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Any examples of neuropathy with late onset T1D?

Wee eck

Member
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12
I’m late onset T1D (2 years ago) at 67 but now experiencing nerve type issues … very tender finger tips, stiff wrists, carpal tunnel syndrome, soles of feet, persistent diarrhoea. I monitor glucose levels well with Libre 2.
Professional advice appears only to link neuropathy to long term T1D and poor glucose monitoring.
Unless someone knows differently?
 
Out of interest are you confirmed as type 1 taking insulin? The only thing that springs to mind is that some people have gradually run out of insulin as undiagnosed type 2 or 1.5 so might have had damage occurring over a long period of years which is the normal cause of damage to the micro vessels.
As I recall the normal time from diagnosis to damage is about 20 years of abnormal glucose levels but I suppose its possible age has made this process more acute?
Sorry and I hope you can get help stabilising the symptoms which do sound like gastroparesis and neuropathy but perhaps need confirming as being linked to your diagnosis.
 
Thanks Nicole. My GP checked back and my blood glucose result a year before onset of T1D was normal.
I should add a few other conditions since the diagnosis…. taste sensation has reduced (with no knowledge of Covid infection). Dry mouth which is sensitive to hot drinks or food.
I am indeed on insulin.
 
Thanks Nicole. My GP checked back and my blood glucose result a year before onset of T1D was normal.
I should add a few other conditions since the diagnosis…. taste sensation has reduced (with no knowledge of Covid infection). Dry mouth which is sensitive to hot drinks or food.
I am indeed on insulin.

If your GP had blood glucose results going back more than a year, that might be helpful. And as I wind up reminding every new doctor I see, the answer doesn’t always have to be the diabetes to the exclusion of everything else.
 
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