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Hi all, i'm new on the forum and decided to make a post after doing research on LADA/MODY and wanted to hear about your own experiences.
I'm 22 and was diagnosed with diabetes last year at 20, with a hba1c of 50 (previously I had been prediabetic and displaying symptoms, which was why they diagnosed me when I reached 50). However I was left in a bit of a limbo, as I didn't fit the classic type 2, with both my age and weight etc. I was put on metformin. I had a c peptide test and GAD one privately which all came back normal.
I had hospital appointments where the consultant told me I most likely have MODY, the genetic form of diabetes, as I have a strong family history of diabetes, my mum being a type 1 and my grandmother on her side/my grandmother's siblings being type 2. However they didn't want to test for it, as my hba1c went down to 47.
It's been just over a year now since I've been diagnosed and my sugar levels have gone sky rocketing up. I wasn't given a blood testing machine of mine at the time so I used my mum's when I was having quite bad symptoms and we saw I was up to 19! I'm on 2000mg of metformin a day, so this shouldn't be happening. Went back to the doctor's, had some blood tests done, got put on 40mg of gliclazide a day for a month alongside my metformin and got refered to a diabetic nurse.
My hba1c has gone up from 47 in May to 70 this month. The nurse had told me that she'll be asking the consultant to test me for MODY, but she also thinks LADA is a possiblity, especially with my mum being a type 1. Right now is just a waiting game of my next appointment with the consultant, but I was curious about others experiences and how your LADA got diagnosed/progressed. Sorry for the long post and thank you!!
I'm 22 and was diagnosed with diabetes last year at 20, with a hba1c of 50 (previously I had been prediabetic and displaying symptoms, which was why they diagnosed me when I reached 50). However I was left in a bit of a limbo, as I didn't fit the classic type 2, with both my age and weight etc. I was put on metformin. I had a c peptide test and GAD one privately which all came back normal.
I had hospital appointments where the consultant told me I most likely have MODY, the genetic form of diabetes, as I have a strong family history of diabetes, my mum being a type 1 and my grandmother on her side/my grandmother's siblings being type 2. However they didn't want to test for it, as my hba1c went down to 47.
It's been just over a year now since I've been diagnosed and my sugar levels have gone sky rocketing up. I wasn't given a blood testing machine of mine at the time so I used my mum's when I was having quite bad symptoms and we saw I was up to 19! I'm on 2000mg of metformin a day, so this shouldn't be happening. Went back to the doctor's, had some blood tests done, got put on 40mg of gliclazide a day for a month alongside my metformin and got refered to a diabetic nurse.
My hba1c has gone up from 47 in May to 70 this month. The nurse had told me that she'll be asking the consultant to test me for MODY, but she also thinks LADA is a possiblity, especially with my mum being a type 1. Right now is just a waiting game of my next appointment with the consultant, but I was curious about others experiences and how your LADA got diagnosed/progressed. Sorry for the long post and thank you!!