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Hello From A Lurker :)

sleepster

Well-Known Member
Messages
751
Location
Northumberland
Type of diabetes
Type 1
Treatment type
Pump
Hello, I have been a lurker for a little while but thought I should start posting.
I am 30 and have type 1 diabetes. I was diagnosed nearly 21 years ago and have been using a pump since 2012.
I live in Newcastle upon Tyne but the diabetes clinic I attend is in Durham, where I used to live. I can't think of anything else interesting to share but I look forward to learning lots :)
 
Hello, I have been a lurker for a little while but thought I should start posting.
I am 30 and have type 1 diabetes. I was diagnosed nearly 21 years ago and have been using a pump since 2012.
I live in Newcastle upon Tyne but the diabetes clinic I attend is in Durham, where I used to live. I can't think of anything else interesting to share but I look forward to learning lots :)
Hello lurker, @sleepster . Welcome. If you have been around a while you have perhaps already seen the info @daisy1 posts for new members?
Now you have made yourself visible, I hope you will read, ask questions, and share experience.
 
Welcome to the forum @sleepster .
It’s always great to have a fellow T1 join the ranks. **
With 21 yrs experience I think you’ll probably teaching more than learning. Experience, which is the key to living with diabetes, is much valued by us all here.
Looking forward to having you posting with us:)

**Moderator edit to remove belittling comment about other members.
 
Last edited by a moderator:
@sleepster

Hello Sleepster and welcome to the Forum :) Here is the Basic Information we give to new members and I hope you will find it useful. Ask as many questions as you want and someone will be able to help.

BASIC INFORMATION FOR NEW MEMBERS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you'll find well over 235,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.

There are two approaches to controlling your carbs:
  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes.

Over 145,000 people have taken part in the Low Carb Program - a 10 week structured education course that is helping people lose weight and reduce medication dependency by explaining the science behind carbs, insulin and GI.

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:
  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic.

Note: This post has been edited from Sue/Ken's post to include up to date information.
Take part in Diabetes.co.uk digital education programs and improve your understanding. Most of these are free.

  • Low Carb Program - it's made front-page news of the New Scientist and The Times. Developed with 20,000 people with type 2 diabetes; 96% of people who take part recommend it... find out why

  • Hypo Program - improve your understanding of hypos. There's a version for people with diabetes, parents/guardians of children with type 1, children with type 1 diabetes, teachers and HCPs.
 
Hello lurker, @sleepster . Welcome. If you have been around a while you have perhaps already seen the info @daisy1 posts for new members?
Now you have made yourself visible, I hope you will read, ask questions, and share experience.
Thank you, I have seen the info for new members, but have just had a re-read of it :)


Welcome to the forum @sleepster .
It’s always great to have a fellow T1 join the ranks. **

With 21 yrs experience I think you’ll probably teaching more than learning. Experience, which is the key to living with diabetes, is much valued by us all here.
Looking forward to having you posting with us:)
Thanks, I have learnt a lot already since finding this forum, to be honest I had no idea there were so many types of diabetes! I don't really know anyone else with diabetes and do sometimes feel quite clueless about it all. I haven't had much in the way of diabetes education but have started the online BERTIE course so fingers crossed I will find some useful information from that.
Mode edit of quoted post
 
Hello, I have been a lurker for a little while but thought I should start posting.
I am 30 and have type 1 diabetes. I was diagnosed nearly 21 years ago and have been using a pump since 2012.
I live in Newcastle upon Tyne but the diabetes clinic I attend is in Durham, where I used to live. I can't think of anything else interesting to share but I look forward to learning lots :)

Hi sleepster,

had to write as I’m from Newcastle originally, so welcome from a fellow northerner.

I‘m new too and I was a lurker for a while. I think the forum is amazing. I found out about it quite by accidenti. I think it would be great if all diabetes specialists, doctors and diabetes nurses would recommend the forum to all their patients, even though I’ve been diabetic for just over thirty years I have learnt so much and continue to learn from everyone here. I tell everyone I meet about it even if I live abroad now.

