• Guest - w'd love to know what you think about the forum! Take the 2025 Survey »

Search Results

  1. L

    proliferative retinopathy I'M SO SCARED

    Hi all Sorry to post anither question but wad wondering if anyone else has bleeds every day. Since wednesdsy i keep getting them. Some big and sone smsll but it gets no kess frightenung. I niw cant see hardly anything from this eye and i hope that it will clear enough for tuesday. Just dont...
  2. L

    proliferative retinopathy I'M SO SCARED

    Unbliever itd true everyone is inspired by your story. As for stress considering some raiki as a friend suggested it and i thoughr what have i got to lose. Im open minded now about things. :-) x
  3. L

    proliferative retinopathy I'M SO SCARED

    Hi and thanks for your reply Its reassuring to know cases like yours exist. I think ihave been convinced that its a downwards slope and is inevitable my vusion will be lost in the end. Silly i kniw but am realising niw thus may nit be the case. :-) Was it a case if getting better control of your...
  4. L

    proliferative retinopathy I'M SO SCARED

    Sorry to hear of your recent bleed robinredbreast. Have you had many like that or is it a new thing. If so what normslly happens ie do you have laser or injections. Have you suffered for long?? Is there anyone out there who have had proliferative reginopathy and hadbeen treated succesdfully...
  5. L

    proliferative retinopathy I'M SO SCARED

    Thanks again unbeliever for takung the time to respond. I do hooe things improve, i have jyst haf the phonecall about my next laser whuch is first tjing tuesday morning. Im guessing its too late to ask about injections fir this tine but will mention it when iget there anyway. Thanjs again
  6. L

    proliferative retinopathy I'M SO SCARED

    Hi thanks for the link. All looks a little scary :-( Unbeliever, the dr was very blunt and had no compaddion at all. I sat and cried through most of it. the clInIc was sooooo busy with lots of docs working. Felt a bit like a cattle market!!! As for talkingto someone i trust think that could...
  7. L

    proliferative retinopathy I'M SO SCARED

    Hi all Judt got back from eye unit. Been told my new vwssels are growi g very rapidly. They are going to do more laser within the week but have said i may need an operation to remive blood, scar tissue and the jelly in the back of the eye. I am praying laser will work but my vision is getting...
  8. L

    proliferative retinopathy I'M SO SCARED

    Thanks again unbeliever. I know everyones different but how long dies it normally take for your bleeds to dry up? I have no idea!!! Will keep you posted about wednesday :-)
  9. L

    proliferative retinopathy I'M SO SCARED

    Omg just read my last post how terrible are ALL of the typos. I know i cant see too great but blimey thst shameful:-) Also the bit about the pump and meeting requirementd. My hba1c has come down since doing DAFNE but itd a bit faulse as its because ive had soooo many hypos. My dIabetIc nurse...
  10. L

    proliferative retinopathy I'M SO SCARED

    Thanks unbeliever. Yes im hoping my fiabetic consultant can push fir the pump soon. I am seeing him in a few weeks uts just all diwn to funding apparently. Our Pct has struct guufelined but im hoping i meet the requurements niw. Can i ad you a fee wuestions? As i have saud many times(sorry for...
  11. L

    proliferative retinopathy I'M SO SCARED

    Sorry firgit to answer the questions. Yes i have haf uncintrolled blood gkucose for about 13yrs. The onlytime it improved wad when pregnent with my first dsughter. She will be 13next minth. Eith my second daughter it wasnt controlled all. I have been on the DAFNE in feb and dud start to get a...
  12. L

    proliferative retinopathy I'M SO SCARED

    Thanks so much for your support. I am keeping my fingers crissed for wednesdsy when i go to my local eye hispitsl but if i am not happy with there responseiwill return to moorfields a n e and see if they can help. Unbeliever i will take on biard what you said about being assertive. Its really...
  13. L

    proliferative retinopathy I'M SO SCARED

    Sorry for typos on previous post x
  14. L

    proliferative retinopathy I'M SO SCARED

    Hi i found out i have advanced oroliferative retinoathy in march. I underwent extensive laser on both eyes 2days later. My vision in my right eye us geting worse and i had s nassive haemirage on wed night which blocjed 70 of my vusion with red splodges. I niw have a haze where the splodges were...
  15. L

    Retinopathy can get anyone !!

    Hi all Just wanted to say i agree with the bringing glucose levels down gradyally. I have been diabetic type 1 fir 21years. My control has been terrible for over 13years but i ead one of those who thought id git away with it. I went on DAFNE in feb and found it really useful. I came away...
  16. L

    phsycodelic vision

    Hi Have you had your retinal screening lately? Dont want to worry you but thats similar to what i experienced before finding out i had retinopathy. It may not be anything like that but its always best tohave these things checked as if its anything its best to get it treated as soon as...
  17. L

    ATTEMPT TO IMPROVE DIABETIC RETINOPATHY

    Hi i am new to this forum but feel it is somewhere that may help me deal with my recent problems. I am 32 yrs old and have had type 1 diabetes for 21 years. Since having my first daughter 13 years ago my control has been awful. My hba1c wad above 10 continuously. I went on DAFNE in feb and got a...
Back
Top