Fed up of all thing’s diabetic

[bmtest]

Thanks for history education on the BD needles did not realise that was the reason we got the free plastic needles,

Lets take a trip to the 1970s just when many popular long running TV series would always run an episode on the frail and feeble diabetic. One that comes to mind is a Lassie episode a full hour programme dedicated to someone slipping into coma only to be saved at the last minute by a hot cup of tea and a couple of sugar lumps and some rich T biscuits.

We had the pleasure of watching Two's Company with the big Celebrity Elaine Stritch a real life diabetic if that wasn't bad enough relatives would cut out numerous newspaper clippings that just happened to mention diabetes.

You cannot even loose your temper without someone chipping in "are you feeling alright" do you need something to eat ? At least today with the libre you can check and carry ranting but they still don't believe you.

In summary there's a lot to get p....ed off about but that's what makes Diabetes special.

 

[Jaylee]

You cannot even loose your temper without someone chipping in "are you feeling alright" do you need something to eat ? At least today with the libre you can check and carry ranting but they still don't believe you.

I’m pretty passive when low..

I remember on one occasion we got our first VCR player.
As a kid I was tasked with unboxing & setting it up. (I always loved new gadgets.)
Lying on the floor perusing the manual that came with the device & wrapping my head round it. I was a little irked when the familiar line “do you need something to eat” came in behind me…

I also remember Elaine Stritch being pointed out to me as diabetic on a Parkinson interview I wasn’t paying much attention to…

I also read an interview in Kerrang regarding the band Poision’s singer getting into alsorts of hypo scrapes & getting bailed out by the “roadie?”
Even as a kid. I’ve always taken care of my self. I felt more sorry for the roadie

 

[jaywak]

I agree and i haven't seen a specialist or DSN in years.
My philosophy on injections is simple .... 50 years ago it was a faff with harpoons....now with a pen and needles just 4mm i don't feel a thing and if i need one in the night i can do it in the dark as i just count the clicks and off i go without waking my wife.

Tony

I laughed when I read that Tony , that's what I do in the dark and I spray the air shot near my face so I can feel it come out .

 

[jaywak]

I was thinking only a short while ago after 50 years of diabetes the most hurtful thing anyone has ever said to me was from my father in law when he commented that I was one of those people who cost the NHS a fortune in medicine , not much but it did hurt me .

 

[Jaylee]

I was thinking only a short while ago after 50 years of diabetes the most hurtful thing anyone has ever said to me was from my father in law when he commented that I was one of those people who cost the NHS a fortune in medicine , not much but it did hurt me .

For me the only real time was an English teacher when I was 13/14?
It was coming up to Christmas & she’d brought in a box of quality street & drifted round the class of 30’od kids offering them?
When she got to me. I respectfully declined..
Then I saw a nasty side as she barracked me out by shouting, “well! It you think I would give sweets to a DIABETIC!!”
I was belittled by a teacher I was actually engaged with? Lol, it was “game over” after that…

To be fair, stuff gets offered at work these days.
But I always add “thanks for being inclusive” after I decline.
I had one manager that offered sweets round the department daily?
We had a “thing” where I said you’ll know if I’m low. I’ll take one..

 

[Grant_Vicat]

For me the only real time was an English teacher when I was 13/14?
It was coming up to Christmas & she’d brought in a box of quality street & drifted round the class of 30’od kids offering them?
When she got to me. I respectfully declined..
Then I saw a nasty side as she barracked me out by shouting, “well! It you think I would give sweets to a DIABETIC!!”
I was belittled by a teacher I was actually engaged with? Lol, it was “game over” after that…

To be fair, stuff gets offered at work these days.
But I always add “thanks for being inclusive” after I decline.
I had one manager that offered sweets round the department daily?
We had a “thing” where I said you’ll know if I’m low. I’ll take one..

Did you offer her some insulin?!

 

[Tony337]

I laughed when I read that Tony , that's what I do in the dark and I spray the air shot near my face so I can feel it come out .

I feel as though i appreciate the new tech more than those diagnozed recently as i genuinly marvel at my libre and i even have a smart watch so i can check my levels whilst driving so i don't have to look at my phone...