It’s nice to feel you’re not alone too ... especially when you are having a particularly hard time managing it. I had no idea for example there was such a thing as diabetic burn out ... I‘ve had it a few times over the years but I didn’t realize it was recognized ... and had a name!!! I also had no idea of all the different types of diabetes aside from type 1, 2, 1.5 and gestational diabetes. I thought that was it.

I think apart from all the info and support on this forum.. the fact that you know everyone else gets you and diabetes.... you don’t have to try and explain for the millionth time about hypos etc.. that it’s not just a question of injecting insulin and everything is fine... and when it goes wrong mostly it’s not my fault, sometimes diabetes just does what it wants and decides to act up for a week or two and then goes back to normal on its own...

I think finally finding people whose stories/experiences you read and can relate to and identify with and learn from is for me greatly comforting and helpful in many ways.

Best wishes

Gemma

Ps Newcastle General Hospital has an excellent diabetes clinic if you ever have to find one in town rather than travel to Durham.
 
Hi sleepster,

had to write as I’m from Newcastle originally, so welcome from a fellow northerner.

I‘m new too and I was a lurker for a while. I think the forum is amazing. I found out about it quite by accidenti. I think it would be great if all diabetes specialists, doctors and diabetes nurses would recommend the forum to all their patients, even though I’ve been diabetic for just over thirty years I have learnt so much and continue to learn from everyone here. I tell everyone I meet about it even if I live abroad now.

It’s nice to feel you’re not alone too ... especially when you are having a particularly hard time managing it. I had no idea for example there was such a thing as diabetic burn out ... I‘ve had it a few times over the years but I didn’t realize it was recognized ... and had a name!!! I also had no idea of all the different types of diabetes aside from type 1, 2, 1.5 and gestational diabetes. I thought that was it.

I think apart from all the info and support on this forum.. the fact that you know everyone else gets you and diabetes.... you don’t have to try and explain for the millionth time about hypos etc.. that it’s not just a question of injecting insulin and everything is fine... and when it goes wrong mostly it’s not my fault, sometimes diabetes just does what it wants and decides to act up for a week or two and then goes back to normal on its own...

I think finally finding people whose stories/experiences you read and can relate to and identify with and learn from is for me greatly comforting and helpful in many ways.

Best wishes

Gemma

Ps Newcastle General Hospital has an excellent diabetes clinic if you ever have to find one in town rather than travel to Durham.
They also train world class nephrologists - I see one regularly in Cambridge!
 
Hello, I have been a lurker for a little while but thought I should start posting.
I am 30 and have type 1 diabetes. I was diagnosed nearly 21 years ago and have been using a pump since 2012.
I live in Newcastle upon Tyne but the diabetes clinic I attend is in Durham, where I used to live. I can't think of anything else interesting to share but I look forward to learning lots :)
welcome here Sleepster :):):)
 
Sunderland diabetic unit is very very good too if you're working nearer to ours.
Welcome to the forum, in full. :)

A good friend of mine was type1 for decades but it makes me no expert. Type2 is a more personal disease to me but I still fear the same as any type1. Which I fight to avoid.
Welcome to keeping each other right. You're imput will be useful and I'm sure reassuring.
 
Thank you everyone for your kind messages.
Thank you for the recommendations for diabetes clinics too, I used to go to the clinic at Newcastle General when I was a teenager, I'm sure it has changed a lot since then, but I really like the clinic in Durham, I do appreciate the recommendations though :)
 
Hi @sleepster,
I say welcome, standing on my head relative to you, here in Australia. At the 45 year mark on insulin I switched to a pump and have not looked back. Too stubborn to have started much earlier. Now at the 51 year mark and going strong. I cannot match the history of Newcastle here in Adelaide but the weather is probably milder here in winter. By contrast our 40 degree C maximum summer temperatures save on heating costs (but not cooling ones)! Best Wishes.
 
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