Don't forget that if you want to comment on the NICE hybrid closed loop TA, it has to be done by 5pm today. Follow this link:
-
Guest - w'd love to know what you think about the forum! Take the 2025 Survey »
Final day for comments on NICE Hybrid Closed Loop consultation.
- Thread starter tim2000s
- Start Date
sninge
Well-Known Member
Thank you. I've just done it despite being lucky enough to have got funded before Christmas. The proposed criteria is so wrong and I've told them so. Nobody can complain about it if they don't speak up for themselves!
EJTC
Active Member
- Messages
- 33
- Location
- Redbrigde UK
- Type of diabetes
- Type 1
- Treatment type
- Insulin
- Dislikes
- Waking up in the night with a hypos and a loss of sensor alarms from CGM
Does anyone know when we will be notified about the outcome?
oldgreymare
Well-Known Member
- Messages
- 589
- Location
- UK and SE Asia
- Type of diabetes
- Type 1
- Treatment type
- Pump
- Dislikes
- Commuting, overcrowded spaces, especially after the arrival of covid-19...
The publication status on the NICE website is TBC. I think it typically takes 4-6 months before a final version is approved.
EJTC
Active Member
- Messages
- 33
- Location
- Redbrigde UK
- Type of diabetes
- Type 1
- Treatment type
- Insulin
- Dislikes
- Waking up in the night with a hypos and a loss of sensor alarms from CGM
Wow, to me that sounds like a long time to wait.
D
Deleted member 567885
Guest
I'd follow Professor Partha Karr (diabetologist) on Twitter as he seems to have the heads up on when new tech is getting approved. When the regional entities then update their policies is another matter. Fingers crossed anyway. I've got funded closed loop and its been as big a thing for me as the fsl was previously.
EJTC
Active Member
- Messages
- 33
- Location
- Redbrigde UK
- Type of diabetes
- Type 1
- Treatment type
- Insulin
- Dislikes
- Waking up in the night with a hypos and a loss of sensor alarms from CGM
Thank you, I will start to follow Professor Karr.
It's going to take a long time. This one has had many responses, not only giving opinions on how the decision process included in it is wrong, but also providing data relating to topics they touched on but didn't investigate fully, which will need to be reviewed. A definite slow burner.