Happy monday

Tony

 

[StewartH]

Hey all,
I’m have been diabetic for nearly 25 years and I have got to a point where I am fed up with dealing with all of it and especially when my diabetes is blamed for everything. I feel like no one actually understands what it’s like to go through it and I asked the same question to the consultant who basically blamed me for my diabetes and how I am on multiple injections. Apparently all my skin infections are also linked to my diabetes and if it was better controlled I would be on 2 injections a day max and my skin infections would not come back. I am also on antidepressants and am sorry about ranting but not really sure who else would understand what it’s like.

Sorry to hear you sounding low Abigail.
Are you type 1 or 2?
I am in my 45th year T1D.
I think I have pretty good control but must take 5 or 6 jabs to achieve that.

 

[jaywak]

I feel as though i appreciate the new tech more than those diagnozed recently as i genuinly marvel at my libre and i even have a smart watch so i can check my levels whilst driving so i don't have to look at my phone...

Happy monday

Tony

Yes I'm the same I can't believe how the new technology has improved control and lives and have said on here before that any newly diagnosed should not worry about their future , I wish I could I could hug Abigail and just say you have no need to worry about it , I did but now look back after 50 years and think why ? Not everything that happens, maybe non at all can be related to your diabetes, at the moment I'm the healthiest in my family other than getting knackered with looking after others which I do feel blessed that I'm able to do . Please don't worry .

 

[Zhnyaka]

2 injections of insulin for t1? Does your doctor know for sure that t1 and t2 are different diseases? on the most successful days, I give 4 injections, but usually more

Although some health problems are indeed caused by diabetes, diabetes is not the cause of everything that happens to us, we can get sick for a hundred other reasons.

There's nothing wrong if you come home and scream/beat the pillow. Sometimes other people's attitudes about how you live are really annoying. Our lives are none of their business!

 

[Neillo 63300]

Hey all,
I’m have been diabetic for nearly 25 years and I have got to a point where I am fed up with dealing with all of it and especially when my diabetes is blamed for everything. I feel like no one actually understands what it’s like to go through it and I asked the same question to the consultant who basically blamed me for my diabetes and how I am on multiple injections. Apparently all my skin infections are also linked to my diabetes and if it was better controlled I would be on 2 injections a day max and my skin infections would not come back. I am also on antidepressants and am sorry about ranting but not really sure who else would understand what it’s like.

I know what you mean. I've been on insulin since 1974 and I've just about reached the burn out point with it all. The last doctor I saw admitted that I probably knew more about type 1 diabetes than he did! Even worse the specialist diabetes nurse (who of course isn't diabetic) told me to reduce my insulin by 75%. I've just ignored her instructions. 51 years living with people telling you what to do would frankly sicken a saint.

 

[Don68]

Hey all,
I’m have been diabetic for nearly 25 years and I have got to a point where I am fed up with dealing with all of it and especially when my diabetes is blamed for everything. I feel like no one actually understands what it’s like to go through it and I asked the same question to the consultant who basically blamed me for my diabetes and how I am on multiple injections. Apparently all my skin infections are also linked to my diabetes and if it was better controlled I would be on 2 injections a day max and my skin infections would not come back. I am also on antidepressants and am sorry about ranting but not really sure who else would understand what it’s like.

 

[Don68]

I understand totally for me it’s 31 years and despite trying my absolute best I have been having negative noticeable effects from it for the last 5 years and know no matter what I do it’s not going to vanish away and I’m living with it till I die !

 

[Bea24]

Hey all,
I’m have been diabetic for nearly 25 years and I have got to a point where I am fed up with dealing with all of it and especially when my diabetes is blamed for everything. I feel like no one actually understands what it’s like to go through it and I asked the same question to the consultant who basically blamed me for my diabetes and how I am on multiple injections. Apparently all my skin infections are also linked to my diabetes and if it was better controlled I would be on 2 injections a day max and my skin infections would not come back. I am also on antidepressants and am sorry about ranting but not really sure who else would understand what it’s like.

I totally get you Abigail. I too am at the 25 year mark. I am so fed up with consultants who do not have a clue what my life is like and expect me to be ever so grateful just to be considered for a CGM. All I can say you know your own body so shout long and hard till you are heard.

