• Guest - w'd love to know what you think about the forum! Take the 2025 Survey »

Has anybody else taken a week off insulin?

I definitely needed insulin from day 1 as my hba1c was 108, nobody has ever really discussed LADA with me, my symptoms appeared suddenly and I was told the GAD was to support the diagnosis of type 1. ( but that even if it was negative , I would still be type1)
My understanding of LADA is that you don't need insulin for many months, sometimes years and it comes on slowly, not rapidly.
I wish I was finding it easy. I find it utterly frustrating, inconvenient and terrifying at times :mad:
So as far as I'm concerned I'm an adult diagnosed with type1.
 
3C! < faints>
Now, are you sure you're not just trying to fry my brain MrsPuddleduck :p
 
@Andy41

Hello Andy and welcome to the forum :) Here is the information we give to new members, as suggested by Azure. It contains info about levels which should be interesting and useful to you.

BASIC INFORMATION FOR NEW MEMBERS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you’ll find over 150,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.
There are two approaches to controlling your carbs:

  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates

Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

Another option is to replace ‘white carbohydrates’ (such as white bread, white rice, white flour etc) with whole grain varieties. The idea behind having whole grain varieties is that the carbohydrates get broken down slower than the white varieties –and these are said to have a lower glycaemic index.
http://www.diabetes.co.uk/food/diabetes-and-whole-grains.html

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to bloodglucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic

Note: This post has been edited from Sue/Ken's post to include up to date information.
 
I definitely needed insulin from day 1 as my hba1c was 108, nobody has ever really discussed LADA with me, my symptoms appeared suddenly and I was told the GAD was to support the diagnosis of type 1. ( but that even if it was negative , I would still be type1)
My understanding of LADA is that you don't need insulin for many months, sometimes years and it comes on slowly, not rapidly.
I wish I was finding it easy. I find it utterly frustrating, inconvenient and terrifying at times :mad:
So as far as I'm concerned I'm an adult diagnosed with type1.

Hi, same here Claire ( though it was quite a few years ago).I needed Insulin when I got sorted out in hospital. Didn't know of the honeymoon period and the only adjustments that had to made to my Insulin dose was to drop it by 2 units because when I left hospital I was more active and therefore needed a little less.
So sorry you feel terrified and are frustrated, it can be such a big shock and very scary at the time. In time I hope things get better and a little easier for you, take care..
 
My understanding is that type 1.5 is a form of type 1. The main difference between the two is that type 1.5 seems to develop in adulthood and the "honeymoon" period for type 1.5 can last for years in some cases.

Personally, I think the "type 1.5" diagnosis is a bit irresponsible as it can cause the EXACT issues we are seeing in this thread (denial). To me, it seems to follow the same thought process as calling type 1 "childhood onset diabetes" and type 2 "adult onset diabetes" they're both generalizations that simply aren't true. I've also read that people with type 1.5 can have insulin resistance but not always.

In my (untrained) opinion the "type 1.5" term just means you're an adult with type 1 and can expect an extended honeymoon phase. Technically, I may have type 1.5 as I was diagnosed at 27 years old and my pancreas still produces some insulin.
 
@TorqPenderloin You are right but the trouble I am finding is that specialists seem to struggle with diagnosing you when you don't quite fit the mould. So you get people, myself included, who are told one thing, then the other by someone else and are left wondering what type they are. And for some people that is so distressing that they will even contemplate doing experiments to try and work out for themselves by either stopping Insulin or oral meds or even eating a load of sugar.

If only the specialists would be upfront and say that we can't confirm which type you are and we will need to see how this plays out, explaining what the possible scenarios are and what they think it is at present then those left in diabetic limbo won't spend time worrying or doing experiments to try and test their diabetes for their own answers. But nope instead too many people are left in limbo, not informed on what is going on, seeking answers for themselves and then having to deal with the conflicting opinions of different doctors and nurses who jump to conclusions over your type because of age and weight.
 
@TorqPenderloin You are right but the trouble I am finding is that specialists seem to struggle with diagnosing you when you don't quite fit the mould. So you get people, myself included, who are told one thing, then the other by someone else and are left wondering what type they are. And for some people that is so distressing that they will even contemplate doing experiments to try and work out for themselves by either stopping Insulin or oral meds or even eating a load of sugar.

If only the specialists would be upfront and say that we can't confirm which type you are and we will need to see how this plays out, explaining what the possible scenarios are and what they think it is at present then those left in diabetic limbo won't spend time worrying or doing experiments to try and test their diabetes for their own answers. But nope instead too many people are left in limbo, not informed on what is going on, seeking answers for themselves and then having to deal with the conflicting opinions of different doctors and nurses who jump to conclusions over your type because of age and weight.
I'm across the pond in the USA, but I was very fortunate that they ran multiple tests and some more than once to be absolutely sure of my diagnosis. Not everyone is that lucky, but I have an excellent healthcare team who wanted to be certain before diagnosing me. The C-peptide test ultimately confirmed my diagnosis. Of note: my test results showed my pancreas was still producing insulin but it was about 30% below the "Normal" range.

UPDATE: Relevant to this thread and discussion. I've now gone 50 hrs without a drop of insulin. My 2-week average glucose levels have continued to drop (currently show 6.0mmol/l down from 6.4mmol/l).

-I've reduced my carbs from about 250-300g/day down to about 30g/day
-yes, I am in ketosis (confirmed with ketone testing strips)
-my activity levels are high by most people's standards (heavy weight lifting, I run ~25km/week, and other various outside activities)
-I eat 6-7 meals a day to avoid large spikes
-Energy levels are unchanged which I find odd given my past experience with LCHF diets. However, the last time I did one, I was a college athlete and exercised more than 4hrs/day

To put it into perspective, my a1c was 13.2 when I was diagnosed on September 2nd 2015
 
Back
Top