Daughter Has Weak Legs And A Hand

[geroleary]

Hi all. Living in Ireland and decided to join this forum as Ireland seems to just adopt any new medicines from the Uk. My daughter was diagnosed oct 16 type 1 she has recently been diagnosed Coeliac. She is 13 the poor kid. She was tAking into hospital last week as she had week legs and a hand. She was let out and brought back today as things have not improved. They are doing an mri scan tomorrow. Has anyone ever gone through something similar. Thanks for reading this post from a worried sick dad.

 

[Crocodile]

There are many things that can cause this. MRI is a great start. My son had balance and weakness but the outcome wasn't great so I won't alarm you with details as his case was not common. Best to wait for the scans, tests and diagnosis. It's good that you're on to it.
Take care,
Glenn

 

[geroleary]

Hi Glenn
Thanks so much for your reply I hope your son is ok but would love to know what was the outcome for him as I am awake all night worrying anyway. Thanks so much

 

[Crocodile]

Sorry Ger, any dad would be worried and nothing I or anyone else says can alter that. In the case of our lad he unfortunately didn't survive his illness. I didn't really want to go into details because I don't want to unnecessarily alarm you. There are a multitude of things that can cause problems with our limbs. I replied simply to reassure you that having a scan is the correct thing to do and your medical team are right onto it by the sounds of things. I know you will be worried but you will not know any more until a positive diagnosis is made. Best you can do now is love and support.
Glenn

 

[geroleary]

Sorry Ger, any dad would be worried and nothing I or anyone else says can alter that. In the case of our lad he unfortunately didn't survive his illness. I didn't really want to go into details because I don't want to unnecessarily alarm you. There are a multitude of things that can cause problems with our limbs. I replied simply to reassure you that having a scan is the correct thing to do and your medical team are right onto it by the sounds of things. I know you will be worried but you will not know any more until a positive diagnosis is made. Best you can do now is love and support.
Glenn

Oh god Glenn sorry to hear that news and sorry to bring it up. Thank you so much for your advice and support

 

[Crocodile]

No problem Ger. I was more concerned for you than me. This was way back in 2002 but seems like last week. I guess it's tomorrow over there by now so best of luck for you both. One thing about the MRI is that if a head and spine scan is being done it can get quite noisy and claustrophobic in the machine. At 13 the radiologist may suggest a sedative.

I know Ireland quite well, where abouts do you live.
Glenn

 

[geroleary]

No problem Ger. I was more concerned for you than me. This was way back in 2002 but seems like last week. I guess it's tomorrow over there by now so best of luck for you both. One thing about the MRI is that if a head and spine scan is being done it can get quite noisy and claustrophobic in the machine. At 13 the radiologist may suggest a sedative.

I know Ireland quite well, where abouts do you live.
Glenn

Ah thank you so much. I grew up in Dublin but now living in tipperary. My wife is with her which is better than me as I am not great inside the door of hospitals. It’s a lot to cope with diabetes Coeliac and please god nothing else.

 

[Crocodile]

Over here in Aussie I played a few years of GAA with a few mad Irish lads back in the 90s. Great fun. Haven't been over since '95. Overdue I think. Have an ex just over the county border from you in Limerick.

Hope it goes well for you today.
Glenn

 

[geroleary]

Over here in Aussie I played a few years of GAA with a few mad Irish lads back in the 90s. Great fun. Haven't been over since '95. Overdue I think. Have an ex just over the county border from you in Limerick.

Hope it goes well for you today.
Glenn

Ah good stuff the gaa is great. It’s a pity it’s a long way for you. Scan put off till tomorrow so another day to wait. Appreciate your support and hey if you do come over let me know.

 

[Crocodile]

Hope things work out for you today.
Glenn

 

[ickihun]

Hi all. Living in Ireland and decided to join this forum as Ireland seems to just adopt any new medicines from the Uk. My daughter was diagnosed oct 16 type 1 she has recently been diagnosed Coeliac. She is 13 the poor kid. She was tAking into hospital last week as she had week legs and a hand. She was let out and brought back today as things have not improved. They are doing an mri scan tomorrow. Has anyone ever gone through something similar. Thanks for reading this post from a worried sick dad.

I was just wondering if any new meds for your daughter before her attack? If sent home I'm guessing not life threatening? When is her MRI scan booked for, soon or next month?

I have weak legs and have difficulty walking but I have a nipped S1 in my pelvis so scatica too. My msk specialist said diabetes affects everything. Muscles, vessels, ligaments etc...
How is your daughter's diabetes hba1c levels?
Mine felt more like an attack then an injury.
I'm wishing your daughter well.
Getting the best results for sugar control is always beneficial. Has your daughter a good diabetic team?

 

[geroleary]

I was just wondering if any new meds for your daughter before her attack? If sent home I'm guessing not life threatening? When is her MRI scan booked for, soon or next month?

I have weak legs and have difficulty walking but I have a nipped S1 in my pelvis so scatica too. My msk specialist said diabetes affects everything. Muscles, vessels, ligaments etc...
How is your daughter's diabetes hba1c levels?
Mine felt more like an attack then an injury.
I'm wishing your daughter well.
Getting the best results for sugar control is always beneficial. Has your daughter a good diabetic team?

Hi there
Thanks so much for your reply and wishes . Her hb1c is around 8 I think wife is great at these things. She went in on Monday thinking scan would be Tuesday but still waiting. Diabetes is terrible I hope their will be a cure someday for everyone. I hope you get well that sounds awful.

 

[Diakat]

Is there any news @geroleary ?

 

[geroleary]

Hi there got the mri done Friday let her home still waiting on a phone call that’s the health service in ireland for you.

 

[Diakat]

Hi there got the mri done Friday let her home still waiting on a phone call that’s the health service in ireland for you.

At least she is home with you. Fingers crossed for decent news, guess they would have called/kept her in if they were too worried.

 

[geroleary]

Thank you so much that’s what I am telling myself no news is good news.

 

[Crocodile]

Good luck Ger. It does seem to be taking a long time though. I guess if there was something obvious you'd know by now. Hang in there, we're all rooting for you.

 

[ickihun]

How is she, you and your wife @geroleary ?

 

[geroleary]

Good luck Ger. It does seem to be taking a long time though. I guess if there was something obvious you'd know by now. Hang in there, we're all rooting for you.

Hi hope your well got results yesterday eventually scan showed nothing thank god. A blood test was a bit high could be Addison disease now too but they don’t know yet.

 

[ickihun]

Hi hope your well got results yesterday eventually scan showed nothing thank god. A blood test was a bit high could be Addison disease now too but they don’t know yet.

I'm thinking of your family @geroleary. Wishing best wishes.