Type 1'stars R Us

[karen8967]

good morning everyone looking forward to wedding party tonight for all the people who couldnt come with us for the actual wedding hope everyone has a great weekend

 

[smc4761]

Hang in there @smc4761, After 45 years on the injections I switched over to a pump. Best thing I ever did and now 7 years, 'young' on the pump. Night hypos zilch, HBA1C around the 48 mark for most of that time. Yes, it takes time to get used to it, they all have quirks but I would never go back to injections !! Best Wishes.

Thanks for the positive reply. To be honest if my HBA1C is ever going to improve, its arounds 65, I know that potentially the pump will help enormously. Think I will need to do a wee bit of research, YouTube is a wonderful resource, if a little Americanised

Hope you all have a good day

 

[kev-w]

Glad you are getting on with Tresiba mate. I am desperate to get on the pump now. I will be phoning the diabetic clinic on Monday to try and find out why my appointment is taking so long coming thru.

Cheers Porl I can imagine the frustration of waiting and 46 years is a long time of doing something to be kept waiting to change if the change has been offered, pestering is always a good option when it's the NHS you're dealing with, as a mate of mine would say "shy boys get no toys"....

Hi Kev, I'm the same 37 years of injecting and the DSN is recommending I go onto a pump. I am a bit petrified at the thought of this, looks like a lot of work programming, having to move the canula every couple of days. I am a restless sleeper what if tube pops out. The hassle at airport with a pump Is it worth it?

I have recently moved to 6 m needles from 8m ones and find the bruising has almost stopped now.
My control though despite a huge effort over past 3 months whilst better is still not great still getting big spikes and libre readings that look like the Alps at times. No consistency with my BG maybe the pump is answer.
I am looking forward to reading about Mel's experiences over next few week/months
Night night folks have a good overnight BG

I think to try the pump you need to decide if it's the answer, for me personally I can't see an attraction, but I'm clumsy, a bit of a luddite and deeply distrustful of electrickery and dislike change, I've never looked deeply at pumps but enjoy reading about the positive aspects of wearing one.

And that leads me to my Tresiba question woke at 4.5 and within 15 minutes dropped to 3,8 and this seems to be a pattern on a morning, if I get up at 7am I miss the drop as I'm eating but sleep ins seem to be a no no, so reduce basal by a unit or move basal time forward 8 hours?

Oh aye and good morning y'all enjoy the weekend.

 

[kitedoc]

Morning all, am I first on parade? Well. So much for uninterrupted sleep... I was woken at sparrow fart by my “urgent high glucose” alarm (>12mmol), after a deceptively easy first day I think I’m in for a baptism of fire/sharks or possibly even burning sharks. A fiery sharknado. Looks like the monthly insulin resistance has started, on my second day ever on a pump, on a Saturday when I can’t get hold of the clinic to ask for advice in setting up a new basal profile or even what to do... yay.

So.... I’ve whacked it on a temporary increase of 50% for 12 hours to see what happens (plus a 4u correction dose) and I’m down to the high sixes now. Now that I have coffee in hand, I’ll figure out how set up a new profile for this, and set it to that.

And to top it off, husband has decided that for his birthday (we both have them this week) he wants to go to Hay on Wye. By motorcycle. Which is normally a lovely thing, I adore all the bookshops. But I need to keep an eye on my levels and react quickly to anything that needs tweaking today, so I shall negotiate and see if he minds driving instead... I’m also thinking of the practicalities of wandering around wearing bike kit on potentially one of the hottest days of the year vs a couple of hours in my Ford Fridge and a floaty frock here!

Hope you all have a great day - anyone got anything nice planned?

Still got that sneaking feeling I’ve forgotten to do something...

Hi@Mel dCP the 50% increase in basal might give you a good idea, and maybe you could think about whether the bolus needs a % increase also. since the resistance affects the insulin effect either way. You might even wish to keep up a % increase over the w/e. I have done this at 30% basal and bolus for daytime hours and 20% basal and bolus night hours for 4 days after 'flu vaccination. Just a thought based on pump education and whilst waiting to get in touch with your dsn/pupm prescriber.
Enjoy the outing/birthdays and maybe the Omnibot would get chafed by wearing bike gear too long so by car is safer until you have had time to trial shorter bike rides ??

 

[kitedoc]

Cheers Porl I can imagine the frustration of waiting and 46 years is a long time of doing something to be kept waiting to change if the change has been offered, pestering is always a good option when it's the NHS you're dealing with, as a mate of mine would say "shy boys get no toys"....



I think to try the pump you need to decide if it's the answer, for me personally I can't see an attraction, but I'm clumsy, a bit of a luddite and deeply distrustful of electrickery and dislike change, I've never looked deeply at pumps but enjoy reading about the positive aspects of wearing one.

And that leads me to my Tresiba question woke at 4.5 and within 15 minutes dropped to 3,8 and this seems to be a pattern on a morning, if I get up at 7am I miss the drop as I'm eating but sleep ins seem to be a no no, so reduce basal by a unit or move basal time forward 8 hours?

Oh aye and good morning y'all enjoy the weekend.

The squeaky wheel gets the grease.

