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problems with forgetting

donnellysdogs said:
Presently type 2's can't get pumps.

However, personally, I doubt if you are a T2. You're diagnosis was very young for a type 2... We're you given a gad and c peptide test? Do you know what the results were?

If you were to be rediagnosed as a T1 you would stand a chance of getting a pump.
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When I was diagnosed I was t2... But they are 'unsure' if you can believe what type I am!...
When I was diagnosed properly I had the lucozade test... I had to carry on asking every time I visited the docs for a test because my family ( mum is t2 my dad is t1 and my brother was t2) id not have known if I didn't keep badgering them
I asked for a test before but they said there is no chance I can have one now but I'm going to ask my new diabetic doctor when I go on the 16th
 
sally_x said:
This was when I was first diagnosed when he said it was my mum's fault for feeding me wrong as a child now my mum always blames herself. I was 18 and just been told and that's what I was told I asked the hospital and they said my name had just dropped down the list.. Its like we have diabetic nurses to ring if we ever have any issues... You can never get thru you leave a message no-one rings you back hopfully I'll get on better with this new doctor Altho I'm a little nervous about new people and exsplaining everything all the time but fingers crossed I'll get some help

Thank you
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I agree with Donellysdogs earlier post that given our age your more than likely to be a type 1 than a type 2, if this is proven to be the case then you can ask to go on a carb counting course such as DAFNE, if you fail to gain good control of your diabetes thereafter then an insulin pump may be offered, but they do like people to try and work first at gaining good control on injections first.
 
Leaving aside whether you are type 1 or 2, I just wanted to say:

Who will look after your mum if you become so ill that you cannot look after her?

Seriously.
By looking after yourself, you will be able to look after her better.
And you will feel so much better.

So that means eating regularly.
Eating things that don't mess your blood glucose up too much.
Testing rigorously.
Keeping to your insulin regime.
Taking breaks and rests.

Please think long and hard about your future health.
Every time you neglect your own health, you raise the chance of complications and deterioration.
 
Brunneria said:
Leaving aside whether you are type 1 or 2, I just wanted to say:

Who will look after your mum if you become so ill that you cannot look after her?

Seriously.
By looking after yourself, you will be able to look after her better.
And you will feel so much better.

So that means eating regularly.
Eating things that don't mess your blood glucose up too much.
Testing rigorously.
Keeping to your insulin regime.
Taking breaks and rests.

Please think long and hard about your future health.
Every time you neglect your own health, you raise the chance of complications and deterioration.
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Trust me I think about that all the time
I'm 24
I care for my mum who can hardly walk...
Which means I take care of bills take care of shopping go get medications take her to every appointment she has
On top of that I have my family's children I also care for when needed my family do help when they can but it's not easy... I'm trying that's what I'm saying I take my insulin when I remember I inject 6 times a day and I only remember 3... Its the morning one and dinner time I forget my evening meal and night time I do remember but that's because I have time to sit down and think...
As guessing your a diabetic it's hard... Its just hard to get my head around alot of it and I try my best and I know I'm no good if I'm sat in a hospital bed but trust me I try that's why I'm asking for tips and help I'm thinking about further down the line where there can be more problems...
 
Please ask this new doctor whether you are a T2 for definite and whether you could be a type 1.

Have you had a carb counting and dose adjusting course from your hospital or gp (dafne course)?
 
donnellysdogs said:
Please ask this new doctor whether you are a T2 for definite and whether you could be a type 1.

Have you had a carb counting and dose adjusting course from your hospital or gp (dafne course)?
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Nope never been asked to do anything like that...
I have asked about tests before because obviously I need to know what type I am... But they said they couldn't do any
 
You ought to ask your new consultant for a dafne course. You should have been offered one witjin a year of going on to injections.

I really think you are type 1 and you need to find out if they did all the tests when they disgnosed you type 2.
 
donnellysdogs said:
You ought to ask your new consultant for a dafne course. You should have been offered one witjin a year of going on to injections.

