2 week blood testing for 11yr old son

Shaz1208

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Hi. My son has been asked to test his glucose level for a two week period after sugar was found accidentally in a urine sample. We have been told not to change his diet as that won’t show what’s happening on a normal day. He is very active and trains 13hrs a week as a gymnast. He is tall and slim (muscular). His levels are all over the place and after eating some chocolate last night (movie night) his bedtime reading (2hrs after eating) was 18.3. I tested again when he was asleep so it was 2 1/2 hrs after first test and it had reduced to 12.5.
I know that’s too high so I am worried about what to give him to eat. Should I contact clinic and ask for advice?
 

Ann1982

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I would contact the clinic as soon as possible and ask for advice at the very least. It sounds as if your son might be diabetic. Is he thirsty, drinks lots etc? Look after him.
 

AM1874

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therower

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With all due respect @AM1874 . The OP clearly states that the medical professionals have asked her not to change her sons diet.
Following your advice could mask and significantly alter results and future diagnosis of any problems.
Until a diagnosis is made we on the forum are in no position to start giving dietary advice, especially to an 11 yr old.

@Shaz1208 . Those levels are high, re contact your doctor and tell them what you have told us here.
Good luck.
 
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AM1874

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With all due respect @AM1874 . The OP clearly states that the medical professionals have asked her not to change her sons diet.
Following your advice could mask and significantly alter results and future diagnosis of any problems.
Until a diagnosis is made we on the forum are in no position to start giving dietary advice, especially to an 11 yr old.

@Shaz1208 . Those levels are high, re contact your doctor and tell them what you have told us here.
Good luck.
Fair enough, you're quite right but the OP did say she was "worried about what to give him to eat" I didn't pick up the Doc's instuction up (slaps wrist :grumpy:) .. I was focusing on the OP's concerns and the high BG numbers .. apologies for confusing the issue
 
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catapillar

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Have you been given a means to test for ketones?

If the clinic have told you not to change his diet, then don't change his diet. Should investigations confirm a diabetes diagnosis in a slim 11 year old it would be type 1 diabetes which is NOT managed by diet, low carb advice is for type 2 diabetics. Type 1 is managed by insulin.

18 is a high reading and if I were you I would be contacting the clinic on Monday morning to report those levels and seek advice advise on next steps.

Is it a diabetic clinic that have asked you to do theses readings of a GP? If it is a GP, seek referral to the diabetic clinic and contact the diabetic specialist nurses for advice. You could do this without a referral by googling the contact number for DSNs at your local hospital.
 
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Shaz1208

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Thanks Catapillar. It is the diabetic clinic that has advised to carry on as normal and test blood four times a day. He had his urine checked this morning because of the high levels and it was all clear. I don’t have the means to do it myself though.
I will call the clinic first thing in the morning and speak to them. Thanks again
 

Celsus

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@Shaz1208, I agree with @catapillar and @Jaylee above. Get the boy back to the clinic as the bg measures you have show already consistent (too) high and prolonged bg levels after food intake. I am actually flabbergasted that the specialists in diabetes themselves have not exposed him to a direct glucose tolerance test right away. Binge sodapop drinking and sweets eating will get normal persons to go above 'normal' blood glucose (bg) levels during some short spikes of time. And you also have some rare conditions that may give you increased bg levels or sugar in the urine. But from your testimonies above, I would unfortunately point towards diabetes as the most possible root cause. Don't know if there was any special background for his first urine test done identifying the sugar, if he had been vomiting, feeling nausea or similar? Do you have his weight trends over the past 6-12 months?

The clinical metrics typically used to diagnose Type1 in children are:
1. The random blood sugar tests, which I think you are doing now. A blood sample is taken at a random time. Regardless of when your son last ate, a bg level of 11 millimoles per liter (mmol/L) or higher suggests diabetes.
2. The glycated hemoglobin test (HgAc1) will indicate your son's average blood sugar level over the past 3 months. An HgA1c level of 6.5% or higher on two separate tests indicates diabetes.
3. Start fasting from 8pm the evening before, and then measure the fasting blood sugar level at 6am before rising. A fasting blood sugar level of 7.0 mmol/L or higher indicates type 1 diabetes.

In any case, take him to a diabetes clinic as no reason to remain in this uncertain condition for longer.
We don't hope to see you here again on this forum. But if you do get the Dx of Type1 confirmed, then we are surely here to welcome you back with the huge network of diabetics ready to support where we can, both you as parents but also for your son to find and socialize with fellow diabetic kids his own age.