 

[Scouse77]

Massive hugs Abigail, I hear you in regards to blaming everything on the t1d, I still speak out and argue against it if I feel the case justifies it, sometimes it best to just accept and move on - big point here though is that your t1d is not your fault so don't feel personally attacked if they say this, it limits the emotional connection if you can identify it as a separate entity, you are not your t1d. Sadly with managing t1d we can become it and it becomes us, so we need to separate this, it will help lessen the emotional strain when you can adopt a new mindset to living with it.

Find a new Diabetes Nurse if you're not getting pump access, you need to get yourself someone to listen to you and will help you gain access, improving your quality of life with managing your t1d is vital and seeking the right support to allow you to cope better, message me if I can help in any way.

 

[Ambermouse]

Hey all,
I’m have been diabetic for nearly 25 years and I have got to a point where I am fed up with dealing with all of it and especially when my diabetes is blamed for everything. I feel like no one actually understands what it’s like to go through it and I asked the same question to the consultant who basically blamed me for my diabetes and how I am on multiple injections. Apparently all my skin infections are also linked to my diabetes and if it was better controlled I would be on 2 injections a day max and my skin infections would not come back. I am also on antidepressants and am sorry about ranting but not really sure who else would understand what it’s like.

I’ve been one for 59 yrs and take 4 injections a day which I don’t mind. My sugars are good anyway and you will always hear you’re vulnerable to this that and the other due to diabetes but hey don’t fret. Take it with a pinch of salt, as there’s not one person on this earth that hasn’t got something wrong with them ie dry skin, rash on their elbows, large feet, big ears, Hayfever etc. Some have conditions that will not be controllable so just ride with it and keep it in check. You control it so don’t let it control you!

 

[lovinglife]

I also remember Elaine Stritch being pointed out to me as diabetic on a Parkinson interview I wasn’t paying much attention to…

I remember seeing that - she came on with a bit of fruitcake wrapped in cling film & put it on the coffee table in front of them & Parky explaining that the cake was for “life saving” reasons as she could go into a coma at any time - I remember thinking oh (very naughty word) and watching to see what happened - ignorance breeds ignorance

 

[Fortissimo]

Hey all,
I’m have been diabetic for nearly 25 years and I have got to a point where I am fed up with dealing with all of it and especially when my diabetes is blamed for everything. I feel like no one actually understands what it’s like to go through it and I asked the same question to the consultant who basically blamed me for my diabetes and how I am on multiple injections. Apparently all my skin infections are also linked to my diabetes and if it was better controlled I would be on 2 injections a day max and my skin infections would not come back. I am also on antidepressants and am sorry about ranting but not really sure who else would understand what it’s like.

Hi Abigailsheree, I feel your frustration. I'm type 2 and have been for only 5 years. I too am totally pied off with the illness. My blood sugars have come back from my recent Hba1c test at 68!! I'm over weight, have a diabetic tummy and hate my image. Getting things right seems out of my grasp at the moment as I'm not in the right headspace. I really do understand some of what you are feeling. I hope this helps you. You're not alone xx

 

[Jaylee]

I remember seeing that - she came on with a bit of fruitcake wrapped in cling film & put it on the coffee table in front of them & Parky explaining that the cake was for “life saving” reasons as she could go into a coma at any time - I remember thinking oh (very naughty word) and watching to see what happened - ignorance breeds ignorance

But under those studio lights.
You can have your cake & heat it..

Yep, people did used to think i would immediately pass out?
I tended to talk a fair bit of nonsense..

I’ve never got that far down the line…

 

[margot_c_wallace]

Hey all,
I’m have been diabetic for nearly 25 years and I have got to a point where I am fed up with dealing with all of it and especially when my diabetes is blamed for everything. I feel like no one actually understands what it’s like to go through it and I asked the same question to the consultant who basically blamed me for my diabetes and how I am on multiple injections. Apparently all my skin infections are also linked to my diabetes and if it was better controlled I would be on 2 injections a day max and my skin infections would not come back. I am also on antidepressants and am sorry about ranting but not really sure who else would understand what it’s like.

No worries, been there, been t1d for 59 years and they blame diabetes for everything ,yes important to keep under control but sometimes impossible, my mantra is, it won't beat me, have you tried an insulin pump