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Has anyone ever experimented with Tresiba in this way? (Not medically reccomended or advisable)

cbooth5

Active Member
Messages
34
Type of diabetes
Type 1
Treatment type
Insulin
Hi all,

Just curious if anyone has experience of this themselves. ** Just FYI/disclaimer Im not looking to medically advise or be advised, just for info only if this is something effective other have done before **

I've been honeymooning since diagnosis the last 2.5 years. But sometimes when you think you need to increase your long-acting insulin it really can be so close and delicate to judge when in honeymoon, so to save the horrible overnight hypos and big jumps.

Tresiba is an ultra-long acting insulin which works for at least 30-36 hours and has a flat effect. Therefore, for other long acting insulins, this wouldnt work. But it can provide an overall, middle effect of between 9 and 10 units in my experience. Rather than increasing to 10, it being all or nothing and struggling if too much.

I remember going from 3 to 4 units of basal. Yes that is a 133% increase in dosing, but my diabetic nurse said 'go for it' then i had a horrible few days of lows and being dragged down. My first nurse wasnt the best care snd they were short staffed, so I ended up taking on all responsibility myself.

Ive only just started under a new diabetic nurse and she doesnt know yet. But basically, if I increase from say 9 units to 10 and in the middle and still unsure about overnight trend and I feel like im truly inbetween (stuck at exactly 9.5 units basal) ... then ill do this:

9 units one day, 10 units the next.. for a few days, before the big jump to 10 units every day. My levels are thanking me and no horrible big shock in the mornings or at work.

I know my diabetic nurse isnt going to like it, as its not as per textbook or medical advice. But hey if it works, 85%+ in range.. then its good enough right? For the record, the only hypos I usually have are 3.5-4.0 and lucky they are mild to moderate, so manageable living alone etc.
 
Hi all,

Just curious if anyone has experience of this themselves. ** Just FYI/disclaimer Im not looking to medically advise or be advised, just for info only if this is something effective other have done before **

I've been honeymooning since diagnosis the last 2.5 years. But sometimes when you think you need to increase your long-acting insulin it really can be so close and delicate to judge when in honeymoon, so to save the horrible overnight hypos and big jumps.

Tresiba is an ultra-long acting insulin which works for at least 30-36 hours and has a flat effect. Therefore, for other long acting insulins, this wouldnt work. But it can provide an overall, middle effect of between 9 and 10 units in my experience. Rather than increasing to 10, it being all or nothing and struggling if too much.

I remember going from 3 to 4 units of basal. Yes that is a 133% increase in dosing, but my diabetic nurse said 'go for it' then i had a horrible few days of lows and being dragged down. My first nurse wasnt the best care snd they were short staffed, so I ended up taking on all responsibility myself.

Ive only just started under a new diabetic nurse and she doesnt know yet. But basically, if I increase from say 9 units to 10 and in the middle and still unsure about overnight trend and I feel like im truly inbetween (stuck at exactly 9.5 units basal) ... then ill do this:

9 units one day, 10 units the next.. for a few days, before the big jump to 10 units every day. My levels are thanking me and no horrible big shock in the mornings or at work.

I know my diabetic nurse isnt going to like it, as its not as per textbook or medical advice. But hey if it works, 85%+ in range.. then its good enough right? For the record, the only hypos I usually have are 3.5-4.0 and lucky they are mild to moderate, so manageable living alone etc.

The issue with Tresiba is it takes upto 3 days for changes to have visible effect

In reality for me it was about 48 hours

Sound to me like you’d be better off with a half unit pen
 
As @Antje77 says - sounds reasonable.

Was once advised (in the 90s I think) by a consultant there are no rules to T1, only guidelines. We have to experiment (carefully) to find what works for us. Also keep an eye on it from time to time - insulin requirements change due to lots of factors (heat, cold, more daylight etc) so worth monitoring as an on-going task so you can 'fiddle' when it does.

You might benefit from a CGM to see what your blood sugar is doing on the average day to make sure you're not getting any odd rises or lows you may not be aware of in the night.
 
Whatever basal is used. It’s basically the foundation of an MDI insulin regime..

This link maybe helpful before experimenting with the bolus insulin..? (For food or correction.)
 
Yes I’ve done this when transitioning to a new level. I also have half unit pens which I wouldn’t be able to manage without. Both for basal and bolus.
 
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