Hello.
I'm T2, diagnosed 2021. I was initially put on Metformin. This wasn't sufficient to get my levels under control. Dapaglifozin was then added in. Still not enough. I was then one of the 'lucky' ones and put on Mounjaro back in October 2024. It really has been life-changing and along with losing 6 stone my HbA1c has gone from sky high to 34, so into 'non diabetic' range. My blood pressure has gone from high to healthy and my NAFLD has reversed. All liver readings now normal.
And now the diabetes nurse at my surgery has said I need to come off all 3 medications, despite last month when I asked if I should reduce the Metformin/Dapa she said "absolutely not". I am really worried that if I come off all the medications (I certainly want to reduce them) then I will just go straight back to where I was before. My HbA1c is only so low because of the mounjaro. From all the reading I've done, I'd like to stay on a low dose of mounjaro for a good while, as that's what's working, and come off the metformin and dapa. But she says I have to come off them all. She said if I go back to where I was before I would then go back on the same combination of meds. Which not only seems daft and short-sighted, it really scares me - I don't want to go back to where I was before! But am I missing something? Is there a reason I'm not understanding as to why she thinks taking me off everything won't mean my HbA1c goes back up so high?
She says that I don't meet the criteria for the meds (all three) to be prescribed any more. I said, but that's because one of them (the mounjaro) is working so well. She just repeated that I don't qualify for the medications anymore. Is it really the case that I should come off them all, wait for things to get out of control again, and then go back on, yo-yo'ing like that? I have another medicated condition (unrelated) that took a similar process of trial and error with finding meds that worked, and now we've found the right meds for that, my blood readings are normal, but I haven't been taken off the meds because it's understood it's the medication that's making the results normal. I don't understand why this is different. If anyone is able to help or tell me about their experience with meds when they've come off or their HbA1c has come down I'd be really grateful.
I'm T2, diagnosed 2021. I was initially put on Metformin. This wasn't sufficient to get my levels under control. Dapaglifozin was then added in. Still not enough. I was then one of the 'lucky' ones and put on Mounjaro back in October 2024. It really has been life-changing and along with losing 6 stone my HbA1c has gone from sky high to 34, so into 'non diabetic' range. My blood pressure has gone from high to healthy and my NAFLD has reversed. All liver readings now normal.
And now the diabetes nurse at my surgery has said I need to come off all 3 medications, despite last month when I asked if I should reduce the Metformin/Dapa she said "absolutely not". I am really worried that if I come off all the medications (I certainly want to reduce them) then I will just go straight back to where I was before. My HbA1c is only so low because of the mounjaro. From all the reading I've done, I'd like to stay on a low dose of mounjaro for a good while, as that's what's working, and come off the metformin and dapa. But she says I have to come off them all. She said if I go back to where I was before I would then go back on the same combination of meds. Which not only seems daft and short-sighted, it really scares me - I don't want to go back to where I was before! But am I missing something? Is there a reason I'm not understanding as to why she thinks taking me off everything won't mean my HbA1c goes back up so high?
She says that I don't meet the criteria for the meds (all three) to be prescribed any more. I said, but that's because one of them (the mounjaro) is working so well. She just repeated that I don't qualify for the medications anymore. Is it really the case that I should come off them all, wait for things to get out of control again, and then go back on, yo-yo'ing like that? I have another medicated condition (unrelated) that took a similar process of trial and error with finding meds that worked, and now we've found the right meds for that, my blood readings are normal, but I haven't been taken off the meds because it's understood it's the medication that's making the results normal. I don't understand why this is different. If anyone is able to help or tell me about their experience with meds when they've come off or their HbA1c has come down I'd be really grateful.