I really think you are type 1 and you need to find out if they did all the tests when they disgnosed you type 2.
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I just hope this new doctor listens it feels to me like they just don't see it from my point of view I'm going to right down everything I wanna know So I'll add this to the list ive been diabetic for 5 years and I still don't know what type because I always belived I wasn't type 2 just from having family whos t2 and they have never had to go onto insulin and my dad's t1 with insulin
 
They may have wrongfully assumed as your family are diabetics that they know about carbs and dose adjusting etc, however you should have had this for your own self.. Not learning good or bad habits from family.

Sorry, I have strayed off a bit.... From your saying about forgetting.. A pump certainly wouldn't let you forget as it delivers the basal insulin constantly. The food you eat still needs a bolus but the mere fact that you have to remember to eat should be a prompt to bolus on a pump.

As you said, you need to list everything down in order from the start.

There are 15 points that you should get from being a diabetic. I can't link them myself but a dafne course is just one..

It certainly doesn't sound as if you have had all the tests to confirm which type you are.

Is this an appointment with a gp or consultant at hospital?
 
Steroids of any form can also raise your blood levels.
 
donnellysdogs said:
Steroids of any form can also raise your blood levels.
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The appointment is with my consultant at hospital... Yeah I know the problem I have is a rare condition apparntly its a large red ring on my shin I really can't remember the name of it but it brakes out in leg ulcers... And the only way is the sterioid stips it's like a tape that I have to wear during the night... I also have insomnia so that's contributing to energy levels being low... Just times when I think of it like today I get depressed... But even that's not taken serisoly by doctor..
 
Sally it sounds as if you are really struggling at the moment.

I know you say about forgetting, do you forget testing too? Or is it just the injections?

As you care for your mum does she take medicines at set times that would remind you to take yours? Could you leave your basal pen by bedside as a reminder to take before going to bed and pre getting up?

To me it sounds as if you may have been going through a time of not really paying attention to diabetes rather than just forgetting? Could there be a bit of ignoring it in there too? We have all been through those times at trying to ignore at some point.

It sounds as if you are struggling with many things if you also have insomnia... And depression. Virtual hugs to you, we'll try to help more if we can..
 
donnellysdogs said:
Sally it sounds as if you are really struggling at the moment.

I know you say about forgetting, do you forget testing too? Or is it just the injections?

As you care for your mum does she take medicines at set times that would remind you to take yours? Could you leave your basal pen by bedside as a reminder to take before going to bed and pre getting up?

To me it sounds as if you may have been going through a time of not really paying attention to diabetes rather than just forgetting? Could there be a bit of ignoring it in there too? We have all been through those times at trying to ignore at some point.

It sounds as if you are struggling with many things if you also have insomnia... And depression. Virtual hugs to you, we'll try to help more if we can..
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Yeah I only test when I remember to take my injections I've taken 4 outta 6 today so getting there but I do this for a few weeks then just forget my mum takes hers every 4 hours and she does remind me at tea and bed but alot of the times shes in bed because of her medication... So morning and dinner.. Are forgotten and plus I don't really eat during the day sometimes I'll snack sometimes I won't... I also have my lantus in the morning and night so maybe lantus by the bed may be good the others are on a table beside me that's why when I get chance to sit down and take them I remember during the day I'm going out or cleaning around the house or just generally busy and forget
 
Ok... So in your original
Post you mentioned a pump.

What makes you think that you would remember to bolus and test on a pump. A pump takes a lot of management initially although slighy less long term. I still test at least 8-10 times a day with my pump that I've had over 4 years...

I only ask, because tjis is a question that your consultant would ask you.

Would you have the time and commitment to do basal testing?

It is a struggle with diabetes in your twenties.. Do you talk to your dad about injecting etc? As a type 1 is he looking after himself or are you picking up less good habits because of others around you.

I have a 23 yr old friend in a eating disorder clinic and literally she is having to eat every 2 hours and she is anorexic. So I guess you may be anle to feel how bad this is for her. However, by taking her in to this unit, they have given her routine and she is finding it easier because of the routine....diabetes is different I know, but getting a routine for mornings would assist you.. Ie getting up at a set time, and making sure you have breakfast say at 8.30 each morning and putting a note on the table.. Test and jab etc...you need to find a routine too... Your mum after all is in a routine of reminding you at teatime etc.

