Diabetic macula edema

[sandisoo]

Has anyone had the injections for this and if so what was it like please? i have this DME and the consultant said I could have these or the steroid implant or not have any treatment. So to go away and think about it. This is because i researched the VEGF injections and they can cause blood clots stroke heart attacks. Last year I went to A&E with double vision issues. Had CT and MRI scan and the MRI showed a small stroke which they do not investigate. They show up in theses scans in lots of people. I was diagnosed with 6th nerve palsy which took 18 weeks wearing a patch but it got better. Im wary of the injections. There are also risks with the Steroid implants. My eyes feel fine so i have not contacted the medical secretary yet to say whether or not i want the treatment. Im erring on the side of watch and wait. I want to see what other non invasive options. Id just like to hear from those that have had tis condition please. Thank you, Sandra

 

[Phaid]

I’ve had one of these injections in my right eye, as laser treatment is no longer an option for me. It sounds worse than it is — the procedure is over quickly, with just a few seconds of mild discomfort.

 

[dunc1]

Has anyone had the injections for this and if so what was it like please? i have this DME and the consultant said I could have these or the steroid implant or not have any treatment. So to go away and think about it. This is because i researched the VEGF injections and they can cause blood clots stroke heart attacks. Last year I went to A&E with double vision issues. Had CT and MRI scan and the MRI showed a small stroke which they do not investigate. They show up in theses scans in lots of people. I was diagnosed with 6th nerve palsy which took 18 weeks wearing a patch but it got better. Im wary of the injections. There are also risks with the Steroid implants. My eyes feel fine so i have not contacted the medical secretary yet to say whether or not i want the treatment. Im erring on the side of watch and wait. I want to see what other non invasive options. Id just like to hear from those that have had tis condition please. Thank you, Sandra

Hi sandisoo,
I was diagnosed with Diabetic Macula Oedema in January 2024. I then was advised to start treatment of Eylea by intravitreal injection. The injection is far, far less traumatising than you think when first being advised to have it. The process is very quick and the only sensation is a feeling of slight pressure when to needle is inserted. Subsequent injections should take place every two months until the oedema is cleared. Unfortunately, I am still receiving them now, last one 17th July 2025. My issues were made worse because I required cataract surgery in both eyes over a period of two months. I also now require a steroidal injection in my other eye to deal with issues from the cataract surgery.

The ophthalmologist is happy with the progress as far as the oedema is concerned so as they 'on we go . . .' My personal situation is T2D diagnosed in 2001, managed diet and exercise until 2008, moved to medication (the usual) until March 2025 when finally started basal/bolus insulin regime.

Hope this helps.

 

[Jaylee]

Hi

I was diagnosed about 10 years ago with DMO.
Had a course of anti-VEGF jabs. On & off for 3 years..both eyes..
Been clear after constant monitoring for 7 years but needed 3 jabs earlier this year in the right eye.
Just passed another test/scan. Back for another scan in 3 months.

I’ve had no side effects apart from immediately after, blurred vision & light sensitivity in the treated eye/s lasting a couple of hours? Mainly due to dispersal of the injected drug & the local anaesthetic used in the form of eye drops.
No long term SEs to my knowledge, other than improved/restored vision..

Hope this helps?

 

[sandisoo]

Hi sandisoo,
I was diagnosed with Diabetic Macula Oedema in January 2024. I then was advised to start treatment of Eylea by intravitreal injection. The injection is far, far less traumatising than you think when first being advised to have it. The process is very quick and the only sensation is a feeling of slight pressure when to needle is inserted. Subsequent injections should take place every two months until the oedema is cleared. Unfortunately, I am still receiving them now, last one 17th July 2025. My issues were made worse because I required cataract surgery in both eyes over a period of two months. I also now require a steroidal injection in my other eye to deal with issues from the cataract surgery.

The ophthalmologist is happy with the progress as far as the oedema is concerned so as they 'on we go . . .' My personal situation is T2D diagnosed in 2001, managed diet and exercise until 2008, moved to medication (the usual) until March 2025 when finally started basal/bolus insulin regime.

Hope this helps.

Yes thank you any information helps. I will take all this on board when I make my decision. It's a drawn out process and getting a family member to take me. My hospital is a 42 mile round trip too. Thank you again

 

[sandisoo]

Hi

I was diagnosed about 10 years ago with DMO.
Had a course of anti-VEGF jabs. On & off for 3 years..both eyes..
Been clear after constant monitoring for 7 years but needed 3 jabs earlier this year in the right eye.
Just passed another test/scan. Back for another scan in 3 months.

I’ve had no side effects apart from immediately after, blurred vision & light sensitivity in the treated eye/s lasting a couple of hours? Mainly due to dispersal of the injected drug & the local anaesthetic used in the form of eye drops.
No long term SEs to my knowledge, other than improved/restored vision..

Hope this helps?

Yes thank you. It's good to hear different stories.
My eyes feel fine hence I was thinking of a watch and wait approach. But not made my decision as yet. My worries are blood clots strokes etc. Thank you.

 

[Jaylee]

Yes thank you. It's good to hear different stories.
My eyes feel fine hence I was thinking of a watch and wait approach. But not made my decision as yet. My worries are blood clots strokes etc. Thank you.

Understood.
I wish you all the best on your decision.

Do you mind me asking where you got the “blood clot” information from??

I did get “muppet eye” just after the older drug Lucentis jabs. (Like a dark red almost black spot in lower vision.) but it dispersed by the end of the day..
But it didn’t happen when they switched to the newer Eylia..

 

[sandisoo]

Understood.
I wish you all the best on your decision.

Do you mind me asking where you got the “blood clot” information from??

I did get “muppet eye” just after the older drug Lucentis jabs. (Like a dark red almost black spot in lower vision.) but it dispersed by the end of the day..
But it didn’t happen when they switched to the newer Eylia..

I got the information from The National Library of Medicine. I know we are told not to look things up, but I like to have a heads up.
It's from a good source.

 

[Jaylee]

I got the information from The National Library of Medicine. I know we are told not to look things up, but I like to have a heads up.
It's from a good source.

Hi,
I get where your coming from..
Good to know the possible risks.

I had no idea a decade ago that tightening up my HbA1c so quick could cause complications with the eyes?
Till after the diagnosis…
Should have done it slower.

 

[sandisoo]

I’ve had one of these injections in my right eye, as laser treatment is no longer an option for me. It sounds worse than it is — the procedure is over quickly, with just a few seconds of mild discomfort.

Hello, Im sorry I did respond but made a mistake. Id like to thank you for your input and the information. it is always good to hear from those that have experienced these things i am still wary of the clots stroke and heart attacks though. But thank you again.

 

[sandisoo]

Hi,
I get where your coming from..
Good to know the possible risks.

I had no idea a decade ago that tightening up my HbA1c so quick could cause complications with the eyes?
Till after the diagnosis…
Should have done it slower.

Hi, I didnt know that either. After i was given a sensor due to the 6th nerve palsy and a long wait to see the specialist my BS dropped much quicker than i expected. Id been having some real highs for about 3 months. Having the sensor i could see that as soon as i ate the bread just two small thin slices my BS would really spike. I realise when my BS is high that i do get blurry vision. Its already dropped again as i get an estimated HB1AC from the sensor charts, but i had two days of highs and the estimate went up one point. There is a time lapse though and the readings from the sensor can lag about 10 minutes behind as its not like the manual glucose meter which is tested from the blood. The sensor tests from the interstitial fluids. I still have to carry a glucose meter when out driving as requested by the DVLA. When they first told me I had diabetes, they asked me how i felt and i said i was ok about it. Little did i know how it would affect my body back then.