 

[LooperCat]

@Mel dCP

How do you change the dosage on the pump?

Is it via and App?

If it is are you going to try and setup a 'closed loop' where the libre, phone and pump all talk to each other?

That is once you get the hang of it

It’s controlled by what is quite frankly a very clunky handset. Very stiff buttons that you have to press repeatedly to get to the right menu - there’s a lot of room for improvement on that front! I understand they are developing an app for a smartphone, which will make life an awful lot more streamlined. So you set up a basal programme, with how much you want delivering and over what time frame - I have mostly 0.6u per hour with a bit more at dawn and a bit less at teatime, and that’s set as a default. You can set a “temporary basal” where you can increase or decrease it by your desired amount for however long you want - I was dipping a bit below 5 yesterday and had to drive in a while, so I dropped it by 50% for half an hour and it brought it up enough to drive with no glucose required. That’s going to be super useful, I’ll be reading “Sugar Surfing” again, I think.

I imagine looping isn’t too far off either, but it’s not possible with Omnipod just now. The iPhone data collection app Spike and the MiaoMiao are totally unlicensed “biohacker” tech, totally unofficial and not endorsed by the NHS or FDA, so you very much use this kit at your own risk. The control unit for the pod has an integrated meter too, so I’m doing a blood first thing, and using that reading to calibrate the Libre readings I’m getting via the transmitter. That way the readings on my watch seem to be much more accurate than using the Libre app and scanner - much closer to blood plus fifteen minutes.

Ugh, I’m at 10.5 now - looks like even 150% isn’t going to be enough

 

[LooperCat]

Hi@Mel dCP the 50% increase in basal might give you a good idea, and maybe you could think about whether the bolus needs a % increase also. since the resistance affects the insulin effect either way. You might even wish to keep up a % increase over the w/e. I have done this at 30% basal and bolus for daytime hours and 20% basal and bolus night hours for 4 days after 'flu vaccination. Just a thought based on pump education and whilst waiting to get in touch with your dsn/pupm prescriber.
Enjoy the outing/birthdays and maybe the Omnibot would get chafed by wearing bike gear too long so by car is safer until you have had time to trial shorter bike rides ??

Thank you, this is really helpful. I got my manual out and set up a new basal profile named Shark Week which is basically my default one that worked so well yesterday plus 50% of everything. I think I need to add 50% to the correction doses too - perhaps up everything to 180% tomorrow if it looks like the 150% isn’t enough. Looking back on my injection records, I’ve been needing almost double the insulin, but that was with a fixed dose of Tresiba.

@kev-w - maybe drop it by a unit, it’s got such a long lasting and flat profile that I don’t think changing your dose time would make any difference. They told me that even a 12 hour delay in shooting up would make zero difference to the cover it provides. The unit drop will take a day or three to take effect, in case they hadn’t told you that

 

[Alison54321]

You know posting something like that on here when me, @therower & @porl69 are around can lead to so many FNARR FNARR FNARR comments

Dear me! I'm practising my guitar to create a smooth transition through some chord changes G, Gsus4, C/G, Csus4, Am, Am7, Am7sus4, Em/G, Em7, Dsus4/G, G7. I hope to get it sufficiently smooth to record a very bad demo of it in the next few days.

It's an acoustic folkie thing, that explores the power of the Logres, so Abba fans wouldn't like it.

 

[kitedoc]

Dear me! I'm practising my guitar to create a smooth transition through some chord changes G, Gsus4, C/G, Csus4, Am, Am7, Am7sus4, Em/G, Em7, Dsus4/G, G7. I hope to get it sufficiently smooth to record a very bad demo of it in the next few days.

It's an acoustic folkie thing, that explores the power of the Logres, so Abba fans wouldn't like it.

Hi @Alison54321, you lost me against G !!

 

[kitedoc]

Thank you, this is really helpful. I got my manual out and set up a new basal profile named Shark Week which is basically my default one that worked so well yesterday plus 50% of everything. I think I need to add 50% to the correction doses too - perhaps up everything to 180% tomorrow if it looks like the 150% isn’t enough. Looking back on my injection records, I’ve been needing almost double the insulin, but that was with a fixed dose of Tresiba.

@kev-w - maybe drop it by a unit, it’s got such a long lasting and flat profile that I don’t think changing your dose time would make any difference. They told me that even a 12 hour delay in shooting up would make zero difference to the cover it provides. The unit drop will take a day or three to take effect, in case they hadn’t told you that

That sounds as though it would work @Mel dCP, given the doubling required in the past. I was always told that the pump is likely to be a bit more efficient dose than injections so 180% (usual +80%) sounds safer than going to 200% (usual +100, also I tend to ease back the night time basal % increase a little only 'cos I fear nighttime hypos !!

 

[hh1]

I’m intrigued!


