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Taking care of my diabetes while I’m at my daycare

J

Jodes 7

Well-Known Member
Messages
53
Type of diabetes
Type 1
Treatment type
Insulin
I feel mire needs to be done to take stigma in other health care settings. I had a flower migraine last week and u’vr suffered with them since I was 11 . Was diagnosed with theme in 2016 officially I think and last week my day centre tried to put it dieting diabetes when it’d a pre exhausting condition I’vt had for years. They Evfn asked me had I been shaking treats in my room and I hadn’t . Even when I want a snack my assistant helped me portion things to try correct amoitny plus I feel it’s my business what I eat outside if that place. I’m by no means perfect but I try my best and if they really need to know what I mvr had I will tell them but apart from that I feel Only my family and district nursing needs tobkbie as they help me with my insulin due to eye site issues and mobility issues as well.
The eye condition I’vt had is since birth and bot diabetes related.
 
Jodes 7 said:
my day centre tried to put it dieting diabetes when it’d a pre exhausting condition I’vt had for years.
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I can empathise with the assumption that people assume that all other health conditions you have or get must be caused or related to your diabetes. (I also notice it here when people tend to assume that their new symptoms are diabetes related.)

Diabetics can get the same health conditions as non diabetics, having diabetes may make some other illnesses more likely, but that is all.

On a lighter note, when my children were younger and living at home, I'd sometimes get asked if I was hypo if I was in a bad mood or just struggling with something. I'd just reply "No, I'm just in a bad mood." (Though to be fair, in the pre-cgm and pump days when my hypos were much more serious, my family helped me with them numerous times so I'm very grateful to them. )
 
I am greatful for the help as well but dealing with the stigma gets me down sometimes and I mum not sure how to respond to it or when they ask questions about my levels because again they assume I mm eating things I shouldn’t
 
Jodes 7 said:
I had a flower migraine last week and u’vr suffered with them since I was 11 . Was diagnosed with theme in 2016 officially I think and last week my day centre tried to put it dieting diabetes when it’d a pre exhausting condition I’vt had for years. They Evfn asked me had I been shaking treats in my room and I hadn’t
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Jodes 7 said:
I am greatful for the help as well but dealing with the stigma gets me down sometimes and I mum not sure how to respond to it or when they ask questions about my levels because again they assume I mm eating things I shouldn’t
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If I understand correctly, it's your assistent, your family and your district nurses that help you dosing for food because of your disability with your vision.

Why does your day centre feel they can even mention what they think?
They are not your doctors and supposedly not in any way involved in your medical care.
Your levels are none of their business unless it looks like you're having a medical emergency.
 
By law my day centre can’t give insulin to anyone as Ite condideree a nursing need so that’s why district nurses come out the days I’m there. My family do my insulin wgenbi’m at home and my assistant helps me make sure I have the right amount of snack portion. I agree with everything you said as well
 
Jodes 7 said:
By law my day centre can’t give insulin to anyone as Ite condideree a nursing need so that’s why district nurses come out the days I’m there. My family do my insulin wgenbi’m at home and my assistant helps me make sure I have the right amount of snack portion. I agree with everything you said as well
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I understand your day centre is not involved in your diabetes management whatsoever.

Why do they even know wat your numbers are?
 
I think due to tye lack of training they are afraid of me going too high or low with my levels. Although I’ve tried to reassure them and tell them what I do when I’m high or low. I also think they are afraid of bring held liable if anything goes wring
 
I’m working with diabetes uk to try and get updated training and laws changed so as knowing else had to go there what I ‘Gr gone threw and I’m sure others have too in different situations
 
Jodes 7 said:
I think due to tye lack of training they are afraid of me going too high or low with my levels. Although I’ve tried to reassure them and tell them what I do when I’m high or low. I also think they are afraid of bring held liable if anything goes wring
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Are they involved in your diabetes care?
I understood it was district nurses/family helping you out with that.

What is the deal between you and your day centre to have them have access to your numbers and comment on it?
 
Because when they comment it makes me feel like I’m not doing enough when I am. I also take medication that can impact blood sugar levels
 
The opening posts & replies in this thread have been moved from this thread by the mod team as they were off topic
LittleGreyCat

Thread 'Diabetes UK tackling stigma campaign'

I have been told that Diabetes UK (not this organisation) recently ran a media campaign over tackling the stigma associated with Diabetes.

I haven't seen it, so I wondered if anyone else had?
 
Antje77 said:
But why does the daycare even know what your numbers are?
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It’s not unreasonable for the centre to want to know the levels. As @Jodes 7 says the centre have a duty of care to her and would get into trouble if something happened and they hadn’t been aware of the possibility of a hypo or hyper.
 
I wonder if the word "stigma" is increasingly being weaponised thus misused. As others have pointed out the day care centre have a duty of care and are damned if they do and damned if they don't.

If I was in a care home I'd rather staff be overzealous then them watch a slow train crash. I don't know about others but there are times when I have blind spots (even when the high bgs are in front of me!) and having someone else comment whether it is about high bgs or that I'm eating too many carbs is quite helpful for me.
 
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