It depends as well as how you see your future life evolving... You need to be as to stand up on your own feet at some time in the future... At some point you will have a life outside of your parents.. So the earlier you start to get this routine the less length of time that you will be struggling...
 
donnellysdogs said:
Ok... So in your original
Post you mentioned a pump.

What makes you think that you would remember to bolus and test on a pump. A pump takes a lot of management initially although slighy less long term. I still test at least 8-10 times a day with my pump that I've had over 4 years...

I only ask, because tjis is a question that your consultant would ask you.

Would you have the time and commitment to do basal testing?

It is a struggle with diabetes in your twenties.. Do you talk to your dad about injecting etc? As a type 1 is he looking after himself or are you picking up less good habits because of others around you.

I have a 23 yr old friend in a eating disorder clinic and literally she is having to eat every 2 hours and she is anorexic. So I guess you may be anle to feel how bad this is for her. However, by taking her in to this unit, they have given her routine and she is finding it easier because of the routine....diabetes is different I know, but getting a routine for mornings would assist you.. Ie getting up at a set time, and making sure you have breakfast say at 8.30 each morning and putting a note on the table.. Test and jab etc...you need to find a routine too... Your mum after all is in a routine of reminding you at teatime etc.

It depends as well as how you see your future life evolving... You need to be as to stand up on your own feet at some time in the future... At some point you will have a life outside of your parents.. So the earlier you start to get this routine the less length of time that you will be struggling...
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My idea is if I was given a pump I think i know its there attached to me kinda thing so when I'm out shopping I won't forget by the time I get home (one problem with insomnia is I'm so forgetful)
I remember them at evening meal and bed my mum just normally asks if I've taken them so if I haven't (which isn't often for them 2) I am propted to remember to get them..
My dad isn't very well controlled either and I don't really get advice from them as I think some people are diffrent his diabites is controlled by alot less insulin than me and diffrent types so it's hard because hes not on the same amount or anything
 
Just asking from a consultants point of view.. So that you can be prepared to answer questions that consultant may ask..
Well, I'm going to bed now, so will catch up with you tomorrow..

Will leave you with one last question. How would you feel about HAVING to test more and analysing your results and HAVING to manage changes etc in fine detail on a pump? This is anothe consultant type question..
 
donnellysdogs said:
Just asking from a consultants point of view.. So that you can be prepared to answer questions that consultant may ask..
Well, I'm going to bed now, so will catch up with you tomorrow..

Will leave you with one last question. How would you feel about HAVING to test more and analysing your results and HAVING to manage changes etc in fine detail on a pump? This is anothe consultant type question..
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I'm guessing that's something I have to learn with the pump...if I was to get one it's only an idea I don't really want it if I can help it but it's just an option I may have to think into

Thanks for your questions and help x
 
Hi Sally,
Wow, you've got a lot on your plate at the moment!
It's good that your appointment at the diabetic clinic is coming up soon.
We can help you write your list of things to ask the doctor at the appointment, if you think that would help you?
 
lizdeluz said:
Hi Sally,
Wow, you've got a lot on your plate at the moment!
It's good that your appointment at the diabetic clinic is coming up soon.
We can help you write your list of things to ask the doctor at the appointment, if you think that would help you?
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That would be brilliant I have some of the stuff on paper at the min about the tests that I need and the one about the carb stuff
 
Its Tuesday isn't it, for your appointment?

You need to list a very brief personal background of your life especially for the last 3 months...

Things like

1) a typical day for me is this:
2) because of xxxx I struggle
3) I would like a confirmatiom from you whether I am type 1 or T2, was I tested for GAD, and c-peptide
4) I inderstand that as a diabetic on injections I should have been offered a DAFNE course. I have now been diabetic 5 years and still have not been offered one. I believe this would assist me in managing my diabetes. Please can I have a dafne course?
5) I have been researching pumps... ( got stuck with this..) will think more on this....

Sally are you mainly high levels? Do you get any hypo's, do you recognise your hypo's?
 
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