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Type 1.5/LADA Diabetes
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<blockquote data-quote="DaftThoughts" data-source="post: 1575528" data-attributes="member: 317436"><p>Hey Reba! I'm in the Netherlands, yeah. <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite1" alt=":)" title="Smile :)" loading="lazy" data-shortname=":)" /> My c-peptide test came back way low in 2014, but not low enough to warrant insulin immediately. My doctors decided to try to use diet and oral medication to treat it initially. Their goal was to keep me off insulin for as long as possible, thinking this was the better alternative.</p><p></p><p>I started with metformin and tried to stick to as many whole carbs as possible. I was bumped up from 500mg twice a day to 1000mg twice a day, then up to 2500mg total a day. After about a year or so I was also put on gliclazide to help my pancreas' remaining beta cells produce more insulin.</p><p></p><p>This didn't work out too well in the long run though, my A1C went up quite a bit and I had massive fluctuations - high spikes, low crashes, I couldn't regulate anything anymore. It was obvious my insulin production was going down. I was given Toujeo (basal insulin only) halfway through 2016 to help with this but it only took the edge off.</p><p></p><p>When I raised concerns with my DSN, she talked to my endo and he said that I shouldn't go on insulin, but go on Victoza. I was upset because Victoza relies on the body's own ability to produce insulin to work, which I was sure I was lacking. Nobody thought it necessary to give me a new c-peptide test when making this call, but it was obvious to me that it wouldn't work. I fought for 6 months to have my endo agree to put me on insulin, and they only did so because Victoza wasn't regulated by the insurance companies for people who were on basal insulin so it wasn't accessible yet. I 100% insisted on going on insulin full time and he finally caved. (In hindsight, my endo was an intern, and I think Victoza was a topic he had been focusing on for a while which made him push it onto patients without taking their preferences into consideration.)</p><p></p><p>I'm finally on insulin full time now as of January this year, and my A1C dropped below 7 and I'm doing really well. My final thoughts are:</p><p>- I think the gliclazide helped kill my remaining beta cells faster. My condition accelerated significantly when I took them.</p><p>- There is no set treatment for LADA yet, which causes discrepancies between doctors and patients. Always stand up for yourself! You know your body best. Most LADAs vouch for starting insulin early because it takes stress off the remaining beta-cells and preserves them longer, rather than stressing them out.</p><p>- I know there are LADAs who have been getting on well with Victoza. It's a drug meant for T2 diabetics but for as long as you produce enough insulin, it can work. Just make sure to get a c-peptide test before committing. A doctor who tries to push it on you without one should be disregarded in my opinion.</p><p></p><p>I hope this helps. <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite1" alt=":)" title="Smile :)" loading="lazy" data-shortname=":)" /></p></blockquote><p></p>
[QUOTE="DaftThoughts, post: 1575528, member: 317436"] Hey Reba! I'm in the Netherlands, yeah. :) My c-peptide test came back way low in 2014, but not low enough to warrant insulin immediately. My doctors decided to try to use diet and oral medication to treat it initially. Their goal was to keep me off insulin for as long as possible, thinking this was the better alternative. I started with metformin and tried to stick to as many whole carbs as possible. I was bumped up from 500mg twice a day to 1000mg twice a day, then up to 2500mg total a day. After about a year or so I was also put on gliclazide to help my pancreas' remaining beta cells produce more insulin. This didn't work out too well in the long run though, my A1C went up quite a bit and I had massive fluctuations - high spikes, low crashes, I couldn't regulate anything anymore. It was obvious my insulin production was going down. I was given Toujeo (basal insulin only) halfway through 2016 to help with this but it only took the edge off. When I raised concerns with my DSN, she talked to my endo and he said that I shouldn't go on insulin, but go on Victoza. I was upset because Victoza relies on the body's own ability to produce insulin to work, which I was sure I was lacking. Nobody thought it necessary to give me a new c-peptide test when making this call, but it was obvious to me that it wouldn't work. I fought for 6 months to have my endo agree to put me on insulin, and they only did so because Victoza wasn't regulated by the insurance companies for people who were on basal insulin so it wasn't accessible yet. I 100% insisted on going on insulin full time and he finally caved. (In hindsight, my endo was an intern, and I think Victoza was a topic he had been focusing on for a while which made him push it onto patients without taking their preferences into consideration.) I'm finally on insulin full time now as of January this year, and my A1C dropped below 7 and I'm doing really well. My final thoughts are: - I think the gliclazide helped kill my remaining beta cells faster. My condition accelerated significantly when I took them. - There is no set treatment for LADA yet, which causes discrepancies between doctors and patients. Always stand up for yourself! You know your body best. Most LADAs vouch for starting insulin early because it takes stress off the remaining beta-cells and preserves them longer, rather than stressing them out. - I know there are LADAs who have been getting on well with Victoza. It's a drug meant for T2 diabetics but for as long as you produce enough insulin, it can work. Just make sure to get a c-peptide test before committing. A doctor who tries to push it on you without one should be disregarded in my opinion. I hope this helps. :) [/QUOTE]
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