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Restless Leg Syndrome

I am on Pregabalin medication for anxiety,when i tried to come off these about 2 years ago.i started to get restless legs and it drove me crazy,my anxiety levels went through the roof,i went back on to the pregabalin tablets and the restless symptoms stopped. Prior to being prescribed Pregabalin i had never had restless legs syndrome,i still cant understand the reason why,i can fully understand what you are going through and hope you can find what works for you
 
Thanks for your good wishes Chalkie. Do you think you will be taking this medication for very long. I only ask because the thought of stopping it and getting RLS again must be horrible after having had the relief of it going away.

Today has been a bit of a nightmare day for my RLS, as every time I have sat down, even for 5 minutes for a cup of tea, my legs have started jerking, so goodness knows what tonight will be like in bed. There really is a limit to the amount of time you can spend walking around isn't there :grumpy:

Thanks again x
 
Mi
Thanks for your good wishes Chalkie. Do you think you will be taking this medication for very long. I only ask because the thought of stopping it and getting RLS again must be horrible after having had the relief of it going away.

Today has been a bit of a nightmare day for my RLS, as every time I have sat down, even for 5 minutes for a cup of tea, my legs have started jerking, so goodness knows what tonight will be like in bed. There really is a limit to the amount of time you can spend walking around isn't there :grumpy:

Thanks again x

Hi, mine started like that during the day, couldn't sit down, trying to read my book walking about, not a good idea. It was a frustrating a disheartening and distressing time and quite frankly I was tearing my hair out :arghh: but the Ropinirole worked again for the daytime/early evening :happy:

I really do wish you all the best, hopefully some relief very soon x

RRB
 
Oh thanks so much RRB. It does help knowing that others understand what you are wittering on about doesn't it.
I feel a bit of a wus whingeing about it when others (yourself included) are coping with really painful conditions but this really does drive you nuts sometimes. Hopefully tomorrow will be a better day.
Your support helps a lot. Thank you x
 
It does help knowing that other people understand the condition ( whatever it is) they've been there, and worn the t shirt, it's like :(:arghh::banghead::bigtears: all rolled into one.

Anytime you want to have a little gripe, we are all here :)

Best wishes RRB x
 
I suffer from RLS for 2 years now. 1. I thought it's because I suffer from Ms as well as diabetes, but the MS affects me in a different way. I know and feel the difference between the RLS and the muscle spasm and pain from the MS. I can say that RLS it is the most stressful and I can coupe better with the Ms as with the RLS.
Often I wander around all night till I am so exhausted, that I fell asleep while sitting up in a chair.I have tried a lot of things what you people have tried, from zink to magnesium, drinking a lot of water before going to bed and so on. Nothing really have helped me yet.I also have seen my previews GP and all she told me was, that there is nothing she can do and I have to go on with it. I felt really low after that,thinking, she may not even now what it means having RLS and how horrible it affects my/ other peoples life.
Thanks god I have a new GP now, but did not spoke to her about this yet, but will do tomorrow while having an AP with her.

What I noticed , that when I have eaten something very sweet, like chocolate, what I should not, because of my diabetes, the RLS getting much worse.I avoid to eat this anyway, but even when my blood sugar is ok I am getting the RLS and often I could cry, because it not only affects me, I keep my partner and 3 dogs unsettled all night. ( I have it not every night but around 2 to 3 times a week ) In the morning my legs are hurting so much as if I have been in a body building studio.
Chris Lowe you mentioned that you take Amyltriptline and that its helping you with your symptoms. I am on Amytriptelin for 5 years for my muscle spasm, but it did not help me with the RLS. So glad its helping you.

So do you people think RLS is related to diabetes? I don't really understand what causes RLS only read that's something to do with the brain?

