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I had a Pancreas only Transplant in 1997, so it's coming up to 18 years without taking insulin. It has not been an easy journey but I have been told by my Renal Consultant that I would not be here today if I hadn't had the Transplant. Yes you have to take Immunosuppressants for as long as you...

Can I ask why you are thinking about having an Islet or Pancreas

Ann18 I have Autonomic Neuropathy which affects many different parts of me. Back in July 2014 I spent four days at The National Hospital for Neurology and Neurosurgery having tests for AN. I have been diagnosed with Cardiac Autonomic Failure as well as other Dysautonomias. To be honest I have...

Bell's Palsy?

Unfortunately we have to live with it and manage it as best we can, was given a list of dos and don'ts by the specialist nurse which I have been doing for years anyway, had AN for over 25 years. There are a few medications that can help with the symptoms of AN, Fludrocortisone, Midodrine...

The National Hospital for Neurology and Neurosurgery in Queens Square London has an Autonomic Unit. I was referred by my cardiologist after having two stents and a pacemaker fitted last year. Be warned it took almost a year to be seen and assessed and diagnosed with Autonomic Neuropathy. I have...

There needs to be more screening for Diabetic Autonomic Neuropathy, I have read recently that Diabetics should be assessed at 5 years post diagnosis. I have recently had testing at The Autonomic clinic at The National Hospital for Neurology and Neurosurgery Queens Square London and have been...

I too have experienced an increase in complications post good control, for over 17 years in fact and yet the complications still haunt me. My control was not very good during my teenage/twentys, unfortunately there was not a lot of support and help when I was younger but as the years have gone...

My symptoms are very much like yours Adele99. I also have microvascular disease which has affected many organs, eyes, kidneys, heart, etc; I was diagnosed with cardio vascular disease last year resulting in me having to have a Pacemaker and two stents hence my pursuing further investigations at...

Hi I have had Autonomic Neuropathy for 30 years which started with what you're describing Postural Hypotension, certain situations do make it worse like today for instance "The HOT weather " my blood pressure has been in my boots today so I can sympathise with. Unfortunately it is not talked...

You will be admitted as a Day patient to a Renal unit or a Radiology department for this procedure. It will be carried out usually by a Senior Dr in this particular field of medicine, the 'guided biopsy' is done by guiding the biopsy needle into the kidney with the use of Ultrasound scan over...

Hope things improve for you x

PS I did get my Driving Licence renewed ( no medical exclusions) and do not have to renew it as I did when I was Type 1 Diabetic,

Hi Guys I had a Pancreas only transplant just over 17 years ago at St Marys Hospital Paddington London and it is still functioning well so I get annoyed when some Healthcare professionals give an average of 3-5 years not true at all as I personally know many patients that have exceeded 10 years...

The vac pump will help with the healing, better to be safe than sorry , hang on in there. Take care.

I too had a pacemaker fitted last March, it went okay, felt a bit of tugging and pushing when the pacemaker was inserted, but not too bad. Although it was quite sore, painful and awkward for quite a while afterwards. Still get the odd uncomfortable feeling in my shoulder even now. Perhaps you...

Just reached 17 years with my Pancreas transplant, can't believe it's been that long.

My friend in my post sadly passed away about 6 years ago, unfortunately she did not get the help she needed with regards to her multiple neuropathys. I myself have been fortunate to receive a Pancreas transplant in 1997, it has been a lifesaver but I still suffer with various neuropathys...

We need more awareness and screening of Autonomic Neuropathy. I have Cardiac Neuropathy, fortunately I have had a cardiac pacemaker fitted due to heart block and other rhythm problems. I could have easily been another victim of the silent sudden cardiac death associated with diabetes, so lucky...

A letter from my friend to a well known medical journal Living with autonomic neuropathy 25 November 2005 Dear Madam I am writing this in hope that it may be published in your personal column where it may be brought to the attention of both diabetologists and neurologists. I will start by...