- Messages
- 17
- Type of diabetes
- Type 1
- Treatment type
- Insulin
Hi. Apologies if this has been posted elsewhere but couldn't find anything.
I've been T1 for nearly 2 years and was diagnosed with an under active thyroid at the same time. I've been on Levothyroxine for the entire time, starting with 25mcg and now on 100mcg as the last result was 5.7 (October 2013). For the last 6 months I've had terrible bone, joint and muscle pain all over and couldn't work out what it was from. All blood tests came back negative, GPs didn't know. My endo just upped my dose as said the pains are due to being undermedicated.
This last week, however, the pains have worsened to severe. The other night I couldn't move without experiencing terrible pain. It's stopped me exercising (which I used to do daily) and makes simple movements difficult.
I suspected it might be to do with the Levothyroxine as it states on the reading material that possible side effects are joint and muscle pain. When I read that I was convinced that was to blame and tried to speak with my endo. Luckily I got an appointment but he disregarded the entire thing and told me I was imagining it and to pull myself together. I told him I find it difficult to walk and he said I read too many things.
Is this something anyone is familiar with and if so, what did you do? I understand you can get T3 instead of the T4. Does anyone know if that will stop the pains? If it is something common maybe it's a better idea to see another doctor? Can anyone recommend anyone in London?
I should say my diabetes is controlled very well, last A1c 5.1%. I take 25mcg (1000 IU) Vitamin D supplement a day. My results range from 57-61. I'm told that's fine (by the same endo.)
Thanks in advance!
James
I've been T1 for nearly 2 years and was diagnosed with an under active thyroid at the same time. I've been on Levothyroxine for the entire time, starting with 25mcg and now on 100mcg as the last result was 5.7 (October 2013). For the last 6 months I've had terrible bone, joint and muscle pain all over and couldn't work out what it was from. All blood tests came back negative, GPs didn't know. My endo just upped my dose as said the pains are due to being undermedicated.
This last week, however, the pains have worsened to severe. The other night I couldn't move without experiencing terrible pain. It's stopped me exercising (which I used to do daily) and makes simple movements difficult.
I suspected it might be to do with the Levothyroxine as it states on the reading material that possible side effects are joint and muscle pain. When I read that I was convinced that was to blame and tried to speak with my endo. Luckily I got an appointment but he disregarded the entire thing and told me I was imagining it and to pull myself together. I told him I find it difficult to walk and he said I read too many things.
Is this something anyone is familiar with and if so, what did you do? I understand you can get T3 instead of the T4. Does anyone know if that will stop the pains? If it is something common maybe it's a better idea to see another doctor? Can anyone recommend anyone in London?
I should say my diabetes is controlled very well, last A1c 5.1%. I take 25mcg (1000 IU) Vitamin D supplement a day. My results range from 57-61. I'm told that's fine (by the same endo.)
Thanks in advance!
James