Sorry that I cant give any advise what may can help you to coupe better with your symptoms.But I thought talking about this is a start to may get more information and support and stay in contact in case some1 find something what could help every1 with RLs.I do hope i am getting some advise and maybe some meds whats helping me to coupe with this stressful body issue.I f i find something out more about what other people can try as well, not mentioned here I will let you know.

I wish you all the best and hope you will find a way coping with your RLS.

Talks soon

Elke
 
Hello Elke and welcome to the forum.
I was sorry to read that you too are dealing with RLS as well as MS it's a real nuisance isn't it (she said, putting it mildly ;)).
I would be interested to hear how you get on with your new GP tomorrow and whether she can prescribe something that helps you. The ropinrole that RRB has found helpful sounds promising doesn't it and perhaps they might give you that?
I am definitely going to approach my doctor (when I can get an appointment) and ask about this.
Please let us know how you get on and thank you so much for taking the time to respond x
 
I suffer from RLS for 2 years now. 1. I thought it's because I suffer from Ms as well as diabetes, but the MS affects me in a different way. I know and feel the difference between the RLS and the muscle spasm and pain from the MS. I can say that RLS it is the most stressful and I can coupe better with the Ms as with the RLS.
Often I wander around all night till I am so exhausted, that I fell asleep while sitting up in a chair.I have tried a lot of things what you people have tried, from zink to magnesium, drinking a lot of water before going to bed and so on. Nothing really have helped me yet.I also have seen my previews GP and all she told me was, that there is nothing she can do and I have to go on with it. I felt really low after that,thinking, she may not even now what it means having RLS and how horrible it affects my/ other peoples life.
Thanks god I have a new GP now, but did not spoke to her about this yet, but will do tomorrow while having an AP with her.

What I noticed , that when I have eaten something very sweet, like chocolate, what I should not, because of my diabetes, the RLS getting much worse.I avoid to eat this anyway, but even when my blood sugar is ok I am getting the RLS and often I could cry, because it not only affects me, I keep my partner and 3 dogs unsettled all night. ( I have it not every night but around 2 to 3 times a week ) In the morning my legs are hurting so much as if I have been in a body building studio.
Chris Lowe you mentioned that you take Amyltriptline and that its helping you with your symptoms. I am on Amytriptelin for 5 years for my muscle spasm, but it did not help me with the RLS. So glad its helping you.

So do you people think RLS is related to diabetes? I don't really understand what causes RLS only read that's something to do with the brain?

Sorry that I cant give any advise what may can help you to coupe better with your symptoms.But I thought talking about this is a start to may get more information and support and stay in contact in case some1 find something what could help every1 with RLs.I do hope i am getting some advise and maybe some meds whats helping me to coupe with this stressful body issue.I f i find something out more about what other people can try as well, not mentioned here I will let you know.

I wish you all the best and hope you will find a way coping with your RLS.

Talks soon

Elke

Good luck with your new GP Elke, as there IS MEDICATION AVAILABLE from GP's. When I first went to my GP I had to have blood tests to see if I was low in iron, I was so was put on Iron tablets, which, I'm afraid didn't help me. This condition is just awful and I have had some very bad thoughts about my legs. It's not 100% with me, but the Ropinirole do help.
Have you had a google about RSL, as it's best to go in to your GP well armed and tell them how debilitating this condition is for you and is affecting your daily life and well being. tbh if I was told i could only have just one of my medications, I would not give up Ropinirole.
Also I know Nortriptline has been used for RLS as well.
You are right about the brain causing the jerks, as Ropinirole is also used in the treatment for Parkinson's disease ( also to do with the brain )
Good luck and like the other RLS sufferers, I hope you can get some relief very soon.

Best wishes RRB x
 
I found this and I hope it can help. It has some good information.

Best wishes RRB

Your health,


Restless legs syndrome


Introduction
Restless legs syndrome


Restless Legs Syndrome (RLS) is a fairly common condition that causes uncomfortable sensations in the legs and is related to an imbalance of the brain chemical dopamine. Dr Julian Spinks emphasises the importance of good sleep and talks about how the symptoms of RLS can be reduced.

