet. They then got on about the body storing fats when the blood sugar is not stable, then the penny dropped, as over the past few months my diabetes has got more and more out of control i have been gaining more weight. (see the link) and now i have developed lactose intolerance, now my diabetes is at its very worst. When i never had this problem before, even when my control was bad not atrocious.

Now i am wondering about the connection between lactose intolerance and poor diabetes control. and was wondering if anyone else out there had had the same problem, or some similar scenario that may help me with my theorem. i have looked on the internet and haven’t come across anything like what i think, as most of it relates to type 2 diabetics as opposed to type 1.

oh just to add, when i initially when to the doctors about my throwing up etc, they had no explanation, and could only say that i had ibs, which it does run in my family but i don’t get any symptoms apart from a pain in my abdomen, which i also get once eating cheese, but both of these have developed since my control has worsened.

Hi Sarah, I had practically the same symptoms as you about 3 years ago, vomiting, nausea, loss of weight, severe upper abdominal pain, diarrhea and with very quick, dramatic hypo's straight after eating, I am not lactose intolerant, but was diagnosed with Coeliac disease and my BS were all over the place, for months, but settled down once I was properly diagnosed.
 

Teri8788

Newbie
Messages
3
Type of diabetes
Type 2
Hiya my name is Sarah, I'm 19 and have been diabetic for the last 13 years.
I have recently had very poor control over my diabetes, and have developed lactose intolerance.
Now this is where it gets complicated so please stay with me.

Around 8 months ago I had a crazy time of craving nachos (with the cheese and all the trimmings on), now this in its self was weird as id never really craved foods or anything like this before, so i did all the usual things of checking if i was pregnant, which i was not, the thing that made me also query this was the fact that i was throwing up on a regular basis, and thus for losing weight rapidly. Now with my insulin regime i am on (basil bolus) i only inject my fast acting when i eat, and have my long acting of a morning. So as when i was throwing up i wasn’t eating thus for not injecting my fast acting, as my level usually drops when I’m ill. This particular time i was high as a kite, so ended up in hospital with a DKA.

After spending a long weekend in hospital, i was not only very thin, weighing less than 7 stone (i am only 5'3) i also was very careful on what i ate, and reined my control in on my diabetes. Things improved and i continued to eat normally. then after a large amount of stress and change in my life i started to lose my grip on my control and it began to slip, and when i say slip it was like a meteor crashing to earth, as a young teen i had bad control any how, my hba1c would have been around 9, and now i would love it to be 9, because it is currently around 13.

And this fact also got me thinking, as i am currently in the process of sorting my diabetes out so as not to cause anymore risk of long term effect, i noticed that over the last 6 months i have started to gain weight, not that this is a very bad thing but once i explain my theorem then I’m sure you will understand.

As i have previously mentioned my bad control, lactose intolerance and weight gain. i was looking at a weight loss program just out of curiosity to see what i can improve in my diet. They then got on about the body storing fats when the blood sugar is not stable, then the penny dropped, as over the past few months my diabetes has got more and more out of control i have been gaining more weight. (see the link) and now i have developed lactose intolerance, now my diabetes is at its very worst. When i never had this problem before, even when my control was bad not atrocious.

Now i am wondering about the connection between lactose intolerance and poor diabetes control. and was wondering if anyone else out there had had the same problem, or some similar scenario that may help me with my theorem. i have looked on the internet and haven’t come across anything like what i think, as most of it relates to type 2 diabetics as opposed to type 1.

oh just to add, when i initially when to the doctors about my throwing up etc, they had no explanation, and could only say that i had ibs, which it does run in my family but i don’t get any symptoms apart from a pain in my abdomen, which i also get once eating cheese, but both of these have developed since my control has worsened.
I hun. I'm just reading ur post now as I searched the link with lactose n diabetes T2. My sugars are NEVER under 15 and i barely eat a thing. I tend to drink my calories in fluids as iv no appetite n always thirsty. To help complicate matters I'm seriously ill with 20 other conditions including fibromyalgia, m.e,/cfs, Addison's disease, brittle asthma, extremely severe migraines and an allergy to lactose or dairy. My problem is that addisons disease can be fatal. On top of osteoporosis, osteoarthritis, prolapsed disc in my spine and a a mass of tumours on my pituitary gland in the brain I'm in agony. After going thru 18 days straight of blinding migraines n throwing I decided to check all my meds. This only came to me as I got a box of sumitriptan from boots and took n 1 and was so ill. Turnt out it CONTAINED LACTOSE . Last night I went thru all my meds and found out my most VITAL MEDS CONTAINED LACTOSE Meds that treated My fibro, Addison's disease, asthma , and migraines. I'm on the strongest stuff possible for my fibro n Addison's if i can't take morphine for that pain and hydrocortisone for the Addison's disease and my migraine prevention pill Wat on earth can I take instead. I'm in enuf pain 24 as it is. Now I hav all this to content with. 9 of my 30 meds contain the 1 ingredient I'm allergic too. Don't know wats gonna happen tomorrow when I see the Dr. X
 

