Fed Up

[Alexandra100]

£225.00 last year at rivers hospital in Hertfordshire
https://www.rivershospital.co.uk/treatments/ct-calcium-scoring

No wonder GPs don't like prescribing it! I'd love to have this test, but in a way it would be idle curiosity, as I can't see what I could change in response to the result.

 

[DCUKMod]

My GP is very good in some areas but let's himself down in other areas. He is very old school.

Marcus - Under the NHS you are entitled to a second opinion on things. I always knew I could get a second opinion, but it was my GP who explained to me how it worked, when she called me for feedback on a specialist consultation I'd had (about something not related to diabetes), when I had found the Consultant disinterested.

She explained I could not only have a second opinion, but if I knew whom I wanted that second opinion from, she could make a named referral, so that I would see a particular person (not anyone else or even a member of their team). I both accepted her offer of a second opinion and I nominated the perreson I wanted to see.

Please don't think I'm trying to persuade you to do anything; I'm just feeding back my personal experience.

 

[Bluetit1802]

That is what puzzled me, I have reduced my cholesterol in the past. My GP says that because it has reached 7.5 that it is now FH genetic and when it gets back to normal levels I will be kept on a lower dose 10mg statins for the rest of my life.

He isn't really correct. It is an indicator of FH but not a reason to diagnose. Further investigations have to be done.

The NICE guidelines says:

1.3.7 Consider the possibility of familial hypercholesterolaemia and investigate as described in familial hypercholesterolaemia (NICE guideline CG71) if they have:

• a total cholesterol concentration more than 7.5 mmol/litre and
  
  
• a family history of premature coronary heart disease. [new 2014]
  

https://www.nice.org.uk/guidance/cg71
https://www.nice.org.uk/guidance/cg...d-assessing-cardiovascular-disease-cvd-risk-2

So your doctor should not have diagnosed FH but should be investigating it further.

 

[BibaBee]

Marcus - I just wanted to reach out to say that you are not alone in having to deal with all of this alongside your health anxiety. My husband is in a very similar position and it can be debilitating at times. The most important things are that you are self aware and have good support. You will get through this, like I keep telling my husband. Do take care of yourself.

 

[Marcus1234]

He isn't really correct. It is an indicator of FH but not a reason to diagnose. Further investigations have to be done.

The NICE guidelines says:

1.3.7 Consider the possibility of familial hypercholesterolaemia and investigate as described in familial hypercholesterolaemia (NICE guideline CG71) if they have:

• a total cholesterol concentration more than 7.5 mmol/litre and
  
  
• a family history of premature coronary heart disease. [new 2014]
  

https://www.nice.org.uk/guidance/cg71
https://www.nice.org.uk/guidance/cg...d-assessing-cardiovascular-disease-cvd-risk-2

So your doctor should not have diagnosed FH but should be investigating it further.

I was puzzled myself with what the doctor said, and when I read into further extra testing was advised.
I will speak with the nurse tomorrow, it is my first diabetic app with the nurse.
Thanks

 

[zand]

She reminded me the other day about our return flight from Crete and we did laugh about it because our gate number had changed from 10 to 13 it sent me over the edge into panic mode. The reason behind the panic is because I see number 13 as an unlucky number and panicked for 4.5 hours back to the UK. (Pathetic I know)

No, not pathetic at all. I used to take my Mum shopping on Fridays. One day she asked to go on Thursday instead because Friday was the 13th. I wish I hadn't listened to her, I had a car accident on Thursday 12th!

 

[dbr10]

That is what puzzled me, I have reduced my cholesterol in the past. My GP says that because it has reached 7.5 that it is now FH genetic and when it gets back to normal levels I will be kept on a lower dose 10mg statins for the rest of my life.

Does that mean you have a genetic condition which comes and goes? Seems more than a little strange. Were you referred to a lipid specialist?

 

[dbr10]

My latest Total cholesterol was 9.8 but nothing has been mentioned to me abut FH.

Doctor's seem to be confused about this.

 

[JoKalsbeek]

I felt less like a powerless victim of circumstance and genes when I took control of my type 2 and cholesterol through a high fat, low carb diet... I'm off statins now and eat bacon, sometimes 3 times a day. Cholesterol's fine, HbA1c 34, no meds. Some need a little medicinal help, but both metformin and statins had so many extremely unpleasant sude effects for me, I'm still thankful for a LCHF/keto alternative that does work for me. Good luck, and enjoy your vacation!

 

[Marcus1234]

Does that mean you have a genetic condition which comes and goes? Seems more than a little strange. Were you referred to a lipid specialist?

No didn't get a referral

 

[Marcus1234]

I felt less like a powerless victim of circumstance and genes when I took control of my type 2 and cholesterol through a high fat, low carb diet... I'm off statins now and eat bacon, sometimes 3 times a day. Cholesterol's fine, HbA1c 34, no meds. Some need a little medicinal help, but both metformin and statins had so many extremely unpleasant sude effects for me, I'm still thankful for a LCHF/keto alternative that does work for me. Good luck, and enjoy your vacation!

Thank you