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Diabulimia

C

Cazzybee

Newbie
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4
Hello
I rarely speak about my health, so here goes.
I’m a type 1 diabetic and was diagnosed at 2, I’ve had diabetes nearly 46 years.
I was the 5th child in the country.
Back in the days of glass syringes you had to boil every time it was used.
There was no blood tests I had to test with urine.
It was very controlled, my parents had to weigh every single thing with carbs in.
I first developed my eating disorder at 17, it was unheard of in then days, I missed injections, because I was needle phobic that has only recently been added to my hospital notes. Through my twenties I was admitted to hospital every few weeks with DKA
I surprised I’m still alive, I have got problems with my eyes neuropathy and the worst kidneys.
I did really well to get out of diabulimia, and had the last 10 years free of DKA and hospitals, I did it myself as I suffer extreme anxiety and couldn’t cope seeing a counsellor.
I worry all the time how easy it is to slip back into it, my kidney consultant recently said I would need a new kidney within 1-5 years, which terrifies me, so what did I do slip back into old habits, I’ve had another admittance a month ago,
I do see a renal counsellor and my diabetes nurse has been with me every step of the way.
What’s hard is the virus, obviously I can’t see either of them till outpatient appointment resume and who knows when that will be.
 
Cazzybee said:
Hello
I rarely speak about my health, so here goes.
I’m a type 1 diabetic and was diagnosed at 2, I’ve had diabetes nearly 46 years.
I was the 5th child in the country.
Back in the days of glass syringes you had to boil every time it was used.
There was no blood tests I had to test with urine.
It was very controlled, my parents had to weigh every single thing with carbs in.
I first developed my eating disorder at 17, it was unheard of in then days, I missed injections, because I was needle phobic that has only recently been added to my hospital notes. Through my twenties I was admitted to hospital every few weeks with DKA
I surprised I’m still alive, I have got problems with my eyes neuropathy and the worst kidneys.
I did really well to get out of diabulimia, and had the last 10 years free of DKA and hospitals, I did it myself as I suffer extreme anxiety and couldn’t cope seeing a counsellor.
I worry all the time how easy it is to slip back into it, my kidney consultant recently said I would need a new kidney within 1-5 years, which terrifies me, so what did I do slip back into old habits, I’ve had another admittance a month ago,
I do see a renal counsellor and my diabetes nurse has been with me every step of the way.
What’s hard is the virus, obviously I can’t see either of them till outpatient appointment resume and who knows when that will be.
Click to expand...

Cazzybee - I'm not T1, so diabulimia wouldn't be part of my world, but I did live with an eating disorder in my 20s, so I can appreciate some of the compelling feelings you are likely to feel sometimes.

I appreciate you can't see anyone face-to-face, but I wonder if you and your counsellor or DSN could do something over the phone? That might be a decent compromise at the moment.

I had an Endo appointment on Friday, and it worked fairly well. Of course, it would be much better face-to-face, but maybe it could be something to ponder?
 
I live in Manchester part of my anxiety is I can’t use phones
At the moment I’m emailing my DSN so she is still providing support, she knows me better than I know myself.
My counsellor would be able to do phone contact, but can’t do email contact.
I’m managing at the minute with the support from my nurse and my partner.
I’m keeping positive.
My kidney consultant is upset because it’s gone off my records that I had diabulimia only it wasnt called that then.
And for the transplant I needed to lose 6 stone.
I used to weigh 17 stone, because weight wasn’t an issue for the last 10 years.
So I just stopped eating I’ve lost 7 stone in 8 months so obviously not an ideal way.
 
Hello Cazzybee I just want to say welcome to the forum:-) Well done to be out of diabulimia. I haven’t had it myself but it is quite common and must be very very difficult.
 
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