Kristin251

Expert
Messages
5,334
Type of diabetes
LADA
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Insulin
Dairy is known to be extremely insulinogenic and will require more insulin, i.e. Spike BS. I completely envy those that can eat it but I am not one and I know it would make my bs much worse as well as my insulin resistance. IMO, ditch the dairy.

Edited by a mod to remove incorrect information
 
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Messages
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Type of diabetes
Type 1
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Some of the symptoms above sound a lot like gastroparesis, which happens more frequently in people with T1 diabetes than in the regular population. This is not to say that you don't also have lactose intolerance, but the hypoglycemia after eating, bloating, pain, and nausea -- waves of it, it's just brutal -- are all signs. You can ask for a gastric emptying test that will measure how long it takes for food to get through your system. The nerve damage in type 1s that accumulates over time makes it hard to digest food, slowing the absorption of everything, including glucose. That's how you end up with low glucose after eating a full meal, and then, if you're not aware you have it, a spike hours later.
 

Antje77

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Retired Moderator
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19,472
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Some of the symptoms above sound a lot like gastroparesis, which happens more frequently in people with T1 diabetes than in the regular population. This is not to say that you don't also have lactose intolerance, but the hypoglycemia after eating, bloating, pain, and nausea -- waves of it, it's just brutal -- are all signs. You can ask for a gastric emptying test that will measure how long it takes for food to get through your system. The nerve damage in type 1s that accumulates over time makes it hard to digest food, slowing the absorption of everything, including glucose. That's how you end up with low glucose after eating a full meal, and then, if you're not aware you have it, a spike hours later.
Hi @Margot Elizabeth , welcome to the forum!
I have no idea how you found this thread, but it's 11 years old and none of the participants have been on the forum for years, so I doubt they will see your reply.
 

Melgar

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571
Type of diabetes
Other
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Tablets (oral)
I see it's an old thread, but very interesting so maybe a new thread would be good. I have T2, well I think its T2. My Dr has ordered some blood work: GAD; C-Peptide, Lipase and Amyglase H6A,C. Anyways, I too have a whole tri-bundle of digestive issues, lactose Intolerance , IBS and GERD. The GERD and the Lactose Intolerance were diagnosed by my gastro specialist about 20 years back. My blood sugar issues are relatively new, prediabetic since the backend of 2019 and has gradually got worse. Is there a lactose intolerance link to Diabetes T2 and T1 ?
 
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Antje77

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I have T2, well I think its T2. My Dr has ordered some blood work: GAD; C-Peptide
This means your doctor wants to rule out (or suspects) T1.
I too have a whole tri-bundle of digestive issues, lactose Intolerance , IBS and GERD. The GERD and the Lactose Intolerance were diagnosed by my gastro specialist about 20 years back.
Can I assume you've been tested for celiac and tested negative?
Is there a lactose intolerance link to Diabetes T2 and T1 ?
Not directly as far as I know (but I might be wrong here). However, autoimune disorders (like T1 and celiac) often travel in packs, so it might be your diabetes triggered your doctor to have a look at an autoimmune cause in combination with your digestive issues. I see your brother has T1, so family history may play a role as well here.
I see it's an old thread, but very interesting so maybe a new thread would be good.
A new thread would be very good, it would be seen by more people who know way more about T2, digestive problems, lactose intolerance than I do, I don't have any of those things.
 
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Melgar

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Thanks for your response @Antje77 :) No celiac as far as I'm aware. Yes it would be interesting to see what other T2's have digestive issues.
 
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Antje77

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whoops, thanks! I was searching lactose intolerance and type 1 and found this site. (note to self: check dates : )
Oh well, the forum takes some getting used to.
Looks like you're starting to find your way now though, so all is well!

There's nothing wrong with replying to old threads, it's just chances are that no-one will notice, which is a bit sad with a first post. :)