Best wishes and take good care!
 
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Shaz1208

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@Shaz1208, I agree with @catapillar and @Jaylee above. Get the boy back to the clinic as the bg measures you have show already consistent (too) high and prolonged bg levels after food intake. I am actually flabbergasted that the specialists in diabetes themselves have not exposed him to a direct glucose tolerance test right away. Binge sodapop drinking and sweets eating will get normal persons to go above 'normal' blood glucose (bg) levels during some short spikes of time. And you also have some rare conditions that may give you increased bg levels or sugar in the urine. But from your testimonies above, I would unfortunately point towards diabetes as the most possible root cause. Don't know if there was any special background for his first urine test done identifying the sugar, if he had been vomiting, feeling nausea or similar? Do you have his weight trends over the past 6-12 months?

The clinical metrics typically used to diagnose Type1 in children are:
1. The random blood sugar tests, which I think you are doing now. A blood sample is taken at a random time. Regardless of when your son last ate, a bg level of 11 millimoles per liter (mmol/L) or higher suggests diabetes.
2. The glycated hemoglobin test (HgAc1) will indicate your son's average blood sugar level over the past 3 months. An HgA1c level of 6.5% or higher on two separate tests indicates diabetes.
3. Start fasting from 8pm the evening before, and then measure the fasting blood sugar level at 6am before rising. A fasting blood sugar level of 7.0 mmol/L or higher indicates type 1 diabetes.

In any case, take him to a diabetes clinic as no reason to remain in this uncertain condition for longer.
We don't hope to see you here again on this forum. But if you do get the Dx of Type1 confirmed, then we are surely here to welcome you back with the huge network of diabetics ready to support where we can, both you as parents but also for your son to find and socialize with fellow diabetic kids his own age.

Best wishes and take good care!

Hi thanks for that. His first urine test was completely unrelated to any kind of illness. I took one for a routine hosp appointment just in case it was asked for - lucky I did really. The same day they did finger prick test and as it was 3 hours since he ate they were surprised that it was 12. They then ordered further tests and referred him to the diabetic clinic. He did have blood test at dB clinic to see his results over a 2-3 month period and it was higher than they would have liked. They were waiting on the results of a blood test which I think they said would show the level of insulin cells within his blood. This is the test they were going to diagnose him on.
I will call the clinic in the morning and discuss his first weeks results with them. See what they say. Thanks
 
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Diakat

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Let us know how it goes. If it is diabetes came back and speak with other parents for help and support.
 
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Shaz1208

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Well I’m updating you from ward 40 LGI. Adam was admitted this afternoon as the final blood results came back and confirmed T1. Although diagnosed very early and not being particularly poorly they want him to stay in until the end of the week.
 

Guzzler

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You did well. You got the lad sorted quickly and early, well done. Now it is a case of learning alongside your son all that has to be done. Best wishes.
 
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Ambersilva

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Adam probably can't understand what all the fuss is about. He is in good hands now. The NHS is certainly working well for him.

Best wishes to you and Adam.
 
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Snapsy

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Awwwww @Shaz1208 . Hugs all round. Adam and I are kindred spirits - I was diagnosed aged 11 too.

Really good to see you on this forum - there is so, so much information available from people who have first-hand experience of all of this - ask lots of questions - hope your heads aren't spinning too wildly in these early days - sending strength your way.

Hugs.

Love Snapsy xxx
 
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Lewis' mummy

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I’m the mum to a type 1 son. It’s a shock to you all. There’s a parents of children with type 1 Facebook group. It’s been a massive help to me emotionally and a fantastic resource for knowledge. Thank goodness he’s ok because you caught it early xx
 
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himtoo

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why can't everyone get on........
I just want to add my huge hug to the whole family


thank you or being a fabulous Mum and hopefully your son will get his mojo back soon !!!

[[[hugs]]]

paul ( himtoo )
xx
 
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Diakat

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Oh sweetheart! Thank goodness you caught it early. Sending you strength.
 
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22nw22

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Well I’m updating you from ward 40 LGI. Adam was admitted this afternoon as the final blood results came back and confirmed T1. Although diagnosed very early and not being particularly poorly they want him to stay in until the end of the week.
Oh no dude.