Media last reviewed: 19/03/2013

Next review due: 19/03/2015

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Restless legs syndrome (RLS), also known as Willis-Ekbom disease (WED), is a common condition affecting the nervous system.

It causes an overwhelming, irresistible urge to move the legs, and occasionally the arms. It also causes an unpleasant feeling in the feet, calves and thighs, which is often felt as a crawling or creeping sensation. The sensation is often worse in the evening or at night.

Restless legs syndrome is also associated with involuntary jerking of the legs and arms, known as periodic limb movements.

Symptoms can vary from being mild to severe. In severe cases, the condition can be distressing and can disrupt daily activities.

Some people have symptoms now and again, while others have them every day. Read more about the symptoms of restless legs syndrome.

Causes of RLS
In the majority of cases, there is no obvious cause of restless legs syndrome. Doctors may refer to this as idiopathic RLS, or primary RLS. This type of restless legs syndrome can run in families.

Some neurologists (experts in treating conditions that affect the nervous system) share the opinion that symptoms may have something to do with how the body handles a chemical called dopamine. Dopamine plays a role in controlling muscle movement and may be responsible for the involuntary leg movements associated with restless legs syndrome.

Some cases of restless legs syndrome are caused by an underlying health condition, such as iron deficiency anaemia, or kidney failure. Doctors may refer to this as secondary RLS.

There is also a link between restless legs syndrome and pregnancy and around one in five pregnant women will experience symptoms in the last three months of their pregnancy, although it is not clear exactly why. In this case, it often goes away once the woman has given birth.

Read more about the causes of restless legs syndrome.

Treating RLS
Mild cases of restless legs syndrome that are not linked to an underlying health condition may not require any treatment other than making a few lifestyle changes, such as:

  • adopting good sleep hygiene - for example, sleeping regular hours and avoiding alcohol and caffeine late at night
  • quitting smoking (if you smoke)
  • exercising regularly during the daytime
If the symptoms are more severe, medication may be needed to regulate the levels of dopamine and iron in the body.

If restless legs syndrome is caused by iron deficiency anaemia, for example, then iron supplements may be all that is needed to treat the symptoms.

Read more about the treatment of restless legs syndrome.

Who is affected?
As many as one in ten people are affected by restless legs syndrome at some point in their life.

Women are twice as likely to develop restless legs syndrome than men. The condition is also more common in middle age, but the symptoms can develop at any age, including childhood.

Outlook
If you are able to address the underlying cause of restless legs syndrome, the symptoms will usually go away.

However, if the cause is unknown, the symptoms can get worse with time and severely affect the person's life. It's not life-threatening, but it can severely disrupt sleep (insomnia) and trigger anxiety and depression.

The charity Restless Leg Syndrome UK offers support and more information for people affected by restless legs syndrome, and they may be able to put you in touch with others affected by the condition.




Page last reviewed: 18/07/2013

Next review due: 18/07/2015


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I did not realize how serious RLS was for many people, until I read a few more of these threads.
What I have is very mild and only last for a few hours.
The first time to my knowledge that I think I had RLS was about 45 years ago when I was travelling on a evening train from Scotland to England, (the trains that had seats facing each other). For some unknown reason my leg kicked up and had thrown a tray thing up in the air , which was on a passengers lap, things flew all over the place:oops:.
lucky for me I just got embarrassing looks while I apologized.
It was not until recently that I knew about RLS.
 
Oh izzzi how embarrassing for you :oops: at least when my leg jerked up on the train I didn't kick the lady in front of me, I don't know what I would of done :eek:

RLS can be a debilitating condition :( and as I mentioned earlier, I would NOT give up my medication, ever . I've read that some people have a magnet in their bed and some wear surgical stockings or have a cold shower on the legs before bedtime.

Take care, best wishes RRB
 
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