I was a bit apprehensive about the programming too, but I’ve been doing a lot of data collecting over the last few months, so have been able to work out how much a unit of insulin or 10g carbs affects my levels at different times of day. So with that information, we were able to set up a basal programme that reflects those figures - a bit more in the small hours to hit the DP, and a bit less late afternoon when I tend to have a slump. It’ll need tweaking but we’re in the right ball park. I’ll make the morning boost last a bit longer I think, when I’ve got some more numbers to look at. Wasn’t expecting the massive change today, so am literally making it up as I go along. But with the Libre+MiaoMiao I can monitor my levels very closely on my watch and react quickly. They’re so helpful and knowledgeable at my clinic, plus I have advice from other people using it in one of my Facebook groups.

Thanks Mel though I think that's what I mean - you've been incredibly disciplined and kept immaculate records of everything, and I'm not sure I'm up to that. I'd also baulk at the thought of getting on board with the technology you use; I think it's fab, I'm simply not good at researching those kinds of things, prefer to be shown how to use them. I do though love the thought of real-time control (well nearly) rather than continuous tail-chasing. Good luck with it today!

 

[Alison54321]

Hi @Alison54321, you lost me against G !!

I did say it was only interesting to me.

 

[kev-w]

Dear me! I'm practising my guitar to create a smooth transition through some chord changes G, Gsus4, C/G, Csus4, Am, Am7, Am7sus4, Em/G, Em7, Dsus4/G, G7. I hope to get it sufficiently smooth to record a very bad demo of it in the next few days.

It's an acoustic folkie thing, that explores the power of the Logres, so Abba fans wouldn't like it.

Dsus4/G? Are you playing that with your thumb on G? I don't think my guitar has all those chords tbh

 

[smc4761]

Thanks Mel though I think that's what I mean - you've been incredibly disciplined and kept immaculate records of everything, and I'm not sure I'm up to that. I'd also baulk at the thought of getting on board with the technology you use; I think it's fab, I'm simply not good at researching those kinds of things, prefer to be shown how to use them. I do though love the thought of real-time control (well nearly) rather than continuous tail-chasing. Good luck with it today!

HH, maybe have a look at Youtube, real people sharing their experiences, good and bad. I used that as a resource when checking out the Libre and found most videos fairly informative. It will give you maybe a little guidance

 

[kitedoc]

I did say it was only interesting to me.

But I appreciate that is your special skill and knowledge. We all have learnt jargon, symbolic knowledge and language as notation for expression in literature, music, maths etc. Each of us is unique. That is fascinating !!!

 

[LooperCat]

That sounds as though it would work @Mel dCP, given the doubling required in the past. I was always told that the pump is likely to be a bit more efficient dose than injections so 180% (usual +80%) sounds safer than going to 200% (usual +100, also I tend to ease back the night time basal % increase a little only 'cos I fear nighttime hypos !!

I think I’ll run at the 150% today with corrections, and see about upping it tomorrow. I do have alarms if I drop below 4 at night, so I’m not so worried about that. It also goes off loudly if I drop (or rise) quickly, so I feel pretty relaxed about overnight.

Thanks Mel though I think that's what I mean - you've been incredibly disciplined and kept immaculate records of everything, and I'm not sure I'm up to that. I'd also baulk at the thought of getting on board with the technology you use; I think it's fab, I'm simply not good at researching those kinds of things, prefer to be shown how to use them. I do though love the thought of real-time control (well nearly) rather than continuous tail-chasing. Good luck with it today!

I’ve got quite a sciencey background, so feel quite comfortable with equipment and analysing numbers. But I understand totally that it would put a lot of people off! I’m also quite up for experimenting on myself, and am quite content to fiddle about with things - very much of the “if it ain’t broke, fix it until it is” school of tinkering

Dear me! I'm practising my guitar to create a smooth transition through some chord changes G, Gsus4, C/G, Csus4, Am, Am7, Am7sus4, Em/G, Em7, Dsus4/G, G7. I hope to get it sufficiently smooth to record a very bad demo of it in the next few days.

It's an acoustic folkie thing, that explores the power of the Logres, so Abba fans wouldn't like it.

That sounds fabulous! I love playing my guitar, even though I’m terrible at it. I can manage about four chords confidently, the others require three weeks written notice Mind you, we have a household trombone that nobody can really play, other that using it as a giant swanny whistle, and blasting it off the mountain at the bottom of the garden to echo up the valley.

Yay! 10.7 but falling. Nice to see a downward arrow at last...

 

[Alison54321]

Dsus4/G? Are you playing that with your thumb on G? I don't think my guitar has all those chords tbh

No, I approach chords from the most efficient point of view, as few fingers used as possible, so it's G on the high E, 2nd fret on the B, and they are all open except G on the 6th string, and I use my first finger. So only three fingers of the left hand are used.

I'm fingerpicking, so if any strings sounded too weird I could carefully avoid them.

 

[kev-w]

No, I approach chords from the most efficient point of view, as few fingers used as possible, so it's G on the high E, 2nd fret on the B, and they are all open except G on the 6th string, and I use my first finger. So only three fingers of the left hand are used.

I'm fingerpicking, so if any strings sounded too weird I could carefully avoid them.

That one?

 

[Alison54321]

View attachment 27877
That one?

That looks about right.

 

[Alison54321]

@kev-w I decided to use a fingerpicking pattern that used the lower strings a lot, so I added the low G into a few of the chords. I'll be quite pleased with it, I think, if I can ever play it properly.