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Starting again…. again

BarbaraG

Well-Known Member
Messages
294
Type of diabetes
Type 2
Treatment type
Non-insulin injectable medication (incretin mimetics)
OK, very brief history. I was diagnosed with T2 aged 34, I am now 60. I have a long history of weight cycling through alternately strict dieting and binge eating. I no longer “diet” as it presses all the wrong buttons mentally. I periodically have periods of eating better and doing more exercise, I have done low carb - indeed, keto - in the past, but not for a few years. The weight cycling has reduced considerably - over the past 2 years I’ve been within a range of about a stone, as against 8 stone previously, and I’m currently about 3.5 stone lower than my all time high.

I’ve been on metformin forever, and on Trulicity (weekly injection) for 4 years, and HbA1C has been low 50’s the past few years. Not ideal, but not high enough for either the practice nurse or me to do anything about it. Until this week - annual review, HbA1C came back at 71. All other bloods fine, no sign of complications.

As it happens, my husband and I had mutually agreed we were going to improve our diet and get more active once we’d got past Christmas and New Year. . So I’m shifting our meals towards whole foods, more vegetables and pulses, and away from ready meals and a lot of sweet stuff and crisps. We have rejoined our local leisure centre for (in my case) gym, swimming and exercise classes. I told her all that and said how about we retest in 3 months and see how I’m doing. She pushed to start the additional med now, we can always stop it again if I do well with diet and exercise.

So, when the prescription comes through I will be starting on one of the meds which makes you pee out more glucose. I really hope I can make it temporary! Can I ask anyone who is/has been on one of those - does the frequent peeing continue as long as you’re on it, or does it reduce? I knew my HbA1C would come back high as I’ve been getting up several times in the night to go. I don’t fancy that as a permanent part of life.

She told me that in her experience, Trulicity seems to have an effective life of 3-4 years, after which it doesn’t work as well. They didn’t tell me that when I started it! It dropped my HbA1C from 86 to low 50’s when I first started on it, and some weight came off as well.

Anyhow - I know, like I’ve always known, that diet and exercise are the best way. So, here I go again….

Oh - and I’ve ordered a couple of Freestyle Libre sensors to get some feedback. I’ll use one before I start the new med, so I can see what immediate difference it makes. And then the second one maybe a month in, to see how things are changing. Obviously it all works together: cutting carbs will give an immediate reduction in BG, as will exercise, and the combination will result in some weight loss which will improve insulin sensitivity.
 
So, when the prescription comes through I will be starting on one of the meds which makes you pee out more glucose. I really hope I can make it temporary! Can I ask anyone who is/has been on one of those - does the frequent peeing continue as long as you’re on it, or does it reduce? I knew my HbA1C would come back high as I’ve been getting up several times in the night to go. I don’t fancy that as a permanent part of life.
I can only speak from my own experience and I've only been on an SGLT2 inhibitor for 3 weeks, but I did not notice any change in how frequently I peed or get any sudden urges to pee.

In my case though it's my habit to drink lots of water all day long. I always have a pint of water or a coffee beside me at the computer or watching TV. As such I pee fairly regularly, though I never wake up in the middle of the night and have to go. I think the effect of this type of medication is probably very personal to the individual. I hope it works out for the best for you.
 
I’m on Forxiga which is a SGLT2 inhibitor I think. When I first started it and ate 2 high carb meals in succession (including cake! well it was my birthday) it caused me to have thrush. But once I realised that if I stuck to low carb foods I didn’t get any symptoms. It’s lowered my BG into single figures (between 5-7) where before it was 14-17 bracket. I’m on 2000mg of metformin a day as well. As long as this combo keeps me off having to have insulin I’m happy
 
OK, very brief history. I was diagnosed with T2 aged 34, I am now 60. I have a long history of weight cycling through alternately strict dieting and binge eating. I no longer “diet” as it presses all the wrong buttons mentally. I periodically have periods of eating better and doing more exercise, I have done low carb - indeed, keto - in the past, but not for a few years. The weight cycling has reduced considerably - over the past 2 years I’ve been within a range of about a stone, as against 8 stone previously, and I’m currently about 3.5 stone lower than my all time high.

