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Rant about diabetes review/ GP surgery madness

It just goes on and on. My "initial assessment upon diagnosis" is still ongoing nearly 4 months on, with the next instalment booked for 3rd September.

Most of my questions, including some quite urgent ones, get brushed off with "Save that for your next appointment, I don't have time". Latest ***** of a nurse got quite shirty, and, mysterious coincidence - lancets and test strips were missing when I went to order my repeat prescriptions on the NHS app today. Her petty revenge isn't helping me manage my diabetes or other health conditions I can tell you.

I've pretended I think it's just a mistake and requested them through the GP's e-consult instead.

I won't let the ******** grind me down, but I really could do with a break. This song seems appropriate

Agree with this song title


Edited by mods to remove a profanity
 
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The original thread is about my frustrations with my GP surgery. As OP I'm not too concerned by whether it drifts off topic, as it's not intended for anyone else to read for information about how to manage their own diabetes. If anyone wants to add a message of sympathy or practical suggestions for ways to overcome an obstacle, that's welcome. Otherwise it's just me having my say, with no-one else under any obligation to pay attention. I post here because my family don't want to listen, but there are things I want to get off my chest. That seems to me to fit the ethos of a soapbox.

Mod edit to comply with forum ethos
 
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debs248 said:
I post here because my family don't want to listen, but there are things I want to get off my chest. That seems to me to fit the ethos of a soapbox.
Click to expand...

Hi,

Has your family indicated why they don’t want to listen?

As a T1 I’ve been suggesting for a few years (with my “receipts.”) I need a pump as I actually need fractional insulin doses instead of adjustments in whole units? (At certain times of the day.)
I’ve just recently been prescribed half unit pens for basal & bolus..

lol, probably a step forward to that mirage of a pump, I suppose..

It takes a few mistakes & a certain tweak with method in language to convey the “pitch” on what one requires.?
 
Jaylee said:
Has your family indicated why they don’t want to listen?
Click to expand...
They're under stress themselves and just don't have or aren't prepared to make enough time for me to have a moan.
Jaylee said:
As a T1 I’ve been suggesting for a few years (with my “receipts.”) I need a pump as I actually need fractional insulin doses instead of adjustments in whole units? (At certain times of the day.)
I’ve just recently been prescribed half unit pens for basal & bolus..

lol, probably a step forward to that mirage of a pump, I suppose..
Click to expand...
Yay for small wins. I try to spot positives but I can't see any caused by removing testing supplies from my repeat prescription list. Except that it led me to discover a "request prescription" option on the surgery's econsult system. But I'd still rather not to have had to iyswim.

Just realised you meant talking to NHS prescription decision makers, not forum posts. Sorry. I'm not even going to try to argue with "Nurse 3". If whoever reads my request disagrees I'll try the one GP I trust, but she's semi-retired and very part-time. I need to book some bloods with her next month so will have an opening to bring it up.
Apparently I also have a "care coordinator" at the surgery but I have no idea yet what she does.

Mod edit to comply with forum ethos
 
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debs248 said:
They're under stress themselves and just don't have or aren't prepared to make enough time for me to have a moan.
Click to expand...
OK. My wife is a “swan.” Great woman. Paddles to keep afloat.. Neither I or my wife are getting any younger.. lovely woman. I do what I can to let her follow the river..

I have a mother with Alzheimer’s my sister is her primary carer?
I as a man “mumsit” on a regular basis (cook, take out, support, keep company engage in conversation.) & get a female carer in every day for the hygiene. This gives my sis a break..
She has her own issue theses days with her spouse’s serious potential health issues?

There is a rich English language you could use.. My (now deceased.) T2 father told me back in the day. “Swearing is a lack of vocabulary.”

He’s not far wrong.
I sing in 2 heavy metal rock bands..
I wrote songs. In my youth.. None of them were hits on radio one.

I’ve since taken the piercings out of my face & adjusted my image.
Lost the attitude & pushed my “game” a little further?

A change is actually not as good as a rest it can give you more credibility?
 
I've had something similar in that for the past 15 years or so I've had blood and urine samples taken and then when the results are at the surgery I would be called for review. However this year I was asked to attend the review without any tests so I refused on the grounds that it is illogical, how can you discuss anything before knowing what the data is? Anyway I insisted on having the tests first then the review and that was accepted. Unfortunately the HbA1c came back at 65 when it has been in the 50's for years.
In the review we discussed how the Hb1A1c is skewed towards the latter month or even a week and as I had been on holiday immediately prior to the tests I had slipped into some bad eating and drinking habits. We booked another blood test after 3 months; this was last Friday and I am awaiting the results before my next holiday this Friday. I hope that I did not stray from the straight and narrow too much and my readings are down to my normal.
 
debs248 said:
Oh and apparently I can no longer use the home phlebotomy service because I left the house when the surgery *insisted* I come in immediately, back at diagnosis. It's like living in a novel cowritten by Orwell, Heller and Monty Python.
Click to expand...
Sorry you are going through this, but I had to laugh at the "novel cowritten by Orwell, Heller and Monty Python" as my surgery is unfortunately the same! Had to fight to get my Triglycerides result. Onwards and upwards xxx
 
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