Hello all,
I am new to this forum and this is my first post (apologies it’s a long one)
I am type 1 and have been for 6 years. At first I was regimented and tested all the time. Things were good for 2/3 years.
Life changed, I lost my job but was gifted an amazing and gorgeous little boy, I got a new job but this was temporary. I struggled to find work after this and this is where everything changed.
I felt/feel like life has gone into a downward spiral. Injecting myself and testing all the time became a challenge particularly when the results were as bad and sporadic as they were. My diabetic team “lost me” in the system and i was not followed up for over 3 years during which I spiralled into a depressed state, unable to talk to family and friends through fear or upsetting them, always putting on a brave face, but unable to get back to testing through fear of results and also the pain of blood testing.
I had been reading up on the non prick CGM testing and this gave me the confidence and courage to speak to my nurse who then put me in contact with the diabetic team. Having visited the team I was elated to be given the chance of a free trial. I couldn’t wait to tell people, I used it so much and for a week felt like things were going really well, results seemed good and I was able to keep a steady ish rate. I felt like the old me..... then going back the following week I was given the gut wrenching news I didn’t meet the criteria for NHS prescription.
I know that a lot of people will also have had this news and as such I’m reaching out.
I can not afford to self fund this and I just feel lost again.
Where do I go from here? I physically cannot go back to finger prick testing. It has now become such an issue I haven’t tested at all since god knows when and I’m playing roulette with guessing insulin volumes.
I don’t want to give up I just feel lost and alone.
I am new to this forum and this is my first post (apologies it’s a long one)
I am type 1 and have been for 6 years. At first I was regimented and tested all the time. Things were good for 2/3 years.
Life changed, I lost my job but was gifted an amazing and gorgeous little boy, I got a new job but this was temporary. I struggled to find work after this and this is where everything changed.
I felt/feel like life has gone into a downward spiral. Injecting myself and testing all the time became a challenge particularly when the results were as bad and sporadic as they were. My diabetic team “lost me” in the system and i was not followed up for over 3 years during which I spiralled into a depressed state, unable to talk to family and friends through fear or upsetting them, always putting on a brave face, but unable to get back to testing through fear of results and also the pain of blood testing.
I had been reading up on the non prick CGM testing and this gave me the confidence and courage to speak to my nurse who then put me in contact with the diabetic team. Having visited the team I was elated to be given the chance of a free trial. I couldn’t wait to tell people, I used it so much and for a week felt like things were going really well, results seemed good and I was able to keep a steady ish rate. I felt like the old me..... then going back the following week I was given the gut wrenching news I didn’t meet the criteria for NHS prescription.
I know that a lot of people will also have had this news and as such I’m reaching out.
I can not afford to self fund this and I just feel lost again.
Where do I go from here? I physically cannot go back to finger prick testing. It has now become such an issue I haven’t tested at all since god knows when and I’m playing roulette with guessing insulin volumes.
I don’t want to give up I just feel lost and alone.