I’ve been on metformin forever, and on Trulicity (weekly injection) for 4 years, and HbA1C has been low 50’s the past few years. Not ideal, but not high enough for either the practice nurse or me to do anything about it. Until this week - annual review, HbA1C came back at 71. All other bloods fine, no sign of complications.

As it happens, my husband and I had mutually agreed we were going to improve our diet and get more active once we’d got past Christmas and New Year. . So I’m shifting our meals towards whole foods, more vegetables and pulses, and away from ready meals and a lot of sweet stuff and crisps. We have rejoined our local leisure centre for (in my case) gym, swimming and exercise classes. I told her all that and said how about we retest in 3 months and see how I’m doing. She pushed to start the additional med now, we can always stop it again if I do well with diet and exercise.

So, when the prescription comes through I will be starting on one of the meds which makes you pee out more glucose. I really hope I can make it temporary! Can I ask anyone who is/has been on one of those - does the frequent peeing continue as long as you’re on it, or does it reduce? I knew my HbA1C would come back high as I’ve been getting up several times in the night to go. I don’t fancy that as a permanent part of life.

She told me that in her experience, Trulicity seems to have an effective life of 3-4 years, after which it doesn’t work as well. They didn’t tell me that when I started it! It dropped my HbA1C from 86 to low 50’s when I first started on it, and some weight came off as well.

Anyhow - I know, like I’ve always known, that diet and exercise are the best way. So, here I go again….

Oh - and I’ve ordered a couple of Freestyle Libre sensors to get some feedback. I’ll use one before I start the new med, so I can see what immediate difference it makes. And then the second one maybe a month in, to see how things are changing. Obviously it all works together: cutting carbs will give an immediate reduction in BG, as will exercise, and the combination will result in some weight loss which will improve insulin sensitivity.
I just finished a libre 2 trial and it was invaluable to me in managing carbs reduction. It’s good that you’re cutting carbs. I was on Invokana a few years back and peed out too much glucose which caused thrush problems and left me feeling raw and sore so much that I had to stop it. I was less carb aware then. I’m intending to self fund a CGM as it’s keeping me on track to reach pre diabetic numbers.
 
I just had a thought…. I started on a statin just under a year ago, they can increase BG, can’t they?
 
Just wanted to say that pulses are generally pretty high in carbohydrate. There are several exceptions (black soybeans and lupini beans) but they can be difficult to source.
I wore the Freestyle libre pretty constantly for the first year of diagnosis and also logged carbohydrate on an app so I got a very good idea of how to keep my blood sugar at a more healthy level and which foods to include or avoid.
Websites like diet doctor gave me good low carb recipes.
At present I am 8 years in from diagnosis and I just take 1000mg Metformin a day, with my blood sugar in non diabetic range.
 
Just wanted to say that pulses are generally pretty high in carbohydrate. There are several exceptions (black soybeans and lupini beans) but they can be difficult to source.
I wore the Freestyle libre pretty constantly for the first year of diagnosis and also logged carbohydrate on an app so I got a very good idea of how to keep my blood sugar at a more healthy level and which foods to include or avoid.
Websites like diet doctor gave me good low carb recipes.

@Angelofthemarches has said exactly what I came here to say, in particular about the pulses.
 
Ah yes, good point about the carbs in pulses. Still healthier than sugar and white flour, though.

My Libre sensors have been dispatched. I’ll slap one on as soon as they arrive, and see where we go from there. I’ve taken a heck of a lot of carbs out just by cutting back on snacking. It was mostly just satisfying the urge for taste, and responding to the addictive properties of crisps and sugar, rather than because I was hungry.
 
Went to the gym this morning - fairly short workout just to ease myself back in. Back home eating breakfast soon after 8.30. The Libre sensors arrived about 10am….. the first reading that came up (around 11.20am) was 10.5. I’ve just got back from the shops - 6 minutes walk each way - and now I’m at 8.8.

At least I’ve got visibility now! We do our main supermarket shop on a Monday evening, so I will be loading the trolley with vegetables, meat, fish, eggs, nuts…

I also picked up the prescription yesterday. I can’t remember the drug name, but the brand name is Jardiance. I’ve decided I’m not starting them till Friday, though. Our walking group meets on Thursday, we’ll be out for about 5 hours, and there’s not too much shrubbery on Dartmoor, so if the diuretic effect is strong it would be a bit inconvenient.
 
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