Type 1, relatively newly diagnosed

MickyFinn

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Messages
158
Type of diabetes
Type 1
Just thought I'd say hi to everyone. I'm relatively new to type 1 diabetes, having been diagnosed last November and still getting used to the insulin regime and testing. All the diabetes nurses, the dietician, the consultant all tell me I am doing great, the consultant even told me that yo have such good control is unheard with someone new to type 1. Thing is, a nurse suggested I should aim to keep my glucose levels above 7, bearing in mind my job is quite active, but I am struggling to achieve that. It's mostly between 5 and 6, and occasionally lower or higher. I think because of that, they expected me to get it between 7and 9 but I am finding that impossible.
 

himtoo

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why can't everyone get on........
Hi @MickyFinn
welcome to the forum :)

as you are newly diagnosed the most important thing to remember is that you are running a life marathon now -- so don't sweat the small daily details -- of course you must do your best to keep results in target but veering off the plan is not too significant over the long term

i like the fact your numbers have been a bit lower than your nurse suggested -- 5's to 6's is better in the long term than above 7

tagging @daisy1 for her great starter pack to read for newly diagnosed.

keep posting and all the best !!!!!!
 
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daisy1

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@MickyFinn

Hello and welcome to the forum :) Here is the information we give to new members and I hope you will find it useful. Ask as many questions as you want and someone will be able to help.

BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you’ll find over 150,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.
There are two approaches to controlling your carbs:

  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates

Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

Another option is to replace ‘white carbohydrates’ (such as white bread, white rice, white flour etc) with whole grain varieties. The idea behind having whole grain varieties is that the carbohydrates get broken down slower than the white varieties –and these are said to have a lower glycaemic index.
http://www.diabetes.co.uk/food/diabetes-and-whole-grains.html

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes

LOW CARB PROGRAM:
http://www.diabetes.co.uk/low carb program


Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to bloodglucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic

Note: This post has been edited from Sue/Ken's post to include up to date information.
 
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Just thought I'd say hi to everyone. I'm relatively new to type 1 diabetes, having been diagnosed last November and still getting used to the insulin regime and testing. All the diabetes nurses, the dietician, the consultant all tell me I am doing great, the consultant even told me that yo have such good control is unheard with someone new to type 1. Thing is, a nurse suggested I should aim to keep my glucose levels above 7, bearing in mind my job is quite active, but I am struggling to achieve that. It's mostly between 5 and 6, and occasionally lower or higher. I think because of that, they expected me to get it between 7and 9 but I am finding that impossible.

Hi and welcome @MickyFinn, your BS is in a good range, the nurses seem to more concerned about hypo's
( going low, under a reading of 4) and therefore tend to want the patient to be a little higher. You seem to be doing very well and I hope it will continue for you.
Take care and best wishes RRB
 
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Charles Robin

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Messages
570
Type of diabetes
Type 1
Treatment type
Insulin
Hi Micky, welcome to the forum. You're probably still adjusting to making changes at the moment. The best advice I can give you is to educate yourself. The amazingly controlled diabetic sees their healthcare team as just one warhead in their arsenal. Go to YouTube and search for Dr Troy Stapleton. He was diagnosed with type 1 in 2012, and he gives brilliant talks about how he manages his condition. He is also very active, cycling over 100km a week and partaking in other sporting events
 
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MickyFinn

Well-Known Member
Messages
158
Type of diabetes
Type 1
I would have replied sooner, however, the smartphone app refused to allow me to do so!

Anyway, I have resolved to try and maintain levels at around 6, and only adjust that on days I am working for longer periods. The nurse who suggested I keep it above 7 is one of those at my GP surgery, however, the nurse I have see most often works out of the local hospital, and I had discussed a plan with her and the specialist dietician before that. I am a freelance photographer, and a large percentage of my work is weddings, so they suggested that I omit my morning dose of levemir on days when I have a long wedding shoot, which typically tends to be on Saturdays, and only take my night dose. Because I am always active on those days, I would also have plenty of carb snack available etc, and when I have the opportunity to do so, test regularly to make sure I don't get low.

I have also had Crohn's Disease for 11 years plus now, and that complicates matters in terms of diet. I have been free of medications and treatment for Crohn's for 5 years now, and I have managed that by being very precise with what I eat and by arming myself with knowledge. My gastro consultant insists I should go back on meds, simply because he thinks something must be wrong with me by know, even though I am in full remission and the news have always caused me mass side effects and major health issues. It was because of a medication he prescribed me a few years ago that I am Type 1, that gave me acute pancreatitis and damaged my pancreas, and it eventually led to where I am now.

I suppose I am still learning to balance the needs of the two conditions out, not to mention the diagnosis was very sudden and a bit of a shock.