New to type 3c diabetes

[Sage7]

Hi, I have recently been diagnosed with type 3c diabetes. I know nothing about this condition apart from what i have found out for myself. Have been prescribed metformin which i'm wary to take as i've had serious side effects with other medication . I am waiting to see a diabetic nurse in 2 weeks so hopefully will understand more then. In the meantime i would be grateful for any advice or tips about this condition.

 

[Pipp]

Hello and welcome, @Sage7 .
Sorry about your recent diagnosis. You seem to have found the right subforum, and this thread maybe will be of use to you.

Any Type 3C people out there?

Hi everyone, i am Type 3c due to acute pancreatitis and then cysts on my pancreas which wiped out my pancreas in 2019. Now i am insulin dependent and also take creon with all meals. Just wondered if there is anyone else on this forum with similar condition.

www.diabetes.co.uk

I also notice in your profile you have Type of diabetes listed as ‘Gestational’ it would help if you could clarify type, as this will enable members to provide the most specific advice from their own experiences.

 

[Sage7]

Thank you for replying to my message i have now rectified my profile to type 3c . I was diagnosed with chronic pancreatitis 2022 .I have been taking creon with everything i eat since then.I was also prescribed omeprazole to which i had a severe reaction to, was in incredible pain for 8 months of last year, i could not even get a appointment to see my GP. After 8 months i was finally asked to do a stool sample for which i had to come of omeprazole so to not effect the result.This is when the pain stopped. I am a full time carer for my dad who has parkinsons and dementia and was at my wits end trying to care for him in severe pain while not being seen or believed about what i was enduring. felt complete despair and lost hope for any kind of care for myself.
Now i have type 3c diabetes and have just started on metformin 2 days ago so early days.I changed doctors but have only just managed to get appointment after joining them last march. I'm suffering from extreme night sweats also comes on in day too and the doctor has told me this isn't my diabetes.I don't know what to believe. I am waiting to see the nurse in 2 wks to check my bloods...i would be grateful for any advice. Feeling overwhelmed

 

[Cumbrianjudith]

Sadly I doubt your Gp has ever met anyone with type3c, nor your surgery nurse…mine hadn’t a clue, neither had hospital after twice being sent to A&E by Gp with ketoacidosis. But that was 10 years ago, so things might have moved on in the NHS! You might find getting a free continuous blood glucose sensor from Abbott (Freestyle Libre 2) which you wear for 2 weeks ( assuming you have a compatible mobile phone to scan/ record), that would show whether your BG is doing something odd at night eg hypo .low blood sugar, or glucose dump making BG high…which might be giving you night sweats.

 

[wheelspinner]

Thank you for replying to my message i have now rectified my profile to type 3c . I was diagnosed with chronic pancreatitis 2022 .I have been taking creon with everything i eat since then.I was also prescribed omeprazole to which i had a severe reaction to, was in incredible pain for 8 months of last year, i could not even get a appointment to see my GP. After 8 months i was finally asked to do a stool sample for which i had to come of omeprazole so to not effect the result.This is when the pain stopped. I am a full time carer for my dad who has parkinsons and dementia and was at my wits end trying to care for him in severe pain while not being seen or believed about what i was enduring. felt complete despair and lost hope for any kind of care for myself.
Now i have type 3c diabetes and have just started on metformin 2 days ago so early days.I changed doctors but have only just managed to get appointment after joining them last march. I'm suffering from extreme night sweats also comes on in day too and the doctor has told me this isn't my diabetes.I don't know what to believe. I am waiting to see the nurse in 2 wks to check my bloods...i would be grateful for any advice. Feeling overwhelmed

Hi Sage, I too am type 3c after suffering severe acute necrotising pancreatitis in 2018. I'm also on Creon with every meal, but have problems getting hold of it, so have reduced my tablets to eight per meal, down from 10, and 5 tablets per snack. Apparently there is a shortage of pancreatin in Europe. I also take Lansoprazole to help with acid reflux as not all antacid med work with me. Since I have had to lower my Creon intake I am loosing weight, and having to change my insulin dose regularly (by 2 units at a time) to prevent highs and lows. Not too many medical staff know or understand Type 3c, and even the diabetic nurse has only read about it before seeing me.
Please don't lose hope. The night sweats could be from other things not associated with diabetes. I know I've been through them in my fifties, and the wife when she came off HRT say no more.
Try and get support with your dad. we were stoic too long looking after my wife's mother with Alzheimer's, but we were helped by the local council with respite care and day sitters for a couple of hours twice a week.
Keep smiling, It sometimes works or me.

 

[novorapid24]

Thank you for replying to my message i have now rectified my profile to type 3c . I was diagnosed with chronic pancreatitis 2022 .I have been taking creon with everything i eat since then.I was also prescribed omeprazole to which i had a severe reaction to, was in incredible pain for 8 months of last year, i could not even get a appointment to see my GP. After 8 months i was finally asked to do a stool sample for which i had to come of omeprazole so to not effect the result.This is when the pain stopped. I am a full time carer for my dad who has parkinsons and dementia and was at my wits end trying to care for him in severe pain while not being seen or believed about what i was enduring. felt complete despair and lost hope for any kind of care for myself.
Now i have type 3c diabetes and have just started on metformin 2 days ago so early days.I changed doctors but have only just managed to get appointment after joining them last march. I'm suffering from extreme night sweats also comes on in day too and the doctor has told me this isn't my diabetes.I don't know what to believe. I am waiting to see the nurse in 2 wks to check my bloods...i would be grateful for any advice. Feeling overwhelmed

I'm injecting

green pen every morning and orange pen when needed,no tablets only Creon and nexium 40 mg

 

[Gray Wolf]

Sadly I doubt your Gp has ever met anyone with type3c, nor your surgery nurse…mine hadn’t a clue, neither had hospital after twice being sent to A&E by Gp with ketoacidosis. But that was 10 years ago, so things might have moved on in the NHS! You might find getting a free continuous blood glucose sensor from Abbott (Freestyle Libre 2) which you wear for 2 weeks ( assuming you have a compatible mobile phone to scan/ record), that would show whether your BG is doing something odd at night eg hypo .low blood sugar, or glucose dump making BG high…which might be giving you night sweats.

Nope
I have had Pancreatitis since 2010 and my GP and Diabetic nurse still class my diabetes as T2 since reading up on here I will be demanding a new diagnosis